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RichardInAz

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Posts posted by RichardInAz

  1. Age 35 Diagnosed with POTS, SVTs, irregular pulse, and a hypersensative-reaction to adrenaline, tricuspid/mitral regurgitation, hypothyroidism, High DHEA levels, low insulin levels, and cortisol level imbalances

    Currently on Synthroid and Atenolol.

    Symptoms started in 2000 after over-exertion, than flared in 2005 after a virus and stressful event simultaneously

    Tammy, your signature is very much like mine and several others! I'm 33, have POTs, PSVT, very hypersensative reaction to adrenaline: although my catecholamines and metanephrines are LOW normal, my alpha or beta receptors are SUPER SENSITIVE to adrenaline. I can't tollerate beta blockers. I also take levothyroxine for hypothyoidisim. I also have MVP, super high DHEA levels and low cortisol. WHAT THE HECK! I've seen five other people EXACTLY like this. It seems to have something to do with adrenal issues, secondary to taking levothyroixine. Were you taking Snythroid BEFORE this all started back in 2000???

    Richard

    P.S. I am also fair skinned with red hair green eyes - like the other posters. Strange!

  2. Well, on the subject of that stomach fullness feeling... if I push on my stomach the right way when standing, it sends my systolic pressure through the roof. I wind up with a pulse pressure of 75 or more! Then I get symptomatic.

    Does anyone here get a pulse pressure this high? Pulse pressure is the top number minus the bottom number.

    Update.. ok this keeps getting stranger and stranger. I found that if I press on my stomach when I stand up, my BP shoots up to 170/95. If I just stand up and NOT press on my stomach, I only go to about 130/75. I'm 105/60 when sitting. What in the world!?

    Thanks!

  3. Thanks for the replies. I might try cutting the 25mg in half and just take it when I'm symptomatic - to see what happens. I can only keep my hr up if I'm standing so I probably shouldn't take these before I go to bed.

    Quick question: What IS that bloating feeling that some of us get we get when we stand up (below the heart)?? I read somewhere that it is blood pooling up there. My cardiologist said that's unlikely, and that it is more likely blood leaving the stomach/GI area. Does anyone know?

  4. I'll make this as short as possible because I don't have a lot of time to write (btw, thanks to all who responded to my other post!!):

    I have hyperadrenergic POTS. When I stand up from a sitting position, my BP goes up a lot, I get really bad bloating in my stomach (strange feeling) and my heart rate increases 30 - all when I stand up. My symptoms are MUCH, MUCH worse when I'm anxious or under stress (like in a doctor's office) or after exercising, being in the heat, etc.. etc.

    I'm on NO meds for POTS at the moment. My cardiologist wants to start me on 25mg of metoprolol (beta blocker).

    Is this a smart thing?

    I ask this because when I sit back down, just 2 minutes later my BP will often fall to 90/50 and HR down to 55... all without meds. This sort of contradicts beta blockers I thought. He said it would be ok. I just don't know what to think.

    Then I asked him about clonodine but he said that wouldn't help me. Hmm.

    Thanks,

    Richard

  5. Well, this has been my second trip to the ER in the past two days. Each time its in the evening and it happens right after I eat dinner... my heart starts pounding and my blood pressure shoots up to 200/100 or more (from my average of 110/70).

    I've been keeping a log of blood pressure and glucose for the past two days. I was doing excellent all day.. eating small meals, just relaxing and no exercising. My HR has been very stable at 105/65 or so all day.

    Then in the evening I ate a large meal. 10 minutes later I felt HORRIBLE! Sweating hands, numbness, dizziness.. I checked my blood sugar and it was all the way down to 60!! AFTER I ATE! My bp increased to 210/110 and I had a headache.

    So we packed up and went to the ER again. It took three hours but I went back to normal with no meds. My glucose returned to 100 and my bp went back down to about 120/75. They said I might have reactive hypoglycemia.

    Anyone heard of this? Does it go along with POTS?

    Well, aside from the hypoglycemia, I also wonder if anyone here with POTS gets this sick with high BP just after eating a large meal?

    Thanks!

  6. 1. high blood pressure upon standing (200/100 sometimes, but I always go up 20 or 30 mmHg when standing).

