Hi Everyone! I wanted to introduce myself. I am the mom of a 12 year old girl who has been suffering from an unknown illness. In February we found that my daughter needed neurosurgery. She has a shunt for hydrocephalus and it was blocked. They think she was suffering silently for over a year. She slowly recovered and had just started back to school when she had another surgery (only 3 weeks in between). She recovered quickly innitialy from this surgery; she seemed to bounce back. She spent two weeks at home, two weeks half days at school and then we started back to full days. Just as she seemed to be getting better, she started again to complain of headaches, nausea, dizziness, sound and light sensitivity. These are similar to shunt failure symptoms. We went to the hospital over and over again. The did many tests and found that her shunt was working correctly, however, they admitted her and watched her vitals. This showed that her HR goes up every time she gets up. It was significant enough to refer her to cardiology. The have triaged her as semi urgent and advised me of a month to 3 months wait for an appointment. She has had blood tests, xrays, MRI, and ultrasound to try to figure out why she is so unwell. She has been unable to attend school for more than half a day per week (since all of this started). It takes her days to recover after she has been active (going to school, shopping, etc.). She is suffering from: Headache Stomach ache Dizzy Lightheaded Nauseated Fatigue and sleeping a lot Trouble going to sleep at night Exercise intolerance ? winded going up the stairs Weakness ? difficulty opening doors, general weakness and notable weakness in arms and legs Difficulty focusing ? in a fog, can?t concentrate visual problems - she sees shapes and colours like if she pushed in on her eyes I am having trouble getting anyone to take charge of this medical situation and investigate. I need a Dr. House. All the specialists so far just rule out their specialty or diagnose based on only a small piece of the picture (for example, the neurologist says she is just suffering from migraines). My family doctor is waiting to receive tests from the hospital before he considers any other tests or next steps. His receptionist thinks my daughter just doesn't want to go to school so she won't give us priority when booking appointments. Every day is now just about documenting and waiting for the phone to ring. We are also hoping that each day won't be too bad a day. I think she is suffering from POTS. I have contacted one of the doctors on the list. He wants to hear from my doctor. I just wish I could make my little girl feel better. Tylenol and Advil hardly even touch her pain. She takes them together in the hopes of some relief. Thank you for reading. Thank you for being here.