gertie
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Posts posted by gertie
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Has anyone here had these 2 blood test done? I sure I have a histamine intolerance & would like to have the test. If you have, do you remember the cost of testing? thanks.
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Thanks for all your replies. It took me a long time deciding which probiotic to try. I chose strains that degrade histamine or that are neutral. I took a small amount today & so far ok. I do eat sauerkraut occ altho it is not supposed to be good for those of us with hypothyroid.
looneymom, I have allergen free Pure Encapsulations. The only additive is rice starch & it is vegetarian capsule but I take it out of capsule & sprinkle on food.
Katybug, I haven't been tested for mcas but I did have a bad reaction to histamine during allergy testing.
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Thanks, I'm going to keep trying small amounts of it.
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Are probiotics usually ok for us? Sometimes I can eat yogurt without a problem & at other times it makes my throat & tongue burn. It may be because it is a high histamine food. I am trying a small dose of probiotic but I seem to be getting more mouth/tongue burning from it also. I hate to be so pessimistic but I'm always afraid to try anything new. Thanks for your reply.
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It might be worth you trying a combo of probiotics that are histamine degrading. When I start something new like a probiotics, I sprinkle about 1/4 of a capsule on food to begin with, & if that doesn't bother me I gradually up the dose. thanks for your reply.
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Does anyone know if this probiotic strain is histamine producing or degrading? I have read a list of probiotics to avoid & the ones that are supposed to be good but I can't find this strain on the list. I don't want to take something that is going to make POTS symptoms worse. I know some of you have MCAD & thought you might know. Thanks.
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The only ones I can find are from porcine, haven't been able to find vegetarian. I seem to react negatively to everything. thanks for reply.
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Does anyone here take these supplements? If so, did you have any side effects. I'm told there isn't any known side effects but I'm not believing that. Thanks.
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I know what you're going through. It's the same with my husband & family. I think (speaking of my family) they just don't care. I've learned to "suffer in silence". If they ask how I'm feeling & I start to respond with the truth I can't see a blank look on their face & I simply say "I'm fine".
Hope things get better for you.
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Have you had your adrenals checked? When I was younger I was into weight lifting but as this illness progressed I had to stop. The more I tried to exercise the weaker I got. I also found out I had adrenal failure.
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Thanks for responding. It's good to know I'm not alone in this. Every job I ever had was with a telephone in my ear. Cell phones are the worst but in my experience they are all bad for the brain.
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Does talking on the phone for any length of time make you nervous? I have some people that call & will talk for an hour or longer and me saying occ "I've got to go" for some reason or other. They just keep talking. Finally I thank them for calling but say I've must go & take care of something. By that time I'm shaking all over, have headache & ready to scream. Maybe I need socializing. I do prefer being by myself because of allergies & sensitivities etc. I feel better when things are calm & quiet. Does anyone experience this or is it just me? thanks.
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I do better with distilled water. I use it to make hot teas or just hot water & lemon.
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The only experience I've had with lidocaine is to use it locally for pain. Once I rubbed it on my body I was in a semi comatose state for a long time, totally wiped me out.
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I'm sorry vinylowl. I have syncope with my IBS issues. I'm curious if you have ever been tested for seizures?
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Yes, I've had those several times & I always fear a stroke. It is terrifying & usually a 10 on the pain scale. I follow a strict migraine free diet & still have 2 or 3 some weeks.
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Thanks everyone. My GP doesn't have a clue what to do with me. I'm to the point I just take the prescription he gives me & never get it filled rather try to reason with him.
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In reference to Genelex lab testing. I thought most people with mcad that were tested for allergies usually showed no reaction, altho they had a reaction when exposed to the product. Am I wrong? Most of the things I have the most trouble with such as food & meds, show no reaction with allergy testing yet I have severe problems when ingesting.
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It's a scary situation. Just about everything I take ends up causing a partial seizure, migraine, or just bad allergic reaction. Not only meds but food as well. thanks everyone.
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Is anyone able to take this expectorant? Everyone seems to have a bronchial virus & I'm afraid I will take it. I am trying to have something in medicine cabinet I can take but have had no luck at all in finding meds I can tolerate in the past. Any suggestions? thanks.
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Merry Christmas & Happy Holidays!
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I remember the show on syncope. At first I thought it might be informative but in the end he seemed to brush it off as if it is nothing. It reminded me of a neuro I had once that when I told her I had syncope & it was a scarey thing, she just said, "don't worry about it".
It seems Dr Oz thinks everything can be fixed with a supplement or weight loss.
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I don't get one. I had severe allergic reaction to my last one. Never again!
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Thanks for replies.
Paleo Or Gluten Free For Migraines? Has It Helped Anyone?
in Dysautonomia Discussion
Posted
I have tried them both & I couldn't tell any difference. However, a low histamine diet does seem to help.