jbrian00

I sometimes get awakened in the middle of the night with a forceful pounding heartbeat and shortness of breath and think it's because my heart rate dipped a little too low and my body was compensating for that. I caught it a couple times below 48bpm. I sleep with my head elevated which I think helps some. Perhaps you may want to consider that if it happens a lot or find out what your heart rate is doing.

James

Yes I get these wierd feelings in my head. Very hard to describe. Not really a pain but just a feeling like I'm slightly drunk all the time or living in a dream world. Also get some issues with my eyes focusing too. It's almost like a migraine with little pain (if that makes any sense). For me my symptoms are worse at night. I will notice a slowing of my heart at night as well, so I wonder if there's any correlation. It's like my heart goes into "slow mode".

I will also feel much worse in my head when I have an adrenaline surge which will stay with me for the rest of the day. But yeah I get all kinds of wierd head feelings so you are definitely not alone. Nothing has determined that I have a hypoglycemic problem like someone mentioned above, although I don't know if you have to have a blood test specifically for that or if it would show up on a standard blood test. Cymbalta helped me for a while with this but lately has gotten worse.

Hopefully you'll figure out something that helps and let us all know.

Best of luck,

James

computer monitors can lead to eyestrain because of the distance your eyes have to focus at, and the nature of the pixelated images on the screen. Google computer vision syndrome to find out the details. Computer glasses can help with this. Other than that the blue light waves emitted from a computer screen or tv can strain the eyes. On top of that, it could be you are sensitive to the EMF (electromagnetic frequency) radiation given off my the monitor.

My hr rate is higher during the day but around nighttime it gets much lower, sometimes too low for comfort, especially when lying in bed. I talked to my PCP, who recently put me on Toprol XL, about my heart rate going so low during the night that I'll wake up with a pounding heart, and when I check my hr it will be 49bpm (at the time I check...probably lower to trigger the pounding). My doc said not to worry that his hr goes down to 43 while sleeping. But I don't see how I shouldn't worry if I'm being woken up with these pounding beats.

James

what were your heart rates?

My hearts rates were about 120 sitting and 150 standing during my episode. I had my heart tested back in 2005 and it showed the same t-wave inversions. I had tachycardia then too, which they called a panic attack. I remember back in high school (I'm 25 years old now), my ekgs for my physical came back abnormal and saw a cardiologist who performed a stress test and confirmed everything was ok. And that was years before my POTS symptoms started. So I hope they are just "normal for me". A cardiologist here is finally having me wear a 48 hour holter and had an echo yesterday. So hopefully everything will check back ok again.

By the way after my episode I started toprol (12.5mg in the morning), and haven't had a tachy surge like that since. So I'm feeling a little better which it. My PCP said 12.5mg probably wouldn't do any good, but what does he know lol? Seems to be making a difference.

James

Propranolol is a non-selective beta blocker, which means it targets Beta-1 receptors in the heart, as well as Beta-2 receptors in the lungs. The blocking of Beta-2 receptors in the lungs can create shortness of breath and asthma problems worse. There are selective beta-blockers which primarily target Beta-1 receptors located in the heart, and might work better if you has asthma for breathing problems. One such is metoprolol (aka Toprol) that many here take to help control heart rate caused by adrenaline surges. I would ask your doctor about selective vs non-selective beta blockers to determine which one might work best for you.

James

I felt so bad yesterday with high heart rate and couldn't settle down, developed a headache and hands started tingling...so I ended up going to the ER. They mentioned I had a slight abnormality on my ekg. Apparently 4 out of every 10 t-waves were inverted. Also the first blood sample they drew was borderline high on some enzyme test (possibly to test for heart attack?), so they drew again and second test came back normal.

Just wondering if anyone else has had slighly abnormal ekgs? I'm 25 years male!

Thanks,

James

Hello,

I posted a while back about trying to go off of Cymbalta and then getting extreme adrenaline rushes. Well I went back on 30mg Cymbalta and Clonazepam. Several months ago before I went off meds I was doing pretty good on just Cymbalta 30mg. So since I was still having neuro symptoms and headaches, I decided to try tapering clonazepam in hopes that I will get back to the state I was in earlier this year. When I started Cymbalta back up, I noticed an instant improvement in heart rate and didn't get those adrenaline surges any more. However, last thursday I seemed to have taken a turn for the worse. My heart rate was ok before then, but on Thursday it started shooting into high gear and it doesn't appear to be settling down. I'm still on clonazepam but at a lower dose. This started almost 2 weeks after tapering only a pittance of clonazepam.

