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Everything posted by green

  1. Yes. Alcohol also sometimes seems to be good for me.
  2. Hello All. I need to drink more electrolyte solution. I'd like to know what electrolyte product you prefer. I am interested in $-savings. Best sugar-free / non-caloric ? Best caloric? (mine is Gatorade) Does anyone buy bottled water by the gallon and then shove tabs of their favorite electrolyte solution in? I've been thinking about that.
  3. Hi, Yes, nicotine helps. Nicotine helps me more than midodrine. There's a vasoconstrictive effect from nicotine, but also there's a cognitive stimulating effect. It's also easier to titrate your nicotine consumption to your needs - you can consume more until you're at the dose you're most comfortable with. I recommend using snus and not smoking or chew. Studies on Swedish snus suggest very few health risks. Now,I don't know if you can infer from the studies on Swedish snus that American snus is safer than cigarettes. I suspect it is, but I also wish I had the energy to drive down to the tobacco store and buy the Swedish stuff instead of just using what I can get at the gas startion. I also use nicotine patches - I'll cut a 21 mg patch into 1/4ths and use 1/4th per day. No cancer risk there, but harder to titrate your dosage.
  4. I just take 1 - 2 Xs the recommended dosage. I'm afraid to go too far over because it can cause hypertension.
  5. I am an on/off again marijuana user. I love it short-term - it really helps me focus and get things done. Smoking is better, but hard on the lungs. I've emulsified the product in oil many times, but I tend to overheat the oil and burn out the non-THC elements. I'm getting a modern slow cooker for Christmas so I can cook the oil more effectively. Long-term - I tend to get lazy and irritable. So it's a once-a-week thing for me right now. I've had issues with it making me nauseated, dizzy, and causing POTS symptoms. Sometimes it does, sometimes it doesn't. I do not understand why. I also like CBD oil for anxiety, but I am trying to cut back because it is expensive. The brand I buy OTC is 2$/day at the rate I've been using it - that is too much to pay for a pill.
  6. I posted about pheneylephrine a few months ago. It definitely works for me - the blood pressure elevating effects are stimulating. And it is a cheap OTC drug, so I am pleased.
  7. I bought some fenoxadine and ranitidine, so I can try it the next time I exercise. It is snowing in St. Louis today and the local gym is closed for the Christmas holiday so I am not inclined to workout.
  8. Has anyone been following this research suggesting that histamine receptors mediate the post-exertional drop in blood pressure in athletes with fainting issues? "There is reason to believe that histamine is the primary vasodilator contributing to post-exercise hypotension, but we cannot say for certain," https://www.eurekalert.org/pub_releases/2006-10/uoo-htt101006.php It makes me wonder if I could just take a cocktail of OTC anti-histamines before I run to avoid post-exertional malaise.
  9. Phenylephrine I took some phenylephrine recently and had an easier time standing and talking to people. It is a decongestant found in OTC products. Has anyone had any experience with it? It raises blood pressure, but in a weird way that could be dangerous. Here is wikipedia: The primary side effect of phenylephrine is high blood pressure. People with high blood pressure are typically advised to avoid products containing it. Because this medication is a sympathomimeticamine without beta-adrenergic activity, it does not increase contractility force and output of the cardiac muscle. It may increase blood pressure resulting in a slow heart rate through stimulation of vascular (likely carotid) baroreceptors. A common side effect during IV administration is reflex bradycardia.[16] I liked it. It was really easy for me to stand and talk yesterday. I am going to take more. I wonder if other people have tried it?
  10. Hey Ayl, you say: > I had a large ASD (atrial septal defect) missed for over 2 years. I found it myself and demanded a TEE. How did you find it yourself?
  11. Yes. I have much worse brain fog if I do not sleep much at night. Also, I frequently have weird pains and fluttering in my chest. These heart sensations are worse when I do not sleep.