    2. Tachycardia when standing (go from 65 to 120 often)

    3. Adrenaline rushes

    4. A strange fullness feeling above my stomach but below my heart.

    5. Severe brain fog that comes and goes every few weeks

    The thing that put me out of comission was the high blood pressure and fullness in my stomach upon standing. I guess that is blood pooling up there? Whatever it is, that is what made me stop exercising a year ago. It can even cause me to have PACs and PVCs.

  7. O-M-G!!! YES! I cannot be outside for even *20 seconds* or I will be down for the rest of the day! Breathing in the hot air makes my BP and HR sky rocket and I don?t feel good for hours.

    I see older people running and biking, and I think to myself ?HOW CAN THEY DO THIS??. I used to be able to do this but I can?t survive 20 seconds of standing outside.

    FYI I might have the hyperadrenergic form of POTS (tests pending) and live in Phoenix, AZ. It feels like 666 degrees Fahrenheit during the summer.

  8. Two of my favorite smoothies I make just about every night:

    Orange Peaches:

    In a blender combine:

    4 peaches, skinned and seeds removed*

    4 cups of ice

    2 cups of orange juice

    1/2 or 1 cup orange sherbet

    Blend and enjoy

    *one time I forgot to remove the seed, so I had to call poison control (the seeds can kill 'ya).

    My other favorite is an energy drink that is loaded with fiber, amino acids, protein and antioxidants. Its made with the a?a? fruit that is grown in Brazil (pronounced Ah-Sigh-EE). It is listed as Oprah's #1 food. Brazilians drink this stuff before and after exercising. It sort of tastes like chocolate and cherries and you can order the frozen stuff online for making smoothies.

    Chocolate A?a? Smoothies

    1 bag "Amazon Mania! AcaiRaw" from Whole Foods or 3 cups of AcaiRoots brand A?a? (order online from www.acairoots.com)

    1 cup of ice

    1 or 2 cups 2% milk (depending on the consistency you like)

    About 10 tbs Hershey's chocolate syrup (I just pour a bunch in)

    About 5 tbs pure cane sugar (or sweeten to taste)

    Blend and enjoy. You will be sitting on the ceiling after drinking this.

    Another good A?a? smoothy: Pineapple-Orange A?a? Smoothies

    1 bag "Amazon Mania! AcaiRaw" from Whole Foods or 3 cups of AcaiRoots brand A?a? (order online from www.acairoots.com)

    2 cups of ice

    1 or 2 cups pinapple-orange juice (depending on the consistency you like)

    Blend and enjoy.

  9. Both my wife and I have POTS. I swear! Now how strange is that!?

    Her heart rate goes up 30 or 40 when standing as does mine. I'm a bit worse, and I have hypertension sometimes when standing.

    The only medical conditions my wife and I have are hashimoto's thyroid disease and adrenal fatigue. It freaks doctors out that we both have identical problems.

    We were both exposed to black toxic mold prior to all this.

    Check this out:

    http://forums.realthyroidhelp.com/viewtopi...?f=2&t=7320

    Seems a lot of people who have thyroid disease or adrenal issues are having similar symptoms!

  10. It happened again! I spent the whole night in two different ERs.

    First of all, I was diagnosed with POTS recently. I?m going to see Dr Grubb asap (my appointment is April 2009). My hr is 65 sitting, 120 standing and bp goes from 100/60 sitting to 130/80 standing. This is the case 99% of the time.

    But I have had three occasions now where something else is going on. I?m super sensitive to adrenaline (hyperadregenic pots?).

    This last episode was just like the one I had last month. It started around 10PM last night after dinner. My bp shot up to 200/100 when standing, so I sat down but it wouldn?t go below 180/100. My cardiologist hadn?t found any meds that I could tolerate well, so I was just going to sit down and let it pass.

    20 minutes later, I get ringing in my ears and a headache. Then my automatic panic mode turned on (you know, when you?re not thinking about panicking but you are shaking), then I had both arms go numb and I started getting really hot and sweating under my arms. My pulse was about 160.

    I was feeling terrible sick and wanted to vomit - my bp was up to like 230/115 and I could only crawl to my truck to get to the hospital. While sitting in the truck I was wondering if I should call 911. My wife drove me to the ER.

