Kimberely

Lauren, I am glad you had everything checked out and are ok. Losing my vision is probably my most frequent symptom with POTS. I constantly lose all vision when I stand up, pull my hair back, reach for things. I go completely black for a few seconds and am constantly bending forward and squatting to regain my vision. I feel like I could fall over at any time. I know exactly how you feel. Hang in there and I hope you feel better!!! Kimberely

I have also been thin my whole life. I am 5'7" and weigh 105. Kimberely

Jennifer, I wasn't diagnosed with POTS until after the birth of my second child who is 11 months old. I had major symptoms with both pregnancies and they got much worse afterwards which is how I was finally diagnosed. My children are the most precious gifts and I would do it all again if I had to. One look at them and I forget everything I had to endure to get them here. I feel very fortunate that my symptoms are mild. I only take salt tablets 3 times a day and I am able to work prn. I just wanted to share my story with you. I wish you well in all you do!! Take care! Kimberely

Diana, Everything goes black in both eyes for a few seconds (less than 10 seconds). I also have episodes that are milder where I can't see clearly but it isn't distinct floaters either (both eyes). I can feel my eyes pulsating as my vision returns. I guess that is why I thought it was due to blood pressure. During my tilt table test, everything went black and my blood pressure fell to 55/30 something (this was with nitro). Does migraines go along with POTS? I have just been reading these discussions and noticed a lot of people have listed them on their problem list or dx? I have had floaters before (like sheets of rain) and then got a mild headache. Nothing that required more than advil or tylenol. Thank you so much for responding. It is so nice to talk with others who have these problems. Please tell me more about your other POTS symptoms. Thanks again!!

I haven't seen an opthamologist in almost 2 years and I guess I should make an appointment. I lose my vision when I stand up or get up out of bed also so I just assumed it was the same thing. I'll get it checked out. Thanks for responding. Kimberely

Hello all, I am new to the forum. I was diagnosed back in February 2005 with POTS after a couple near syncope episodes. I have been reading these discussions and they are wonderful! I am not as informed as most of you so I would like to learn more. I am taking salt tablets three times a day and that has seemed to help the tachycardia but I still lose my vision quite frequently. I know this has to be a drop in blood pressure but I am losing it by pulling my hair back, stretching, and so on. I have an 11 month old and this makes it difficult. Is this a day to day symptom for most people with POTS? Thanks!! Kimberely