Megan

I hope you start to feel a bit better soon! Meg

I would guess it's at least partially the Meniere's. (my dad has it, although he had some procedure at mayo and hasnt' had a bad spell in years) I, too, have tinnitus 24/7, but I have some kind of hereditary hearing loss through my mom's side of the family, so I don't know if it's POTS related. The only time I really have sensitivity to noise is when I have a migraine. Have you seen an ENT? Meg

Sorry for such a frustrating visit! I've never had an issue with vitamin C. Hope actually get some stuff figured out with that stupid doctor! Meg

Low potassium causes my body to do some really strange things, so maybe you should get that checked out. Hope you figure things out. Meg

This does happen to me, but typically it only happens on really hot days after a few hours or so in the sun. I don't have this problem after a few minutes. That seems really weird to me. (not any more so than pots itself, though...) Meg

I have been told that sometimes stomach pain in POTS patients comes from the fact that weird blood flow causes the stomach to sometimes digest when it shouldn't and not when it should. Meg

Lots of prayers your way! Meg

I do pass out sometimes, but I think I would describe brain fog as my worst symptom. I often burst into tears because of it...I just can't take it! My diagnosis is POTS. I take omega-3 fish oil supplements (just over the counter) twice a day and I find that they help with concentration. Also, I'm on prescription Cerefoliln (folic acid, essentially) for concentration. I'm on a whole host of other meds, but I notice a big difference with those two and brain fog. College would be awful without them. (Journalism major...lots of reading and writing!) Meg

Breathe! I've been there before...feeling as though I had no control over my own body. Since you're recovering anyway, just take things slowly. And new meds or therapies can help you get past the fear, too. Knowing you have something/someone on your side, like an army, helps. And everybody else has had good suggestions. Make sure you talk to your dr about blacking out. Anything that might help! It's definitely scary, but it sounds like you've calmed down a little looking back on things. You'll learn your symptoms better, and maybe know when you're going to pass out. Even if it's only a few seconds before, it helps a lot. Good luck! Meg

I see an allergist once a year for a check-up. I take singulair and clarinex to keep things under control. The allergist has me do a blow test...I don't know the official name of it, but I blow into this tube that's hooked up to a machine to test my lung function. As long as I stay on my meds and stay inside when pollen and such are bad, I'm usually good. I would suggest seeing an allergist if you don't already if your asthma is bad. Then you can watch your asthma a with a specialist if you're worried about med side effects. (even though it does make for a lot of doctors!) Meg

I have asthma and have never had any issues with it and mestinon. My asthma is in control, though (I rarely use my inhaler, less than monthly) so I don't know if that makes a difference. I would start on a smaller dose, though! I bet the pharmacy can cancel the one that's already been called in. The only problem mestinon gave me was a bit of a stomach ache, but eating before taking it helps a lot, and it doesn't give me problems anymore. (I've been on it for about 7 months) Meg

I've only ever had what I've been told are typical reactions to prednisone-weight gain, nausea, hunger, sometimes a headache. I've never had dizziness. Have you asked your doctor if any of those symptoms happen to "normal" people? Meg

Yay! I'm excited for you! Have fun planning! :-) Meg

Being twenty, I get a lot of crap from doctors about being on so many meds! I voted 10-15. I could only think of 10 but I'm a bit brain foggy and I think there are a couple more I'm not thinking of right now. Plus I take a ton of supplements. I suppose some people like drugging up, but I don't happen to be one of them. I wish that doctors would try to be more understanding in areas they aren't experts on. And bribing people to stop medications? That is really scary. I would be running away from that doctor really quickly! Meg

Yay! I'm glad you have some good news! Meg

The only problem I've ever had with ibuprofen is stomach issues (if I don't eat before I take it). I hope you figure out what's going on! Meg

Hang in there! Here's hoping that global warming finds you soon. :-) Meg

I hope you get to feeling better soon, or at least get rested up!! Meg

Yay! That sounds exciting, for him and for you! Meg

Hang in there, Maxine. You're in my thoughts and prayers! Meg

I need about 9 hours per night. If I go over ten, I feel sleepy all day. I do take naps fairly often, though. I need to rest every few hours to keep going. Meg

I hope it went well! Meg

My current PCP is the dr I've been seeing my whole life (he delivered me). Even after years of me trying to explain to him, he still believes that my disorder is a mental thing. I've decided I'm not going to put up with that any more and I have an appointment with a new pcp set up for August, after I come home from studying abroad. I'm hoping to explain everything as well as I can and have plenty of information for her to read/study so that I can have a good working relationship with a dr. who can treat me for "normal" sickness while be knowledgeable about my pots. Meg

I use depo-provera as well, and while I sometimes have light periods and hormone fluctuations around the time I'm due for my shot (every 12 weeks) for the most part, my symptoms are gone. (which is good, because my menstrual cycle made my POTS go completely mad, even though it was regular) Meg

I took Toprol for headaches and it helped. I don't know how it works for nausea. Good luck with it. Meg