    I sat in the ER for three hours after being triaged! Then, a very spiteful nurse took me back.. she barely laid eyes on me and said ?ok another anxiety kid? (I?m 32 by the way). I said nothing. She took me back to the room and wouldn?t let my wife come with. She said ?we don?t have a lot of room back here and I don?t think you?ll be here long anyway!?. Ok, so 15 minutes later a spiteful doctor comes in, asks my date of birth, looks me square in the eye and says ?have you ever tried paxil, xanax or anything like that??. I said WHOA DOCTOR, do you know I have POTS? Then she asked me if I smoked marijuana. I had to explain what pots was. Then she leaves.. that entire visit was like 20 seconds. An EKG comes in.. checks out fine. 5 minutes later the quack waddles back in and says ?you?re being discharged, you just have anxiety?. My bp was still 190/100 at this point, she offered no meds and just that last bp reading ? they kicked me out.

    While driving home I called my health insurance RN line. They told me to head straight to another ER or even call 911 (based on what I said). I got to another ER around 3 AM and they wheeled me right in ? EKG, BP, other vitals and got me in a room within 5 minutes. Ok, I?m feeling lucky so far.

    I get to the room and the doc asked a lot of questions ? had bloodwork done, urine test, xray, etc. The doc even called my cardiologist who was on call at 4AM. My cardiologist told him that it would be OK to give me cardazem. Well, I was reluctant to try it because the IV fluids they were giving me were actually making me feel a LOT better! They ran 2 and a half bags into me, and my pulse went back down to 65, bp down to 110/65. Of course by then it was 6am and I was shot from the whole experience. Now I?m home, and I?m going to see my cardiologist on Tuesday. He?s going to call Dr. Grubb to see if there?s anything they can work out over the phone for the time being.

    Have any of you taken cardizem and did it help or make things worse? I?d plan to use it only as needed if that?s an option.

  11. Yup, I have the same thing happen to me. Can't lift anything even remotely heavy. When I first got severe (had POTS for a few years before it became disabling) I had a 6 month old and lifting her up out of her crib, holding her, changing her diaper, etc. was nearly impossible - I was so weak I shook and crawled to get to her crib as needed as was too weak to walk. I also have SVTs but unsure of the kind but my heart does the same thing where I get 250 beats per minute for a short time.. scary! I get so weak also, which you didn't meantion so that might be a little different though. Are you on any type of beta blocker? Take care,

    Tammy

    Tammy,

    I've had to crawl around the house on all fours also - that's a bummer. It must have been really tough to take care of your little one. Yes I get very weak as well. My cardiologist tried me on a beta blocker twice.. both times I had a bad reaction where my heart rate went too low.

    I'm not sure how this is associated to POTS, but my heart rate falls too much when I lay down. When I'm sitting, my heart rate ranges between 65 and 85. When I'm standing, of course it shoots up to 100 to 120. But when I lay down, it often goes down to 48 bpm for a few minutes. Does anyone else get bradycardia after laying down? And another thing.. my heart rate can fluctuate by 20 or 30 just by moving my arm, leg, or changing sitting position. Its so strange.

    I just wanted to make a comment about your tag line:

    "Age 32 Diagnosed with IST, SVTs, irregular pulse, and a hypersensative-reaction to adrenaline, tricuspid/mitral regurgitation, hypothyroidism, High DHEA levels, low insulin levels, and cortisol level imbalances

    Currently on Synthroid and Atenolol."

    Funny cause I also have super sensitivity to adrenaline first of all. Little things make my heart pound like crazy but I can't tollerate beta blockers. Then you mention mitral regurgitation.. I had that with my MVP at one point. I have hashimoto's thyroiditis (hypothyroidism), and I have VERY high DHEA levels (4000% over the top reference range) and so does my wife. AND SHE also has POTS plus high DHEA - and she has hashimoto's! We're both on synthroid after having a bad reaction to Armour (which somehow made my POTS worse). I'm just a bit worse than my wife, but she also goes up about 30 bpm when she stands.

    What in the heck is this.. this POTS business is so darn complex. This ought to be simple to understand - there's some kind of connection here.

    Richard

  12. my mind felt more numb and drugged than anything else

    That's exactly how I felt! A friend just mentioned something about serotonin and how it can affect BP and HR. I wonder if POTS has something to do with serotonin control??

    "Postural orthostatic tachycardia syndrome -- Agarwal et al. 83 ...They will have orthostatic tachycardia as well as associated hypertension. .... It is suggested that the disturbances in central serotonin production and ... "

    I couldn't read the rest of the article because they wanted me to pay $25 to view it!

  13. Wow I didn't realize this was such a problem for everyone else as well.

    Actually this is how I realized I had something wrong last year and finally got diagnosed with POTS this year.