So I don't know if the clonazepam tapering has caught up and that's causing a flare up or if Cymbalta is no longer helping me like it did earlier this year. Has that ever happened to anyone? I haven't been on it for very long. I'm tempted to go back to my starting dose of clonazepam and pray for relief. My doc gave me an rx for 50mg Toprol (metroprolol) in case this happened but I'm kinda afraid to take it at that dose. I want to start really low and work up if I try a bb.

So I don't know if I should try my bb at like a 1/4 of the 50mg tablet or if I should try a different SSRI or what? Is anybody on metroprolol that can offer me a good low starting value and if that is helpful for adrenaline surges?

Thanks so much I'm really worried here.

James

I don't take a beta blocker anymore...in fact only took one about 3 years ago and caused incredible fatigue. I do have a bb rx on standby from my PCP in case I need one.

From my understanding, manaomine is the enzyme that breaks down serotonin. I have read in POTS that the Norepinephrine transporter protein deficiency could be a culprit. In that case I beleive an SNRI is beneficial cause it basically overrides the NET protein. But in short, I don't have a clue as to what is happening with me. I'm not sure there's any way to know. All I know is that I don't have the heart surges when I'm on Cymbalta, and I do when I'm not.

I hope you find something that works to calm you down.

James

valsalva maneuvers/coughing/sneezing sends my heart rate higher, but since I've only had to blow my nose like once in the past year or so, I can't attest to this happening while blowing nose.

I have had these tachy episodes myself...fast heart rate, uncontrollable shaking, shortness of breath, lightheadedness...the works. They first happened when I tried to go off of the antidepressant I was on, Cymbalta. While the first attack happened when I was on the treadmill (and scared me so much to call 911 and end up in the ER), it then started happening even just sitting still on the couch relaxing (or trying to, at least). My heart rate hasn't quite gone up to 200+ (thank god)...it maxed out at around 160bpm. Of course I was anxious the first couple times (which didn't help matters), but found out that the surges only last approximately 30 minutes or so, so I learned to let my heart run it's course, and know that it will settle down after a while.

I had to go back on Cymbalta because of this and some neurological symptoms. I was at the point where I knew if I moved at all, just to even get up and stand up, my heart would race, so I just sat on the couch most the day afraid to move. Going back on Cymbalta has really helped out with these heart surges...I don't get them much anymore, thankfully. So may I ask have you tried an SSRI/SNRI? The difference was like day and night going off Cymbalta, making my symptoms so much worse, and going back on made a huge difference too, so evidently it is helping me cope.

Hope you find relief with something,

James

I've felt my heart beating in my throat during my really bad tachy surges. How high does your heart rate get when it happens?

You say this chest pain is occurring in the middle of the night...do you know what your heart rate is doing at the time? Sometimes I'll have some chest pain in relation to a low heart rate (below 60bpm for me) if I'm lying down. I have come up with 2 tricks to try and avoid this chest pain:

1. Get up out of bed really slowly. I first prop the upper half of my body up by my elbows for about 30 secs...this seems to get your body into thinking you're about ready to get up, so you don't suddenly shock your body by jumping right up too quickly. Then I sit up on my bed for about a min, and by then I can usually get up with no problem. I do the same thing getting into bed...I prop myself up on my shoulders or pillows for about a min then I lay myself down. If I simply lay down right away, my heart will feel wierd as if it hasn't caught up to the fact I'm lying down, and will become confused.

2. I also sleep with the upper half of my body propped up on 3 pillows. Lying down flat seems to trigger chest pain for me, particularly with a low heart rate. Propping up or raising the head of the bed appears to help.

Hope you find something to help with these attacks, cause I know chest pain can be a *****. Also, there are some supplements you could try out if you feel comfortable with it. Omega 3 fish oil might help along with the herb hawthorne. I'd first try the fish oil though before trying hawthorne. It's always best to ask your doc, but I've found the typical doc knows nothing about natural supplements/herbs.

Just wondering, are you on any meds right now?

