ChadK

Does anyone ever have headaches where it is worse when you shake your head , and then your eyes feal real tired and it feals like you just have a lot of pressure in your head like it is going to explode. The weired thing is when I am still it dont hurt real bad , it is just a very dull ache but when I shake my head it hurts a lot and when I move a lot and it does not happen every day but sometimes. I guess sometimes the pressure feals like all the blood is rishing to my head like im upside down even when my heart rate is normal. Anyone ever get this?

Dont worry , as soon as I get this I will post it . I was just excited because I hate the fact that so many of us have to suffer and have a small hole of hope that this drug will work. As for when this or if this comes out I do not know but I do know on all the people it has been tried on it has worked . I am not 100 % sure of the specifics of why it works but that is what the study will be good for once I get it:) I hope you all have a good day and just pray that this med comes out and works like they say it may. Will be posting the study in about 2 days .

As some of you may or may not know , this POTS has hit me very hard at a hard time in my life. I am a professional musician with the band H20 . We have just signed with Columbia Records and will begin our tour and cd release in December. I talked with some people in the industry and asked them if they could get me just a conversation with a POTS Specialist or someone that knows " almost " everything about POTS. We I got to talk with this doctor by the name of Phillip Low and his team. The good news out of the whole convo was the fact they are developing a pill to get rid of POTS symtoms in 99% of the patients. The recent studies have showed that a major part of POTS is lack of fluids to vital parts of our organs and one of them being your heart. Some would call this dehydration and others would call this hydrated orgram retention , I think that is the name of it , anyways what this peal will do is put everything about to your body that is needed . These doctors studies are showing this is more than a nervous sytem disorder , a whole lot of this is about your bodys ability to hydrate itself and its vital organs. They have done a lot of test to show this and he is suppose to be sending me a copy of this study to show the proof that this is in fact the truth. This he said will possibly be the cure for POTS. As I am sure many people have told you all that there is no cure for this well indeed there may very well be one very very soon. Of course the doc said that some people this may cure to where they will not have to take this medication there whole life but some people will have to take this there whole life. He has said that all these doctors the whole time have been giving wrong meds to people with POTS . Now I am not at all saying quit taking any meds you are taking because that would not be safe nor anything else because he said some of these meds help but its not truly getting the real problem. When I receive the docs I have got permission to post them on this site so you all can see , this med has been tested so far on 23 POTS patients and has worked on all the patients and all 23 patients have no symtoms of POTS while taking this pill and have been taken it side affect free and POTS free for 1 month. Just thought that this was news worth sharing and I for one can not wait until this comes out so I can live a normal life again. Like I said as soon as I get this study and all the fact ( 3 or 4 days ) I will post it . Chad and once again sorry for the very bad spelling

I have been severely constipated for the past two weeks. I have had a few bowel movements but it feels like it takes everything I am to use the bathroom and I can only go with laxatives. It feels like my stomach has knots in it and it is worse when I stand up. It feels like I have air or gas in my stomach and I can feel it in my abdomen and my back. Has anyone ever had this problem with POTS?

I went to the doc and was a spec ialist on hand. He felt my abdomen and listened to my heart and lungs and then took a stool sample and urine test along with BP AND Heart rate of course. He said a lot of my problems could be coming from the fact that I have been in bed almost 2 weeks . He assured me I did not have colon cancer or any other ailmenst for that matter , he did think I have temp postural intolerance because of weight loss and anxiety , is what he said . Everything in all my test done last night came back ok. So I am only to assume the problems I am having is due to the POTS or just pure nerves. Not usre but either way the doc said I was in good health . I had no blood in my stool or urine nor anything else wrong. He did not order no further test due to the test already taken by him himself. So I guess this is goodc news but for some reason I still have gas or something in my abdomen all the time. He said the reason I could feel my pulse in my stomach so much is because of how light I am and how much weight I have lost over the course of the past 3 weeks and said this was normal. So if any of you want to chime in and give me your thoughts that would be great and as always sorry for the poor spelling.

yes have read all about the tilt table test. The question I now have is , does anyone ever get either groin pain or leg pain like a dull aching pain , also in the lower abdomen. I have lost some weight sence all of this and is that also a common thing . Im more worried about my pain , it is uncomfortable in certain posistions Also what was the link to the POTS symtoms or whatever?