    I have another medical condition that complicates this. I have a type of heart arrhythmia that I get every once in awhile called "PSVT". When I lift heavy objects over my head, this POTS kicks in and I get a few PVCs.. which can cause my PSVT. THEN I have something to worry about! My heart races to 300bpm for a few minutes.

    So, I will just stop lifting things over my head. Like you guys said, if I have to do this silly exercise maybe I can do it lying down. But I'm affraid to even try that for awhile!

    A couple questions if ya'll don't mind:

    The shaking and shivering... is that actually related to POTS? Not really a panic attack? I feel cold all over after this happens and I shake like I'm freezing, but I wasn't panicing. I felt sort of detached from reality for an hour or two.

    Is there a preferred test to check blood volume? I was told the standard tests aren't very accurate.

    Thanks

  14. Tonight I tried doing a small exercise where I lift a small weight over my head. I haven't done that since last year when I came down with POTS.

    Just two lifts of that and I felt very light headed and I thought I was going to faint. My heart was doing some sort of strange flip flops, so I dropped the weight on the ground. Then I felt shaky (I guess a panic attack had started).

    I recovered after a few seconds but I shook like a leaf for an hour (panic!?).

    Anybody else get this with POTS? Can't lift things over your head?

  15. The Mayo clinic in Arizona that someone mentioned would probably be a good option too.

    Thanks Rachel. I just had my last visit with the Scottsdale Mayo clinic yesterday. They were unable to help me yet I paid thousands out of pocket (my insurance doesn't work there). I always heard good stories about the mayo clinic, but I was unimpressed. I'll have another look at the doctor list here on dinet.

    Richard

  16. Hi Richard,

    I wouldn't worry about a pacemaker just yet. I think there are a few on the board here that have a pacemaker, but most don't. I would definitely see an EP - it sounds like this doctor wasn't very well versed in POTS.

    Right. I'm sure pacemakers have their uses and aren't as bad as I have imagined. No offence to anyone here but I will exhaust everything else first (as I'm sure the others here have done).

    The "SVT / heart attack" comment was scary.. but we're all doing fine at 150 bpm here and there. I've been to 300 bpm with my PSVTs before.. although those are nowhere as dangerous as what this doctor was talking about.

    I agree with both you and mkoven.. he didn't know much about POTS. But of course, neither do I. Just found out about this a couple weeks ago. :huh:

    Thanks

  17. The doctor saw me today.

    First the good news.... he had me lay on the table then sit up, then stand. He was listening to my heart with a stethoscope and was counting the beats. I went from 50 lying down to 120 standing up. He even mumbled some kind of obscenity in disbelief.

    I printed that medscape article and he read through the entire visit, and even retained my copy. It seemed like a longer-than-usual visit.

    He said, "you have this syndrome without a doubt!"

    He wants me to see my electro-physiologist but he said likely the only thing they will recommend is a pace maker.

    That's the bad news. A PACE MAKER!?? HOLY @#$!&, I DON'T WANT A PACE MAKER!

    Is that really necessary? He tried to scare me with "you could go into SVT or have a heart attack".

    Is that true!?!? I thought this whole thing was just somewhat benign and sort of self limiting.

    I'd like everyone's advice on this matter. I think I can do fine with 2 litters of water, some salt and leg exercises. I would be very uncomfortable with a pace maker at age 32 if it's not needed. Just seems unnatural and a bit overboard.

  18. Richard ?

    Sorry, posted this response to a different person's question yesterday - talk about brain fog. Anyway . . .

    Sorry to hear you?ve been going thru this. I have most of the same symptoms you describe. I was dx?d with POTS a year and a half ago after I failed a TTT (after having all the tests you mention turn out fine). I was terrified to have this done for the same reasons you mention. One of my docs even said he knew what the results were going to be before they administered the test. Good news was that my HR shot way up right away w/o being injected ? if you can call that good news.

    Unfortunately, the doc who dx?d me with POTS had only ever treated one patient with it and I didn?t feel comfortable with this. I bounced around to a number of docs before getting an appointment with one of the specialists listed on the Physicians List on this site. I usually brought them this article by Blair Grubb who is one of the leading authorities on POTS - http://www.medscape.com/viewarticle/522421_print

    You may want to do a search on MVPS (mitral valve prolapse syndrome). I have MVP too and at first thought it might be MVPS. Actually, my POTS doc thinks this is all connected.

    Hope you find out some answers soon. Hang in there.