I was initially placed on 8mg of Klonopin (2mg 4x a day...yeah a crapload ) because my initial crash was a panic attack and my psych was treating me for panic disorder. Not long after that dose I started titrating down cause I read the meds could be addicting and they were only intended for about a month of use until my cymbalta kicked in. Anyway, it took me a good 6 months or so to taper down to nothing, and I didn't notice any bad withdrawal symptoms.

Multiple docs have explained that the meds should NOT be used for long term (i.e. years) cause your body does build a tolerance and you're forced to take more and more. Also, my advice (and I've come of klonopin twice already) is to take it slow and make yourself a withdrawal schedule. I used http://www.benzo.org.uk/manual/bzsched.htm#s5 as a guide for developing my taper schedule. I know they have you substituting Ativan, but I did not do that. They have some helpful tips for anyway trying to come off of benzos or antidepressants. Get yourself a pill cutter and I've found that the lowest decrease possible to cut, given the size of the Klonopin tablets, is about 1/8 of a tablet. If you'd like help designing a schedule I could email you the excel schedule I made up that I will use for tapering klonopin my third time.

FYI I believe docs in general have you taper meds a bit too quickly. Most aren't even aware of discontinuation syndrome. I did have severe symptoms upon cessation of Cymbalta, but didn't know if it was POTS or withdrawal. I've been so medicated I don't know what POTS symptoms are without meds. If what I was experiencing was POTS, I was pretty much disabled.

Hope this helps,

James

very interesting about the Cymbalta contraindictions. I don't think I have any glaucoma or anything. But I've noticed this prior to being put on any meds and before I became symptomatic, so it could just be something I was born with or developed early on for whatever reason. I've been having eyestrain and fatigue and red eyes while working on computers (after all I'm a computer science major), so I finally realized I am hypersensitive to glare also.

By the way I don't know about driving with regular sunglasses. That could be dangerous. There are glasses out there that filter UV, blue light, and all of that that also reduce glare without dark coatings. Mine have an amber tint and are meant for indoor use and driving under low-light conditions.

Thanks,

James

I'm on Cymbalta and klonopin. But I think I've had this problem most of my life and haven't realized it, or didn't pay attention to it.

Does anyone seem to have pupillary dysfunction where your eyes seem always dilated even in the presence of light when they should be constricted?

If so, how do you deal with it? I always have to use sunglasses when outside in sunlight, and I am testing out "indoor sunglasses" that reduce glare when watching tv and on the computer, etc...

Thanks,

James

How will you know if it doesn't (or does) work?

Where it for a while and note if you have any positive response to your symptoms, like increased energy, less frequent headaches, less anxiety, etc...

Firstly, just to clarify, the waves sent by cell phones are referred to as EMF or an electromagnetic field--these can include radiofrequency magnetic fields, but not all EMF are necessarily are radio waves.To read what the World Health Organization has to say about EMF, click here.

I did a search of the Q-ray on Quackwatch.org, and you can read what they have to say here, in their review of the Q-Ray's product. Quackwatch also has an article on EMF, if you want to read it.

Nina

The q-link has nothing to do with the Q-ray by the way (2 different companies). The q-ray is evidently an ionized bracelet and functions differently than the q-link. There are a bunch of research studies and clinical trials performed on the q-link that do show the q-link has some helpful biological functioning. It is natural to be skeptical about a device like this, but the company has shown proven results through double-blind studies that can be found on their site. And if it doesn't work, I'll just simply send it back within 90 days.

On issues like this there is always gonna be some controversy. There have been many studies proving that cellular phone usage makes changes in the brain, confirmed through eeg images. Yet the authorities may claim they are safe. There are instruments that can measure the electrical fields surrounding electronics. I guess you just have to base things on your research and gut feeling. Better to be safe than sorry...that's my motto. Anyway, looks like I'm gonna be the guineau pig here, but everyone is different so the effects will be different for everyone.

One final note is that the q-link does more than protect from EMFs. It is designed to reduce any type of stress placed on the body.

Here is one article I came across but didn't have time to research it in depth. All I know is that the q-link is supposed to balance your body systems, including your nervous system:

http://www.totalhealthlife.com/wordpress/2...e-of-the-day-2/

I stumbled upon it (and a couple other competitor products by searching google for EMF and EMF protection). If you do a search I'm sure you'll find ton's of research on EMFs especially cell-phone related, so there is definately a lot of research in this area.

