karakal

The weather just got to me too in the last few days - all winter I thought that at last my pots symptoms are under control, but this heat wave just push me completely of balance. I don't know what to do with the summer coming up - maybe just being at home with air condition and ice packs.

Thanks for the help and advice. I do hope to find an answer as soon as possible. If anyone comes up with any other suggestions - I will be grateful.

I just got a diagnose of myofascial pain syndrome in addition to POTS , but after seeing a PT it seems like the diagnose doesn't cover all of the symptoms - mainly because of spasticity. I was wonder if anyone here suffer from muscle weakness in the legs [i walk with crutches], pain - mostly at the calf, difficulty keeping the body and neck upright, numbness of the feet and stiffness. All in addition to POTS. It doesn't seem to be Chiari, Myasthenia gravis or Lupus. I had a brain MRI 10 months ago and there was no evidence of MS and my EMG came normal. If you have experience anything like that - I will be very thankful to hear what it might be - In the mean time it becomes harder for me to walk and do daily activities. It seems like the doctors that I see getting a very hard time to separate which symptoms are POTS related and which are something else.

I?m in the process of making an appointment to the chiari institute in long island. My dr. refers me there less than 2 weeks ago. My muscles are very weak and I use crutches. I have been told by this cardiologist that he know a case of someone that had pots and chiari ? and after the surgery all the symptoms have been solved ? both the chiari and the pots. What are your symptoms?

It seems to be a connection between chiari and pots. I just been refer to the chiari institute and I don't even know how to react to the option of chiari. I really hope that everything will be solved on the right side and that you feel better.

Mine started with a virus when I was 12 years old. But I got diagnosed when I was 23 years old.

My vision comes and go ? sometimes I can see clearly and sometimes my vision get out of vision and back for a period of time of a minute or so. It happens at least once a day if not more and I also have some lost of my peripheral vision. I just seen a neuropthamologist and I hope that I will know what is going on soon. It seems to me like there is a connection between vision problems and pots ? whet ever is the vision problem.

My stomach is very sensitive and reacts every time I'm over working or doing too much activity ? I have pots for over 15 years and my stomach issues started when I got pots.

Yesterday I started walking with a cane. My muscles are to tight probably due to the side effect of pyridostigmine ? that I have to admit - does help me with my pots symptoms , but I can barley Carrey my weight on one of my legs. The dr. prescribes me quinine to help control this side effect - but no good. I'm so tired of trying a new dr. every time one of them give up ? and it look like another one is about to do the same [ He told me that pyridostigmine is his last option] and that?s why I'm suffering for 3 months muscular pain that get worse by the day. Any suggestions?

Thanks for the care. For the first time I feel like I have some kind of support from people who understand what I'm going through. I still don't feel good. I made an appointment to my dr. with the hope that he will be able to help. I still have pain in my chest and I'm out of breath after few steps, and of course morning became nightmare again - I feel like I wake up from running a marathon every morning. Any way - again - your support mean a lot to me. Thank you all.

I just wanted to share. Last Friday I worked too hard in the yard - and don't forget the heat - and I had an episode of the kind that I had succeeded to avoid in a while. My eyes rolled back, I had barely any control over my body and it was very hard to breathe. It seems that it is still effecting me - I have a hard time at work and I still have pressure in my chest and of course I'm very tired. Didn't go to a dr. - I don't know what can they do to help - I'm on B Blockers. Any thoughts?