    If the doctor will agree, I'll have the TTT but if my heart rate doesn't go up then we'll just call it a loss (cause I sure can't have an injection).

    It is interesting about MVP. I read about MVPS before finding this site. Although, my cardiologist said my MVP was improved over the previous echocardiogram. I read somewhere that MVP is caused from the heart shrinking or being too large and the valve doesn't fit properly. wonder if that is true.

    I will print that POTS article and bring it with me Thursday.

    Thanks!

    Richard

  19. When I had my TTT they didn't even ask if I wanted the injection. They just did it without...so I don't think you have to worry about that.

    You say you want to assume its POTS and not take the test....while that may be true and easier, I think you know how much doctors don't believe you already and if you just assume you have POTS I don't know how much help they will be without a confirmed test.

    But its entirely up to you, thats just my thoughts on the matter.

    Good luck,

    Mary

    Although I never want to see another doctor for the rest of my life, I do understand. Yes, it would be good to have a formal diagnosis. I will ask for a TTT on th 19th.

    Richard

  20. Hi,

    Welcome aboard.

    I don't know why being a male makes a difference in the diagnosis. I have 3 brothers and they all faint and have been diagnosed with POTS + NCS.

    I think you should see a dysautonomia specialist to get in depth testing and at minimum ask for a TTT.

    Thanks for all the replies so far. It is reassuring to hear that some men have this.

    I'm afraid of the TTT :blink: I'm really afraid of having something like adrenaline injected into me. If they want to do that, I'm just not going to have it done. I don't want to describe how it feels to be loaded on adrenaline with a PSVT setting off at 300 beats per minute then getting injected with the max dose adenosine then electric cardioversion. Been there - not fun!!

    After so many tests with ultrasounds, x rays, CT scans, blood tests, urine tests, spinal taps, swallowing radioactive pills, etc. I'd rather assume I have POTS or else who cares. But.. I might do a TTT if they don't require an injection. I just can't tollerate much more testing if you know what I mean.

    I don't know what they would prove on a TTT that I don't already know. When I stand up, I go up at minimum 40 beats per minute (last night I went from 55 to 145) but my blood pressure does not drop! If anything, it goes way up. The problem is, this does not happen all the time. If I have done enough walking and drinking water then it only goes up about 20 or 30.

    Thanks,

    Richard

  21. I'm new here. God Bless anyone who has the time to read through this long post.

    I'm a 32 year-old male 6' 152lb. I used to be in fairly good health and good physical shape up until one year ago when I fell apart.

    In 2002 I came down with a viral illness and the next year I developed a thyroid problem called Hashimoto's thyroiditis with multi-nodular goiter. I started exercising like crazy in 2003 (to lose weight from being hypothyroid), and by March of 2007 I was in the best shape of my life. Then I fell apart.

    Since March of 2007 I've had severe exercise intolerance and debilitating problems.

    I've had extreme fluctuations in blood pressure that have gotten worse recently. I had to go to the mayo ER last month because my BP is normally 96/65 but it shot up to 210/105 and my pulse shot up to 160 for no apparent reason. ER doc said it was a sinus tachycardia and gave me a beta-blocker, then sent me home. It happened twice again and beta- blockers make me feel much worse after they wore off. My BP dives down to 85/45 and then way back up to 190/100. But this doesn?t happen too often. I've been hanging around 110/70 this week without any meds but my heart rate goes crazy when I stand up.

    My heart rate increases by 60 to 80 beats per minute when I stand up (I can go from 60 to 140), then it comes back down to normal after I sit down. Strangely, when I'm standing.. if I maneuver my stomach muscles or breath the wrong way, I can go into either a tachycardia or bradycardia and get dizzy. Its like something below my heart area is quite messed up but no doc has been able to understand.

    When I stand up I feel a rush of adrenaline and my abdomen bloats for a moment. I get very light headed and dizzy, I feel my heart pounding, it slows down, speeds up and seems to go up and down like this. I find myself pushing on my abdomen (where the pancreas is) for relief. People look at me like I?m crazy and the feeling of temporary fullness there is scary. It is that fullness feeling and heart pounding that stops me from exercising.

    All the doctors comment on my aortic pulse in my abdomen. I even had an ultrasound of the aortic root because one doc thought I had an aneurysm but it was normal. They also did a carotid artery ultrasound at the same time, trying to figure out why I have brain fog, but it was also normal.

