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About dmaejean

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    Advanced Member
  • Birthday 09/28/1949

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    Ocean Springs, Mississippi
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    I don't know where to put my conditions so I am putting them here. I developed POTS after a simple lap chole in March 2005 and recently developed CFS. GERD and IBS since 1992<br /><br /><br /><br /><br />quilting, but I have a difficult time sitting at the sewing machine, cross-stitching and playing with my grandchildren.

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  1. Hi Maggie, I was diagnosed in 2005, at 55.
  2. Hi, I always stand with my legs crossed and when I have to sit in a chair for any length of time, I have my legs crossed and feet in the chair with me. That's the only way I can think, and then sometimes I still don't think very well. But it helps my sx. Donna
  3. I am so frustrated!!! I have moved three hours from the cardio that diagnosed me with POTS and I am looking for a local dr. I have been seeing a cardiologist that asks me how I want to be treated. Do you want to take Zoloft? If so, what strength? Do you want to go up on BB? I thought, I'm paying you to tell me what I need. So I decided to try another one, get a second opinion. I had an appointment this am. The nurse did orthostatic bp's. She could hear the one lying down but when I sat up and stood up, my bp was so faint that she couldn't hear it. (it was dropping, HELLO) She kept trying and
  4. Lisa, 88/50 is not good for an average bp. Call your dr. tomarrow so they can adjust your meds. It usually gets lower while sleeping and you don't want that to happen. Donna
  5. What an interesting discussion. My doctor wanted to see my bp after standing for 10 minutes. She told me if I have to hold on to something or move my legs, stand for 10 minutes and then take my bp. I held on to a shelf and by 10 minutes I felt like all the energy left my head and I had to throw up. My bp was 61/41 and it took me two days to recover. For the most part, I can stand less than 5 minutes, but I get symptoms right away, as soon as I stand still.
  6. Hi Maxine, I was denied three times and waiting for a hearing. They told me that it would take a year or more. I was an emergency room nurse when I crashed and can relate to all of your frustration. My sister, who is a nurse practitiioner was my caregiver the first year and she wrote a letter. I also wrote all of my senators and congressmen (I live in MS) and the president of the US, and in less than three months, I was approved. I would be glad to send you a copy of the letters that I wrote is you pm me. Good luck to you. Donna
  7. Hi all, What an interesting discussion. I never heard of tall and thin potsy. I am 5' 10" and was lanky as a teenager and young adult. I am 57 now and weigh around 185. Maybe the blood takes longer to get to our heads then someone shorter. I have always joked about that but it is a possibility. Since POTS, though, I am incredibly pale. Does anyone else have this symptom. I love this forum. Thanks, Donna
  8. Hi All, Isn't it funny how we are all different. I with Dizzy, do better in the winter. I live with my daughter and she keeps the heater on for the kids and I have my bedroom window open and sleep in front of it. I can't breath when it gets too hot. The cold air is wonderful. I did read where alot of us have a harder time in cold weather. Donna
  9. Hey Willows, What do you mean 'at my age'. I'm right there with you girl. I am also crafty. I made my grandbaby a wicked witch of the west costume this year which turned out too pretty to be a witch. Anyway I am 57 and I make and collect raggedy ann dolls and make quilts. I am trying to get a little bit of a business going, but so far don't have enough energy to. I think loving all of the kid stuff keeps us going. Your pics are great! and God bless you for doing so much work for the little ones!! Donna
  10. Hi Emily, I have not been able to sleep since I got sick. It is so frustrating, and I also have tried almost everything available. None of it works, although my insurance will pay for Ambien, it doesn't work for me. My EP told me that the reason why we can't sleep is that our adrenaline has to work so hard all day just to keep us going that when it is time for us to go to sleep, it can't just shut off. That made alot of sense to me. The only thing that works for me is .5 mg of Xanax, and that doesn't work all of the time. I'm not sure of the website, but have you seen Montel Williams adverti
  11. My ep doc said that as with me, alot of pts with pots can also get cfs. I started having sx of cfs about one year after the pots started. Donna
  12. Hey, I think noise bothers me more when I'm not in control of it. Like you said, home noise, music in the car or the kids noise doesn't bother me but someone elses tv or noise in a restaurant or store drives me crazy. I also have a big problem with too much light. I think it has alot to do with pots. I also have CFS, so maybe it is a little of both. You all are always such a big help to me. Thanks, Donna
  13. Hi y'all, Sinus bradycardia is slow heart rate origionating fromthe sinus node which is in the top chamber of the heart. That is where it is supposed to come from,only yours is probably lower than 60 bpm. Normal sinus rhythm, which is only a technical term for normal heart rate is between 60 and 100. Anything lower than 60 is brady and higher than 100 is tachy. Sinus tachycardia which most of us have is a fast heart rate origionating in the sinus node in the atrium, the upper right chamber of the heart which means it is normal except fast. When I had a stress test, my heart rate went over 170
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