  12. HI Janice: > Do you know that this can also happen due to the irregular response of your immune system in the body. No, I didn't. Do you have any sources on this? Have you ever gone for the whole internal body check up to find out the main reason? I think irregular blood flow in the body and hypertension too result in sleep apnea to most of the people. No. What is a "whole internal body check up"? A few years ago, I complained about general malaise to a doctor and he prescribed testosterone, which didn't seem to address the problem. >I personally believe that if a person is healthy by his mind, no disorder can affect him, and the best to make mind happy healthy in by giving a cool and calming massage to body everyday. I >know I sound off topic, but it does affect positively to all your body action. I believe you that massages and positive mental health can contribute to proper physiological functioning. Thanks! Hi Don, So you did not have apnea, but a sleep study lead to your diagnosis, right? I am in the boat where, I SEEM to have a problem with sleeping and breathing, but the sleep studies say otherwise. Thanks!
  13. Hi, Does anyone have resources on disordered breathing? I have many of the symptoms of sleep apnea, but cannot get diagnosed. At times, partners have told me that I gasp in my sleep, or wake up shouting. I went through a period where I would wet the bed (as a grown adult) a couple times a month. I often feel like I am not able to breathe well through my nose at night despite having had surgery to enlarge my nasal passages. I often feel worse after a good night's sleep. I often wake up with my heart pounding and can't go back to sleep, often if I do not sleep well at night I have chest pains and fluttering in my chest during the day (heck, lately I have funny pains and fluttering all the freaking time)..... It SEEMS like sleep apnea, but I have done THREE overnight polysomnographies and NEVER had sleep apnea (except once they said I had some mild apnea if I was on my back - it seems to me that I have pretty bad apnea if I am on my back.....). I also don't meet the warning signs for apnea - I don't have a thick neck, a thick jaw, and I am not overweight. Related to this: I have been looking into treating to learn rhythmic breathing to relax, and I find it really hard. I get tired, I can't find a groove, my throat tightens up. Anyway, I can't put all of this together - you know it is not considered pathological apnea if you wake up a couple times a night due to not breathing well. For example, a person might roll on their face and start to suffocate, then roll over again, all without waking up. It's not a big deal normally. But maybe people with POTS have an overreactive sympathetic nervous system response - so that even one or two mild events per night leads to disrupted sleep and feeling sick the next day? If that were right, then the problem would not really be the APNEA, but the CNS overreacting to the apnea. I don't know how to treat that either though..... Any thoughts would be appreciated.
  14. I think it's interesting that many of you report change itself triggers symptoms! I am fairly confident that I experience 'better than well' episodes when barometric pressure rises. I have noticed that when the clouds come out after a rainy day, I really snap out of the brain fog.
  15. I've seen other people on this forum acknowledge what I've long experienced in my own life - conditions are worse when barometric pressure is low. I've been wondering though, whether the problem is LOW pressure or downward variation in air pressure. It could just be that we feel worse when air pressure drops and better when it comes back up. But, I've noticed that I also, initially, feel better when it goes higher than it has been. This occurred on a recent flight to Florida. I passed out on the plane from dizziness. Then we landed and I felt SO ALIVE! But the feeling did not last. I don't know if it was because I landed in Florida on a particularly high pressure day and then it came back down, or if I just adapted to Florida's baseline barometric average. I've been wondering if I'd do better near the ocean - I used to live in LA and I feel like my symptoms were much milder than they've been in St. Louis. Again, was this because the average barometric pressure is higher in LA, or because there is less variation in barometric pressure in LA? Has anyone thought about this or found research on it? I wonder, for example, if I moved to some mountainous region with stable weather condition - would I feel worse indefinitely, or would I adapt (perhaps slowly) to the low pressure on the mountain? I found a list of cities in the U.S. by barometric pressure variability, not sure if this helps: https://www.securevideo.com/blog/2014/09/23/u-s-cities-barometric-pressure-variation-full-list
  16. Yeah. I find symptoms worsen in the heat of the summer and the extreme cold of the winter. I think Katybug is right about the low pressure systems - these cold fronts that come down from up North are trouble. I also think the dry air makes things worse - it dehydrates me and makes it harder for me to breath at night which compromises sleep. Use a humidifier.
