marti1212

Hi All. I have been lurking for a long time and finally took the step to become involved with all of you. I so look forward to knowing all of you. My name is Marti. I have a wonderful dh and 4 beautiful blessings. I have been diagnosed with POTS since February of 2007. I still continue to deal with all kinds of issues. We are currently also looking into mitochondiral disease. My first question is do any of you also suffer from small fiber neuropathy? I have this and it is horrible. The neuromuscular doctor says I am to young to have it but I do of course with no explanatins. I am allergic to most pain medications so there is nothing that can help me at this point. I also suffer from severe dyhdration. The mito doctor wants me to drink more but that is just not possible. I go back to see Bev at Doctor Grubb's office the 25th of this month so I might ask her about home iv's. My albumin levels keep coming back excesivly high with my urine tests. What about recurrent infections that you can't get over? I have had a UTI for over a month now that antibotics just cannot get rid of? Looking forward to getting to know all of you Mrti