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kwalk

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  1. like a really definition of all of these and maybe how you feel if they are mixed together dizzy groggy lightheaded and maybe any other weird things you experience that I might be missing a name to. sometimes I'm kind of like, which one am I feeling right now? especially when I'm just sitting.
  2. yes that can is a common sideeffect with anti depressants. You can always switch if it gets that bad
  3. you have a point there- the past few days it's been ranging all over in the lower numbers, and it seems to be not as effective after I first took it. That might have happened with propanolol too and after awhile we saw it go down much lower and be more steady. I'm really bad at noticing patterns though and keeping track of things, no matter how hard I try, I get so off task. Anyways, I have noticed since I started taking it, everyday it looks like it takes more hours to see an effect from it, where as before I noticed the effect happened much quicker like an hour after taking it. i have a feeling that might mean I need to go up on the dose, as my doctor said when she first gave it to me, but wanted to start low.
  4. my doctor just switched me from propanolol to bystolic, it brings down my heart rate just as well as propanolol for me atleast. I was really surprised she mentioned the drug as an option since it's new, and as I already researched it, I chose that one right away! The first day my heart rate dropped about 30 points.(standing I am about 150- 120 immediately) I felt like I was falling asleep all day on propanolol, where as with this one I do notice a definite change in energy. On the second day I had a record of having a heart rate of 74. Now, usually after a few hours of taking bystolic, I am in the lower 90's. Another thing I really enjoy is that I only have to take it once a day. I'm extremely forgetful with the doses I have to take that are not in the morning or at night. Thankfully it's just salt pills for me now, so it's not a huge deal if I forget at the time, I just usually remember a few hours later I will let you all know how my progress goes with it.
  5. I try to get in the 3 liters a day, as it is recommended- rarely happens anymore though since I get all off task. So I'd say I usually get to 1 1/2 liters
  6. the SSRIs and SNRIS are suppose to help, but it really depends on your body I guess. I just started taking zoloft too and propanolol, I don't know which one bringing it down, but I have seen a traumatic difference. It may take awhile to see a difference, but you can always mention to your doctor your concerns. Looks like the docs say alcohol will make it worse, but it doesn't seem to be that way for everyone. They are way too cautious sometimes, they love to follow by side effects with some people and think well since it happened with them, it's going to happen with you! Not always true, so I take risks sometimes and see how my body responds. You could always try and see what happens? Who knows just one drink might make you feel good and nothing will happen. Atleast you'll know from experience whether you can take it or not. Also like to add when you are taking an anti depressant ande other meds you are bound to be sensitive to alcohol, in larger quantities almost indefinitely.
  7. ayi... I would love to find an agreement with you, but before I reached the earlier years of my high school, I had plenty of energy. We had to go all the way back into my elementary school records, and it definitely confirmed I had ADD. I was very slow at my work ( in general people have always found me slow), inattentive to detail, and overall I found that I was called a big ditz when I was a kid. I was the classic inattentive ADD that really no one notices, so they got away with thinking at first that I did have a language processing disorder, and eventually they said that my listening skills got to that bar of just below average. I'm the kid staring out the window day dreaming about god knows what or looking at random things in the classroom, not paying attention to what I'm suppose to! They as well, thought I had a learning disability, but as time went by with a little help, I could do things on my own and they said that I didn't need help anymore, and I did pretty well on my own. When I reached high school and things got much harder to make up from my attention difficulties, I finally figured it out and wow if you compared my grades from 9th grade where I wasn't taking medicine to there on after, you'd be really surprised! Suddenly I was much more interested in my classes and everythingg I needed to read, where as before I wouldn't have seem to care or grasped much on the subject because my mind, as my psych tells me is kind of like " a ping pong ball". It's hard to get it to think straight forward as it's bouncing around in circles- but when you give me something to take for it, you'd be surprised of my abilities that are hidden. I'm the definition of procrastination,laziness, random and inconsistency with everything because of my lack of discipline in which is almost impossible for me to control, because I forget what I'm thinking like every two seconds and just lose track. i don't listen unless I want to, though I don't even realize it. I get overstimulated in malls to no end going off on my own. I'm like curious george almost. It's very hard to understand ADD because attention difficulties are very hard to pin point when you've got these other things going on. I learned more about myself and the way I do things by being as honest with myself about my differences and admitting to myself of all my faults that I usually can't see or didn't want to see. It is really helping me be easier on myself for it in the long run and figure out ways to actually cope. I got questioned with all the things in the book psych wise- going down the list of classical ADD symptoms and on my neuro psych test, I definitely was evaluated on tests that were just like TOVA. There was a computer test in which I would hit the space bar everytime I saw a letter, in which my reaction was kind of slow, and then when I saw an X I was not suppose to hit the space bar, and everytime I did it too. I did other tests like towers, seeing what I noticed in pictures ( which was SAD), spelling, a series of listening tests, connecting the dots with letters and numbers, the list could go on if I could recall it all... it was a 6 hour process
  8. I did! did terrible- attention, memory, comprehension, the whole works. IQ was really bad as well. They didn't understand it even for having adhd and depression, especially since I did honors classes in high school. If you have gotten one done, how did you do? yea er, anyways..... I ended up going to the emergency room because of some very bad choices on my crazy self who has no idea what she's doing. Now I'm off many medications due to side effects and because of some intense observation and evaluations. Now I am on zoloft, trileptal, propanolol (in which is tremendously helping pots, I rarely go over 100 when I stand now! My migraine headaches are severly reduced from this too, so no more topamax doping me up), ambien(which they are trying to get me off of especially since I seem to have hangovers- by adding more trileptal) I was tried on vyvanse( stimulant) two days ago,since I seemed to be doing really well mood wise and as I definitely found myself more alert (even did really well on concentration tests compared to before)- the first day I had some anxiety at times with definitely feeling like I was at speed at certain times, while on the second day it was really intense. Today I'm much better anxiety wise without the stimulant and they want me to get a few more tests like another neurological exam, cortisol and catecholamine levels standing up, and see how a higher dose of trileptal goes over the weekend before they think about putting me on a stimulant again. sorry for going on about so many things, I don't really know my point, but I'm sure it's in there somewhere . My biggest question besides a neuropsychological test is, what do these feelings of lots of adrenaline feel like to you? has anyone noticed a certain medication that could make it worse? I'm having a hard time deciphering the difference with anxiety and adhd.