    Some other problems I have:

    Low testosterone (was treated with HRT but it made me feel MUCH worse).

    MVP with slight regurgitation.

    PSVT, which is a type of tachycardia I get but happens only once every 4 or 5 months - it is benign. It is caused by parasympathetic and sympathetic nervous misfiring, causing a short circuit in my heart (electrical loop). It can be fixed, but it doesn't bother me.

    Extreme brain fog and dizziness - I am not myself anymore. I simply can't think clearly. I can only think clearly after I have been lying down for a long while.

    Something is wrong with my eyes. Its difficult to focus and light bothers me a LOT. I am always squinting and my eyebrows are always low.. its strange. Also I have so many floaters that I cannot see a clear sky! I've looked into laser surgery (there's only one place in TX), but that's too new. Also my eyes are often bloodshot at night time. Another thing with my eyes.. I see white glowing stars for a second every once in awhile (but I always wonder.. don?t we all?).

    I have extreme fatigue so bad that I?ve been bed ridden at times.

    HORRIBLE anxiety and panic... first brought on by bp and hr going up (then I panic!). I can really flip my wig for no apparent reason.

    Adrenaline rushes.. ANYTHING can set me off. Someone passing me on the highway, doorbell or phone ringing.. its like my adrenaline shoots off for no reason. My hands become ice cold and sweaty.

    All my muscles are weak and twitchy. Difficult to explain but it makes me feel "on the edge". Tremor I guess is the right word. My doc commented on my eyelids twitching.

    Costochondritis - left side of my sternum.. one of by ribs feels bruised and has for years.

    Heat intolerance - heart rate goes up (I live in Phoenix though!)

    Inability to sweat.

    Gatroparesis (seems to be correlated with my thyroid dosing).

    Stomach ulcers and GERD that requires 20mg Aciphex (been on it a year now).

    Very strange spasms in my throat and stomach that I call "esphogeal spasms".. but I?ve never been diagnosed with it by a doctor. Doctors think this is just part of the GERD, but I know that is not true.

    I have some skeletal / posture problems that seem to be caused by muscle mass that I have lost in the past year (30 lb!)

    So far I have had the following tests, which were all negative:

    1. Treadmill test: got up to 190 beats per minute and nearly passed out, heart rate wouldn't come down for an hour but EKG was good ? no strange beats or waveforms.

    2. Ultrasound of aortic root, carotid artery and another artery in my neck. Clear.

    3. Echocardiogram (several). Other than MVP with slight regurgitation, everything else was good.

    4. EKG (lots of them). Always perfect, except for sinus tachycardia.

    5. CT scans and x-rays of most of my entire body, and especially the adrenals (all clear).

    6. LOTS (and I mean *LOTS*) of blood tests. So much blood was taken in the past 12 months that I doubt I have any blood left. No doc has ever checked my blood volume.

    Sometimes my blood sugar is very low and sometimes it is high (think it has to do with testosterone replacement therapy, which I gave up).

    Does it sound like I have OI, POTS, or similar? I realize since I'm a male it would be somewhat unusual. BUT.. they said the same thing about hashimoto's and I am certain I do have that (positive antibody test results).

    Or more important I guess... if anything I described above does NOT sound like dysautomnia, please let me know!

    Things that bother me the most:

    1. Of course, the increase in heart rate and extreme blood pressure fluctuations. I honestly have had to crawl around my house on all fours like a dog at times, but that worst part is over. I?m able to walk now.

    2. Brain fog and loss of vocabulary. I feel like only 25% of the person I used to be. I hope this is not permanent brain damage.

    3. Exercise intolerance due to the pounding heart and bloating or pressure in my abdomen. Does anyone else get that?

    4. Doctors who keep tell me that this is all in my head. I?m sure you?ve all heard that before.

    Things I'm doing already:

    1. Increasing water and salt.

    2. Leg exercises for calves.

    3. Trying not to sit in front of the computer for extended periods.

    The beta-blocker seemed to have a rebound effect on me so I'm not taking that anymore.

    One thing I?d like to know regarding exercising: is it better to walk on a treadmill and put up with the dizzy spells, or is it better to peddle on a recumbent bike?

    Also can anyone recommend a good POTS doctor in the southwest?

    I'm going to see my primary doctor on the 19th and he's open to the idea that I might have some kind of dysautomnia. He's not trained in this area, but he will order tests. Should I print out and bring anything in particular?

    Thanks,

    Richard

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