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About RichardInAz

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  • Birthday 11/01/1975

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    Finding a cause for POTS

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  1. Tammy, your signature is very much like mine and several others! I'm 33, have POTs, PSVT, very hypersensative reaction to adrenaline: although my catecholamines and metanephrines are LOW normal, my alpha or beta receptors are SUPER SENSITIVE to adrenaline. I can't tollerate beta blockers. I also take levothyroxine for hypothyoidisim. I also have MVP, super high DHEA levels and low cortisol. WHAT THE HECK! I've seen five other people EXACTLY like this. It seems to have something to do with adrenal issues, secondary to taking levothyroixine. Were you taking Snythroid BEFORE this all started back
  2. Well, on the subject of that stomach fullness feeling... if I push on my stomach the right way when standing, it sends my systolic pressure through the roof. I wind up with a pulse pressure of 75 or more! Then I get symptomatic. Does anyone here get a pulse pressure this high? Pulse pressure is the top number minus the bottom number. Update.. ok this keeps getting stranger and stranger. I found that if I press on my stomach when I stand up, my BP shoots up to 170/95. If I just stand up and NOT press on my stomach, I only go to about 130/75. I'm 105/60 when sitting. What in the world!? Thanks!
  3. Thanks for the replies. I might try cutting the 25mg in half and just take it when I'm symptomatic - to see what happens. I can only keep my hr up if I'm standing so I probably shouldn't take these before I go to bed. Quick question: What IS that bloating feeling that some of us get we get when we stand up (below the heart)?? I read somewhere that it is blood pooling up there. My cardiologist said that's unlikely, and that it is more likely blood leaving the stomach/GI area. Does anyone know?
  4. I'll make this as short as possible because I don't have a lot of time to write (btw, thanks to all who responded to my other post!!): I have hyperadrenergic POTS. When I stand up from a sitting position, my BP goes up a lot, I get really bad bloating in my stomach (strange feeling) and my heart rate increases 30 - all when I stand up. My symptoms are MUCH, MUCH worse when I'm anxious or under stress (like in a doctor's office) or after exercising, being in the heat, etc.. etc. I'm on NO meds for POTS at the moment. My cardiologist wants to start me on 25mg of metoprolol (beta blocker). Is thi
  5. Well, this has been my second trip to the ER in the past two days. Each time its in the evening and it happens right after I eat dinner... my heart starts pounding and my blood pressure shoots up to 200/100 or more (from my average of 110/70). I've been keeping a log of blood pressure and glucose for the past two days. I was doing excellent all day.. eating small meals, just relaxing and no exercising. My HR has been very stable at 105/65 or so all day. Then in the evening I ate a large meal. 10 minutes later I felt HORRIBLE! Sweating hands, numbness, dizziness.. I checked my blood sugar and i
  6. 1. high blood pressure upon standing (200/100 sometimes, but I always go up 20 or 30 mmHg when standing). 2. Tachycardia when standing (go from 65 to 120 often) 3. Adrenaline rushes 4. A strange fullness feeling above my stomach but below my heart. 5. Severe brain fog that comes and goes every few weeks The thing that put me out of comission was the high blood pressure and fullness in my stomach upon standing. I guess that is blood pooling up there? Whatever it is, that is what made me stop exercising a year ago. It can even cause me to have PACs and PVCs.
  7. O-M-G!!! YES! I cannot be outside for even *20 seconds* or I will be down for the rest of the day! Breathing in the hot air makes my BP and HR sky rocket and I don?t feel good for hours. I see older people running and biking, and I think to myself ?HOW CAN THEY DO THIS??. I used to be able to do this but I can?t survive 20 seconds of standing outside. FYI I might have the hyperadrenergic form of POTS (tests pending) and live in Phoenix, AZ. It feels like 666 degrees Fahrenheit during the summer.
  8. Two of my favorite smoothies I make just about every night: Orange Peaches: In a blender combine: 4 peaches, skinned and seeds removed* 4 cups of ice 2 cups of orange juice 1/2 or 1 cup orange sherbet Blend and enjoy *one time I forgot to remove the seed, so I had to call poison control (the seeds can kill 'ya). My other favorite is an energy drink that is loaded with fiber, amino acids, protein and antioxidants. Its made with the a?a? fruit that is grown in Brazil (pronounced Ah-Sigh-EE). It is listed as Oprah's #1 food. Brazilians drink this stuff before and after exercising. It sort of tast
  9. Thanks everybody. I'll try Dr. Goodman and Dr. Wissner. I'll try anything because right now, my cardiologist keeps referring me to the endocrinologist, who refers me back to the cardiologist. I'd like to see them both in a boxing match.
  10. Both my wife and I have POTS. I swear! Now how strange is that!? Her heart rate goes up 30 or 40 when standing as does mine. I'm a bit worse, and I have hypertension sometimes when standing. The only medical conditions my wife and I have are hashimoto's thyroid disease and adrenal fatigue. It freaks doctors out that we both have identical problems. We were both exposed to black toxic mold prior to all this. Check this out: http://forums.realthyroidhelp.com/viewtopi...?f=2&t=7320 Seems a lot of people who have thyroid disease or adrenal issues are having similar symptoms!
  11. It happened again! I spent the whole night in two different ERs. First of all, I was diagnosed with POTS recently. I?m going to see Dr Grubb asap (my appointment is April 2009). My hr is 65 sitting, 120 standing and bp goes from 100/60 sitting to 130/80 standing. This is the case 99% of the time. But I have had three occasions now where something else is going on. I?m super sensitive to adrenaline (hyperadregenic pots?). This last episode was just like the one I had last month. It started around 10PM last night after dinner. My bp shot up to 200/100 when standing, so I sat down but it wouldn?t
  12. Tammy, I've had to crawl around the house on all fours also - that's a bummer. It must have been really tough to take care of your little one. Yes I get very weak as well. My cardiologist tried me on a beta blocker twice.. both times I had a bad reaction where my heart rate went too low. I'm not sure how this is associated to POTS, but my heart rate falls too much when I lay down. When I'm sitting, my heart rate ranges between 65 and 85. When I'm standing, of course it shoots up to 100 to 120. But when I lay down, it often goes down to 48 bpm for a few minutes. Does anyone else get bradycardia
  13. That's exactly how I felt! A friend just mentioned something about serotonin and how it can affect BP and HR. I wonder if POTS has something to do with serotonin control?? "Postural orthostatic tachycardia syndrome -- Agarwal et al. 83 ...They will have orthostatic tachycardia as well as associated hypertension. .... It is suggested that the disturbances in central serotonin production and ... " I couldn't read the rest of the article because they wanted me to pay $25 to view it!
  14. Wow I didn't realize this was such a problem for everyone else as well. Actually this is how I realized I had something wrong last year and finally got diagnosed with POTS this year. I have another medical condition that complicates this. I have a type of heart arrhythmia that I get every once in awhile called "PSVT". When I lift heavy objects over my head, this POTS kicks in and I get a few PVCs.. which can cause my PSVT. THEN I have something to worry about! My heart races to 300bpm for a few minutes. So, I will just stop lifting things over my head. Like you guys said, if I have to do this
  15. Tonight I tried doing a small exercise where I lift a small weight over my head. I haven't done that since last year when I came down with POTS. Just two lifts of that and I felt very light headed and I thought I was going to faint. My heart was doing some sort of strange flip flops, so I dropped the weight on the ground. Then I felt shaky (I guess a panic attack had started). I recovered after a few seconds but I shook like a leaf for an hour (panic!?). Anybody else get this with POTS? Can't lift things over your head?
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