  17. Hi, I had a significant improvement in symptoms once while meeting with a doctor. I attributed it to the excitement of finally getting medical access and meeting someone who would talk to me and take me seriously - I think adrenalin is a vasoconstrictor and that temporarily improved my venous return. This can be very frustrating! I also have my symptoms improve when I'm sick - a fever reduces my brain fog.
  18. Hello, Has anyone tried intranasal insulin for brain fog? I am trying it now - I just went to the pharmacy (Walmart only) and bought Novolin-R. Then I put it in a spray bottle. Here is an article saying it improves blood flow to the brain: https://www.ncbi.nlm.nih.gov/pubmed/23907764 I am not recommending this! I just started trying it now!
  19. Sorry to miss this. Yes, I am fine. Thank you!
  20. Hi Katcanny, Well, I am a Ph.D. student. I often take 'soft' days off - which means, I have days where I just don't really get much done. I really hate it though. I hate how hard it is for me to be consistently productive. I almost never have a day where I can't leave the house. I do get a lot of nausea, fatigue, dizziness. But, it has been better the past few years. It definitely comes and goes in intensity.
  21. Yes. And I have had periods in my life where my legs were weaker. Also, right now, they hurt like crazy! I am lying on my back at the library with my feet on a chair and my back on the floor because I did single-leg squats yesterday and they hurt so much. Did you, perhaps, exercise recently? (like in the past few days)? Even if not, don't get too down about leg weakness - it may come and go over time.
  22. wonderful! Gosh, wouldn't it be great if we could beam the light energy to the hypothalamus, thalamus and brain stem? I just don't think anything can reach that far, unfortunately. But if it could it would be great to see if we could enhance autonomic function that way.
  23. That's great! I'm glad to hear it. Are you experiencing sleep benefits? (that is, as I understand it, what the vielight is marketed for) And, how far up the nostril does the vielight go? You may notice that the nostril space is pretty open, but then that space narrows considerably into the sinus passages. Does the light go up into the sinus passages? I've rigged up my own system which consists of a red bulb that produces light ~630-650 nm, at 60 mw/cm^2, I put a kitchen funnel over it (so the bottom of the funnel faces outwards) and then push the funnel up against my nostril, so the bottom of the funnel is just matching the nostril opening. But then I wonder - should I angle the funnel more 70-85 degrees from the floor (if I were standing up with my head level), so that the light shines up into my sinus passage, or, more of a 35-45 degree angle to the floor so that the beam is angled as if tio pass right over the roof of my mouth?
  24. If anyone has ever tried intranasal light therapy, let us know. I found some new stuff about shining light up the nose to improve autonomic function. "Furthermore the light source in intranasal light therapy is located closer to the all-important mid-brain area where much of the autonomic functions lie, with little barrier in between the light source and the target." " When compared to alternative methods of irradiating the brain from the outside of the cranium, the intranasal method has a distinct advantage: the concave shape of the underside of the brain envelopes the convex shape of the light beam coming off a single light source in the nasal cavity. The diencephalon (in the mid-brain area) is the seat of some of the most essential autonomic and survival functions, and holds some keys to the physical well-being of the person. This is a hard-to-reach region for light to access from outside the skull but is more easily reached from the nasal cavity, especially with longer wavelengths (that are closer to the infrared red spectrum). The hypothalamus located in this area, is the control center for many autoregulatory functions." http://beta.asoundstrategy.com/sitemaster/userUploads/site502/Brain stimulation potential with intranasal light therapy.pdf I am really into shining light into my brain right now. But... I'm not sure I buy this. It seems (to me) that the autonomic regions - the diencephalaon - is too far away from the nasal cavities for this to work. I've been looking into it and I don't think light can get more than a few centimeters into the brain. I can see how light might get to the underside of the frontal lobes, but it seems like a stretch to get to the hypothalamus. There's like 2 inches in the average adult between the sinus cavity and the hypothalamus. But, i don't know.
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