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About turtlefairy5

  • Rank
    Advanced Member
  • Birthday 08/31/1979

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  • Location
    North Carolina
  • Interests
    reading, writing poetry and fiction, mental health issues

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  1. Why wait too weeks? It sounds like you're at your ropes' end. I'd say go ahead and give your specialist a call ASAP. You deserve some help.
  2. As a matter of fact!... One of the last times I ended up in the ER, the doc found my thyroid levels were off and referred me to an endocrinologist. By the time I saw the endocrinologist, my thyroid levels were "fine," but my DHEA levels were off. I haven't made my appt. to follow up yet, but I plan on it because I'm hoping to find an answer to the embarrassing amount of facial hair I have. Both the endocrinologist I saw and the cardiologist noticed and remarked on my "hirsutism." I know that's just comestic, but if something's off, it could be contributing to other symptoms. My regular doc ch
  3. Yes! They did tell me to do to countermanuevers! And I kept absent-mindedly wiggling my fingers because my hands kept going numb. And I kept clinching my rear-end because my legs were shaking. I told the nurses that I was doing it, that I would try not to, then find myself doing it again just as a response to my knees and legs trembling, and they kind of laughed, and one said "Whatever works!" And I kept talking to the nurses because I felt so awkward. My heart rate was all over the place - way, way up, then closer to 100, even dipping to upper 80's, then way, way up again, back and forth. I t
  4. I talked to the cardiologist's assistant today over the phone, and I tried to get him to clarify for me what they were thinking so far as my diagnosis based on my response to the tilt table test. He said that he couldn't really specify; he said "some POTS," but that my heart rate went back down "signigicantly," the "but" implying that, for POTS, it would have to stay way, way up the whole time. He brought up my anxiety/nervous responses during the test again, and used "Inappropriate Sinus Tachycardia" to describe/diagnose those reactions. My question: - Do ya'll STAY tachy upon standing? For h
  5. When I had the TTT, a nurse said, "You need some pork fat." I think people with POTS tend to be thin, some see the correlation, and form a false if/then. I was overweight when I developed POTS symptoms.
  6. Ohhhh my goodness, explosive burps! Yes. I could knock windows out, shatter glass. I have GERD (acid reflux), and I assumed it was related to that. But it's related to POTS? Then again, gastro issues are related to POTS, so maybe it isn't necessarily related to POTS directly but to the gastro issues by way of POTS, by way of messed up autonomic systems. But anyway, yes. Burps. In fact, I'm having an endoscopy/colonoscopy Thursday due to gastric issues. My gastroenterologist threw IBS, Crohn's and Celiac out there as possibilities.
  7. My most recent flare of symptoms was induced by a virus of some kind. I'll just second everything Rachel just posted - make sure you are drinking lots of fluids, eating well, and back off your exhertion level. I tried to "push through" my illness, and ended up making things a lot worse. Lay down, and stay layed down, until you feel better. Don't let obligations or should-do's get you worse off. See if you can get friends, family to help, and cancel participating in anything that isn't absolutely necessary.
  8. That's exactly what happened to me except they kept me upright and told me to breathe and bare down like trying to have a bowel movement.
  9. Thank you! Hopefully, this will get straightened out in a way that I can feel confidant in the doctor. It was a nurse who said it was negative, and she may not have realized they were looking for POTS, but for me to faint or something. In any case, I can always take the results/readings of the test to another doctor for a second opinion, because this one is 5 hours away anyway! I have a feeling I'm freaking out about what the nurse and the physician's assistant said, and hopefully the cardiologist will clarify. I just don't see how there could be any doubt about POTS.
  10. I absolutely have this issue, and it makes me so self-conscious socially. Very few people are informed about this, or understanding. Most of the world seems to value loud, value excitement, value extreme over peace and calm. I've had to leave theaters, dinners, and other social gatherings. I've realized that it's important to find the few who are understanding and compassionate, and distance myself from the others. It's too much stress to pressure myself to be "normal" when I'm not. I was in a relationship with someone who didn't have understanding or compassion when I first was becoming symp
  11. Thank you so much for that information! That makes a lot of sense, and helps a lot. And thank you for encouraging me to get my doctor to clarify things!
  12. Hey everyone, I joined this forum years ago, but have been absent for a long while. I was diagnosed with POTS by a cardiologist back in 2008, based on my response to "orthostatics." A nurse measured the differences in my bp/pulse upon laying, sitting and standing. I was prescribed Metropolol Succinate ER, 25 mg daily. Eventually, my life improved after the anxiety I had developed over my symptoms abated with the help of the medication. I got a part time job to supplement my disability, and was living independently. Last year, I got the bright idea to stop my medication because I was frustrate
  13. Here's another hairy girl! Count me in. I have to rip mine out with wax and go back and pluck the hairs that wouldn't come out with the wax on a every other day to even DAILY basis. It is so embarrassing and annoying. Mine started when I was put on some drugs for depression, namely Paxil CR and Risperdal. I stopped having a period and sprouted hair on my chin. My local mental health center psychiatrist responded, "Do you have to have a period?" when I questioned her about it. I also gained a LOT of weight. She put me on a diet program. Of course, now I know that those levels of drugs,
  14. I have this same thing. Just mentioned it to a friend a work today, actually. It comes and goes with intensity. Past few days has been bad, along wiht my mood. Wonder if it is partly hormones as well. Just the other day, I was walking by a table where a woman was sitting in a wheelchair. Add in my clumsiness. My foot caught the edge of her wheel, and I had a little hiccup in my walking. I sort of tripped. It was barely even noticiable, except I got a huge hot flash and both my armpits tingled. Does anybody else have the prickly, tingly armpit reaction?
  15. Occasionally I get the full-ear feeling, but mine also feels like I have a fluttering in my ear - like a bird is flapping its wings in my ear. I haven't heard anyone else ever mention anything like that.
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