To tell you how it works, I'm gonna quote a website that explains it the most clearly (http://www.healthjewelryplus.com/catalog/a...p?articles_id=4):

During the course of each day we will all be exposed to high levels of electromagnetic fields which can gravely damage our bodies, minds and health. This is an unpleasant thought for anyone, but most people do not appreciate quite how serious this problem is. There is no way to prevent the creation of these fields since they emanate from any and all electric and electronic appliances as well as being produced by power lines and household power outlets. The fields are created by the direct current of the electricity that powers most of our lives. There is a natural biorhythm (also called a bio-field) that governs our lives and it stems from the current of the earth itself, helping us to keep our body functioning properly. However the synthetic fields that are created by direct current electricity create a disturbance in this biorhythm and this will negate any benefits that the body gets from the earth. The disturbances can do more than more than just negation of benefits; they can also produce adverse effects throughout the body and negatively affect the state of your health. While there may be no way to stop the creation of the electromagnetic fields, you can prevent your body from being adversely affected by the fields by wearing EMF jewelry.

This jewelry provides you with a shield against the effects of the radiation. Wearing one or more of the items will help to cancel out negative effects of the fields and also help to provide your body with benefits by helping to augment and regulate the bio-fields within your body. We have been exposed to these fields for so long that the cancellation of the negative effects that you receive will seem like your body is increasing in health as opposed to returning to its naturally healthy state.

There are many different pieces of jewelry that can be worn, including necklaces, bracelets and earrings. Wearing one of these pieces of EMF jewelry can help to detoxify your body by eliminating toxins that have accumulated as a result of your exposure to the fields. These items can achieve this by using resonation to alter the harmful fields into fields that are in harmony with your body's bio-field.

Different pieces of the jewelry can produce different effects, since some of the items of jewelry are created to perform additional functions in addition to the protection against the harmful electromagnetic fields. Some of these pieces help to balance your chakras, in accordance with certain eastern health philosophies. Other pieces help to provide you with specific emotional, mental or physical benefits. All of the benefits and protection that you receive are effective as a personal measure and only the person wearing the piece of jewelry will gain them. These pieces of jewelry will also help to augment the beneficial effects that you receive when using a general coverage EMF protection device.

Hi I was wondering if anyone has tried a q-link pendant or equivalent type of product. I was doing some research into the effects of electromagnetic fields that come from cell-phones, computers, any electronic appliance, etc on the body. Cell-phones in particular have gotten a lot of press because they send harmful radio waves to the brain, affecting the nervous system. In fact, any electronic appliance can have this same effect to some degree.

My research has stumbled me upon devices that emit resonating frequencies to help cancel out these harmful frequencies so they do not stress the body/nervous system. The way they work are complex, but they are supposed to help the body cope with stress in general, even that caused by EMF (electromagnetic field) exposure. Effects supposedly felt are increased energy, reduced headaches, anxiety and feeling of well-being in general.

I actually just ordered one of these to give it a try. They are expensive but come with a 90 day money-back guarantee. The company website is www.clarus.com.

James

There are quite a few herbs aside from ginger that are supposed to help with nausea. Peppermint and goldenseal come to mind, but give ginger tea or capules a try first.

My episodes come on quickly and take anywhere from several hours to 2 days to be back to normal. My episodes include:

-flushed feeling in my face

-arms and hands go numb

-excessive sweating

-pounding chest

-nausea

-stomach pain

-severe headache

-confusion

-inability to talk

-uncontrollable shaking

-bp drops drastically

-hr rises

-trouble swallowing

In between episodes, I have fluttering or pounding in my chest several times a day. I am also prone to migraines and extreme fatigue. I have a constant feeling of being hot no matter what the temperature.

What you are doing sounds like a POTS episode to me. Just remember that everyone may have slightly different symptoms and may react to an episode differently. I have the added problem of loss of bowel control and I haven't heard many others have that happen. My POTS doctor explained to me that your body reacts in whatever way it needs to in order to protect itself.

You hit most of my symptoms right on the button, except my bp rises and I don't normally get nauseated. I noticed these almost daily when off of cymbalta. It has so helped with most of the symptoms, except these wierd headaches I've been having.