I am scared for a few reasons , at first I thought for sure I had POTS but noiw am worried that it may be a abdominal aortic anurysm or howevere you spell that . I nam sorry I am posting thias and I am sure this post may get on your nerves but I have been to the doc three years ago for this same thing. Is this POTS or something else. My symtoms are hard heart beat in stomach , it feals like the muscles in my stomach are very tight and I dont get the urge to use the bathroom very much . I used the bathroom for the first time in a 4 days the day before yesterday. When I stand up it feals like my abdomen falls to my stomach and of course my heart beats really fast. Yesterday I had pretty severe leg pain. Also for some reason my stomach has been growling and bubbling like I have gas . Does any of you get these symtoms? And could this also be POTS somehow or maybe because I have not drank enough? I went to the doc for a pulse in my stomach about 3 years ago and everythinb checdked out fine. Im really scared. It also feals like the lymnodes in my groin are a little hard . I have not really had abdominal pain. I talked with a nurse tonight about wether or not I may have a abdominal aortic anurisym and she said YOU DO NOT HAVE A ANURYSM. She said she has never ever saw a patient at my age with that and that mostly older people get. Can anyone please help because I am so scared.I can mostly only feal my pulse in certain posistions and could it be because I have not eaten enough or drink or not moved much at all? Here is a little about me Weight : 130 ( Because Anxiety ) Age : 21 Medical History : ( Anxiety Only and Maybe POTS ) This only started about three days ago and my stomacvh muscles feal real tight

The thing I do not understand is , my stonach feels tight recently and in my back and I do not really have pain but it feals like my stomacvh is full of gas and no matter what I do sometimes it just feals like the muscles in my stomach are always tight and I do not understand that?

Has anyone ever felt heart beat in stomach , not just when the heart is beating fast but when laying and at rest when the heart is at a normal rythm. I have been to the doc and they have not ever found anything in my stomach but still seem to be worried about a abdominal aortic aneurysm eventhough I have been evaluated many many times. I was just curious if anyone at all ever gets this . Also does anyone ever have leg pains with POTS. It feals like both of my legs muscles are aching and dull pain. Was just wondering if anyone at all ever gets this so maybe it will ease my mind because on top of that I have to worry about this new hurricane because I live in Myrtle Beach , SC. Hope to hear from you soon.

Is it normal for POTS patients blood pressure to raise when standing along with the heart rate increase? I thought that people with POTS have a low BP when standing but lately I have been really fealing bad when I stand and blood pressure raises to about 140/100 and my heart rate raises to about 140. Then I start fealing like all the blood rushes to my head and it feals like my head is full of something. Anyone else ever feal this way. It scares me because I am going through heck with this and eventhough docs think I may not have POTS I know I do , but I think the majority of my problem is my anxiety about being scared to move thinking my POTS may hurt me or something or being afraid of passing out. I just like to hear what you guys think because I feal like I am all alone in this. Also one more thing , does pots come and go in a matter of minutes like one minutes I can not bare to stand up without my heart flying and my bp going up and then the next minute I can get up and do whatever . This happen to anyone else ? Thanks So Much Chad Klein Myrtle Beach , SC

Hey everyone , I have not been fealing good all night , I have felt like i could not breath right and when I just went to check my mail I felt like I almost passed out but my heart was not fast that I know of and I felt like my breathing was shallow but I did not pass out , as soon as I layed down my heart was beating hard but not fast and then I felt so much better. Does this happen to any of the rest of you and the reason I asked is because it scared me .

Hey , I hope that you are doing ok , I am new to the forum and do not really know many people but I have been praying for those that were affected by this hurricane and hope that you are ok. I know how hard it is because our home got destroyed when I lived in Miami Beach FLA during Hurricane Andrew but we made it. I am not sure if I have POTS and either is the doc so that is my situation right now but hey sometimes I feel awesome and sometimes like total crap. Anyways hope all is good with you and I will continue to pray for you and fam Chad Klein

I have not had any caffeine in about a week until today , I have been mostly drinking water or kool aid. Today I had some pepsi to drink and have eaten pizza and lots of chips. My heart rate and BP yesterday was ok and today when I stand up my heart rate is about 130 max and BP max is 145 / 108 . If this bad , and should I worry and could it be from what I drank and if I drink water will it maybe clear it up? Any of the rest of you get this.

