Megan

Good luck with your appointment! I love Bev. She's definitely very sweet and understanding. As for appointment time, Dr. Grubb is usually a couple of hours behind, but when I saw Bev, she was pretty much on time, so as long as you give yourself enough time (according to mapquest or whatever) I wouldn't worry. Meg

I wear tags. They list my name, POTS (only spelled out) as well as asthma and depression with all my meds listed and my medicine allergies as well. I have two tags on one chain, though, because all of the info wouldn't fit on one. On the rare occasion people have not known what to do and called the EMTs, they've said that they wished more people wore medical tags. My parents definitely feel better that I have them. Meg

I am praying for you and for your father. I pray that you will gain strength and that the tiredness will be lifted for you both. Hang in there. Meg

Hi all! I searched past posts, but I couldn't find anything about compression hose and pain. I've only recently started wearing them; also, I'm wearing the No Nonsense ones that I picked up at rite aid that don't give a number. But when I wear them, I feel pain in my legs, especially when I walk. I've left a message with my doctor, but the office hasn't gotten back to me yet. I was wondering if anyone else has experienced this? I thought maybe the pain, which isn't too sever, but kind of shoots through my legs, is from blood circulating the right way when I'm not used to it. I also have that tingling pins and needles feeling. Anyway, I was mostly just wondering if anyone else experienced pain with compression. (It does seem to be helping as far as keeping me conscious, though) Meg

I'm so glad to hear I'm not the only one who MUST have coffee!! I stick to decaf when I just want the flavor, but sometimes I definitely need the caffiene or I am basically worthless and too out of it to accomplish anything. I will have to remember the tip about drinking Gatorade first, though. I have an awful time fighting dehydration. Meg

I definitely experience this! So frustrating and so confusing! (good to hear that I'm not alone in it, though) My mom constantly tells me that after all I've been through with POTS so far, nothing should surprise me. "I feel like my pots is constantly changing and old symptoms calm down and then new ones pop up." I was definitely having a conversation like this the other day. This is one of my biggest frustrations...I guess we all just have to deal with it since so much is unknown about POTS. Also, I find it interesting about us being more aware of our bodies...it does kind of make sense to me, though. Meg

I have low potassium, I believe due to being on florinef, but I take Klor-Con and try to eat foods like baked potatoes and such when I'm feeling off to lift my potassium levels. I just have to make sure I eat full meals every day, or the med makes me a bit sick to my stomach. I hope things get worked out for you! Meg

Good Luck! Meg

I'm so sorry Morgan! I had to have my cat put to sleep around Thanksgiving due to cancer.... I definitely understand the grieving over pets process. Sending you hugs, hang in there. Meg

Hi Gena, I can't help you with the levels thing, but I can tell you that I've experienced very similar symptoms. I never went to the ER, but I did call my doctor who said it was almost entirely impossible for me to have a heart attack. (I'm 19.) So I do know that the pain is possible, but I never had my cardiac enzymes tested, so I don't know. Good luck with the cardiologist! Meg

Congrats!

Does anyone else experience what I can only call a "blind spot" in the dark? My vision is fine with my contacts in during the day, but at night there is a spot in my left eye that just looks black.