  9. So I've seen that many of you look like your on sleep medications and I've developed a sleeping problem since I've developed pots. I told my doc about this and I thought it was attributed to pots. I wake up a lot during the night, feel really restless as if my feet won't stop dancing, tossing and turning-you know the deal. I end up getting really irritated and start worrying about random things because in general I just think a lot (ADDer here, as if you can't tell, random thoughts start popping in my head). I try to divert myself if I'm conscious enough,throw on my headphones to relax me, and fall back asleep usually. I didn't really tell my doctor all the details above except for the restlessness and thinking a lot. She pretty much attributed thinking alot to depression GR- stupid on my part telling her that! I wish people understood ADD lol. My doctor told me the sleeping problem wasn't really a pots thing and it was probably depression. Funny thing is, I just started taking vyvanse, and I don't worry nearly as much HMM? I think it makes it easier for me to worry less because my thoughts are so much slower! I listened to my doctor at the time because she gave me trazodone which was for depression and sleep. As I took my second dose last night though, my heart rate was at 134 sitting. Then it was at 183 standing YIKES! I was still tachycardiac when I woke up this morning as well. I had a terrible time falling asleep, yet I didn't wake up at all during the night this time. I just really don't want to jump the conclusions, as so many doctors love to do and will not let up about. I don't want to seem like I'm naive or something, as if I'm oblivious that I'm depressed. I've taken the anti depressants before, they didn't make my life "better". If anything, I felt more sane off of them. so can many of you relate to, the insomnia creating some kind of anxiety? and if so, have sleep medications helped? okay I tried my best to stay on topic today! I'm so hungover from trazodone.
  10. I have a terrible time with this, being adhd, I can never remember what relaxes me, or that o yea, I had this symptom a few days ago and that it's nothing new. I usually pop on my headphones and listen to something really soothing if I happen to be at home, or really anything that distracts my mind. I have a terrible time focusing on my thoughts and telling myself to calm down, so that kind of nips that in the bud. So yes, distraction is the key Also meditation tapes really help.. I haven't stuck with it, of course, but it definitely helps me focus when I get really stuck in a big loop and almost puts me to sleep.
  11. well as you can see.. I'm totally ADHD.. I didn't even notice your list of medications at the bottom
  12. either way, it doesn't really matter which type you have. It is said that a number of people with SCT respond to stimulant medications anyway, have you given them a try?
  13. my nurse practioner said it wasn't reccommended to use midodrine with other stimulants, but told me to talk to my psychiatrist about it. Just seeing if anyone else has had any experience out there with it.
  14. I definitely have ADHD. I'm getting really hyper lately and I'm actually happy. I've gotten a lot of support and I'm really getting myself out of this depression.My energy is and out, but so be it- that's pots. I went to my nurse practioner today, and she told me she thought I was so much more alert and agreed that I definitely do have ADD, and I told her I was pretty happy lately. Before this whole incident, she tried me on cymbalta, it reved me up and I couldn't sleep.-- Ended up getting more depressed. For some odd reason even though I'm happy she still wants me on Lamictal, but I honestly don't think I need it. I hate how they insist to throw meds at you. I'm just an ADHD kid who has so many **** thoughts and doesn't know what to do with herself having to sit around most of the time and getting bored out her mind. I actually tried some of my dexedrine today, that was prescribed to me a few months ago, and it felt so good. I didn't mind sitting around- I started educating myself, everytime I worried it was much easier to brush the thoughts off, because my mind was much more calm. I could tell the difference which was pots and which was ADD because I day dream almost all the time already. It's weird for me, my mind all of a sudden stops, and I'm still there- this time I can actually notice it.This is why I'm really pushing myself on the stim, because I'm practically gone all day long and can't take it. My body did get a little bit shaky but it wore off and as long as I didn't worry about it I did fine. Anyways, I was just going to not take lamictal and let everyone think I'm taking it. It doesn't necessarily benefit with pots in particular, and clonidine is really helping lower my heart rate, so I don't see the point. I am planning to keep taking the dexedrine. In two weeks at my next appointment I was going to tell my doctor I experimented with it a few days and I did really well.... is this wrong of me to do or do we really have to fight our doctors sometimes?
  15. I'm finally slowly getting out of it right now, as I started cymbalta yesterday. The first few hours of a day I actually know what's going on around me, it's great! Then I go back into brain fog... I feel so frozen. do you basically just have to wait it out or can anyone actually do anything when they are experiencing this?
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