steph37822 I have a question for you or anhyone really I went to a doc that knows all about POTS and has diagnosed over 25 people with POTS. He did his version os a tilt table test , made me lay down upside down in a table thing and took my heart rate and BP. When laying my BP was about 108 / 80 which is almost perfect but my heart rate was about 60. He took my BP sitting up and the BP went up a little to about 112 / 80 and heart rate went up to about 75. Then he took my BP and heart rate standing and my heart rate standing was 112 and BP 116 / 80 . He said that this was not typical of POTS patients because my BP for the most part stayed normal and heart rate was not to to high , eventhough 112 is kinda high he said he has seen on many many patients with POTS that there heart rate upon standing was between 120 - 200+. He also said that most POTS patients in tilt tabel test have a low BP and high heart rate with symtoms. He is going to run more test but I mean now I am really confused . He once again said that my nerves may be the underlying factor because I have not herdly eaten in a week nor drunk much at all which could be the reason for my change is heart rate and etc. What do ya get from this .

Ok the pacemaker thing scares me , when you first knew you had POTS did you heart rate go that low then or over time because I just dont understand a lot of whats going on . Pacemaker sounds scary and I dont know anything about them , the docs here are not very smart it seems but o well what can ya do. My heart rate I have never seen go lover than 50. I am sitting up right right now and it is about 66. When I lay down it drops a little more. This will noit kill me will it ? My doc sais no but I trust you people more lol. I am only 21 and a male and yes it seems rare that I would get this . I went to college and played football in both highschool and college. I could run and run and run and now it is hard just to go to the mail box. The weired thing is , every day is diffrent for me , one day I am fine and the next it is h ***. Doc after Doc has told me even if you have POTS it will not kill you it is just very aggrivating but I they just dont get how big of a pain it is . My fiancee dont understand and it frustrates her as one could imagine. It would me to if I were her , we have been together for over 2 years and I have never once been one to lay in bed sometimes all day , I was always active and doing yard work and etc. Now , does the doc think that you will get over it or it will ever cool down for you and if you do not mind me asking what age range you are in , I know that may be inpolite but was just wondering. I will pray for you though and just remeber to cherish the good minutes , hours or days you have . In some way people with a disorder like this should feal lucky , and the reason I say that is because it helps them to appreciate the good in life than no healthy person could ever imagine. It has me , I took advantage of life in genral until now and I see now what others suffer from .

When I lay down my heart rate is sometimes about 56 , is that ok? When I get up it rises higher to about 112. I do think that I have POTS and I know it will not kill you but it still gives me anxiety attacks when my heart rate rises so much , does anyone else have anxiety with this. I am starting to get depressed because up until about 2 weeks ago my life was awesome and now I have to plan everything on if my heart rate is ok. I guess the main question I have is , is it normal when you are at rest with POTS for your heart rate to be between 55 and 65 and then on standing it rises. My blood pressure stays around 118/80 so BP has not been a prob. I have noticed a few times it has shot up to about 130/85 which is not to high but high for me cause I think my BP is low naturally. Can anyone please tell me some home remedies to ease some of the discomferts and anxiety that come along with POTS. What really makes me mad every doc I go to sais I am fine and I even saw someone who really knows POTS in a leading heart hospital so I mean what is the deal. Sorry to ramble but have been up all night with anxiety and I am depressed over it. Aldo one more thing, does anyone elses eyes get real dry , and sometimes your mouth? Also how come some days I feal ok and some days I feal like crap , and sometimes my feet are freezing cold and other days they are fine . ERRRRR One more thing I promiseeeeeeee. I have not been hardly eating the past week , I pick my fiancee sais and she is trying so hard to put up with me lol but it gets hard as I am sure you all know, do you guys think I could drink Ensure Plus or would that make me worse , I think part of my not eating is worrying if I eat something that makes this worse and then the other is Anxiety I feal like stomach is in knots all the time. Hope to hear from ya soon and I am still praying for all of you.

i have had test and test over the years , and I am only 21. They have done x rays ,ECG'S and you name. I had a question, what are some dangerous arrythmias and would the doc have found it?

And here is one more question, I have done this for 6 years now . It seems after ever episode of anxiety I Yawn all the time to get that refreshing breath and it feals like my lungs are tired and the doc said it is probally because I am concious of yawing or has becomg a habit and I think that is right but anyone else ever had that problem where it feal like it takes you 15 times to yawn to get the o2 to hit the back of your lungs. I have heard healthy people get this sometimes from nerves but not sure

I understand where you are coming from but the past week almost I have monitored my BP standing , sitting , laying down , when my heart was beating real fate , when it was slow , and even in the hospital and it has not one time been above or below normal.

The doc knew about POTS and I had my BP taken standing up and laying down and sitting and in all cases it was perfect even on the tilt tabel test thing it was good and he concluded I did not have POTS but yet all my symtoms are just like it . Now yes , the past 2 days my heart has not raced near as much and I have been able to get up and walk around and etc and have been gettiing better day by day. The only problems I am having now is that it feals like all the blood is rushing to my head and I have a minor headache. He said that all these symtoms are related to anxiety and some previous dehydration. He did a experiment with me and told me to lay down and he took my heart rate and it was normal then I stood up and it was about 105. Then he had me lay down again and sit up but this time when I stood up he had me throw a ball back and forth in my hands and to concentrate on it while I was throwing it . The time I threw the ball and stood up my heart rate was only about 10 beats faster than normal and then went to normal but as soon as I started thinking about it again when I stood up it was fast again. He concluded that this was severe anxiety disorder pretty much making my body think I had POTS . He said there are a few types of POTS and some people can get it temporarily after a band case of anxiety or something traumatixing anf will go away when others will have it off and on throughout life. I could have swore I had it but the doc and hospital here is one of the top heart docs in america. So if any of you have input I would like to hear it. Another thing .... He said that with POTS patients they ussually have a high heart rate when standing and there blood pressure drops ( not a whole lot all the time ) but that is what causes a lot of people to faint when they have POTS.

I have heard that Celexa which I use to take for anxiety and zoloft can cure POTS or at least make the symtoms go away for a lot of people . Has anyone ever heard of this . I saw this on a site and another question. I am new to this , if I have pots I am not going to die am I ? Everyone sais they dont know of anyone that has died from POTS. Also how long does it last because I had the exact same symtoms 3 years agto and I was transported to the hospital and they gave me 7 bags of fluid because I was dehydrated so I am wondering if I am feeling this way because I am dehydrated. What I am trying to figure out is why I would have the same symtoms 3 years ago and was fine because I think I started zoloft after that. The whole 3 years I never had this problem again until I stopped taking my zoloft November of this past year and started having bad anxiety attacks about 2 weeks ago and now have the fat heart beat sometimes when I stand up. Anyone have any insight. I still think it is either anxiety or dehydration due to previous symtoms and the cure at the time which was bags of bluids through IV . But if it is POTS I will get over it right? And is there anything specific I can do to feel better if it was POTS that is natural. tHANKS SO MUCH

I was told that men very very very rarely get POTS. The reason I have researched this is because I have suffered from severe anxiety attacks almost my whole life . About 3 years ago I had a episode that when I sat up or stood up I felt like blood was filling my lungs and my heart was almost 200 BPM. I was taken zoloftup until November of last year and quit. Well the oddest things trigger my anxiety attacks and this time it was the space shuttle taking off and that was about what 2 weeks ago and now for the past 2 weeks I have been very nervous and having panic attacks but 3 days ago I called EMS and they came out and checked my heart and it was 135 and then later I laid down and my heart rate went down but every time I got out of bed I felt real dizzy and felt like blood was getting in my lungs and it seems now it has gotten a little bit better since yesterday because yesterday I could not even get up and today I am a lot better. Doctors I have talked with about POTs say only .185 of Americans get POTS and most all of those are women that pass it on to daughters. Everyone I have asked has said they thought it was my anxiety because my heart was fully checked about 2 years ago when it happened before and they determined I had been dehydrated which may be the case now ? Anyways srry this sounds stupid but wanted you guys take on this long and misspelled paragraph. I do pray for all of you even if I do not have it if you need to talk to anyone because I go through severe anxiety attacks and it really ***** pardon my french but you have to remember its not the end of the world . With all the research I have done on POTS its not that dangerous and can easily be treated with right meds or other forms and I have also read it goes away on its own many times. Anyways hope to hear back from you guys soon Chad