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SunsetParadise49

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Everything posted by SunsetParadise49

  1. AWW! There's a town in PA called Bird In Hand so your posts title caught my eye!
  2. Melissa, It is SO great to see you posting again! I'm so glad that you are making some progress! I hope you keep on feeling better!!! ((((hugs)))) Love, Gwendolyn
  3. That's not odd at all...I have noticed that my chest pain and chest tightness acts up more when I'm wearing an underwire bra.
  4. Thanks for the update Sophia! I will keep poohbear in my thoughts and prayers!
  5. Welcome Liz!!!! We are glad to have you here!
  6. I'm so glad that you are home Melissa! I pray that you continue to feel better! ((((((hugs))))))
  7. I would say it ranges from 15 minutes to 30 minutes (as long as I keep moving ). It just depends what kind of day I'm having.
  8. I'm so glad you got to see your kitty cat Melissa !!!! I've been keeping you in my thoughts and prayers ! *hugs* To everyone who has been keeping us updated and even visiting Melissa, thank you!
  9. LOL how creative! Have fun on your trip!
  10. I hope your doctors can figure something out for you. Nausea is one of my main symptoms over the Summer time so I completely understand where you are coming from. *hugs* and hope you find some relief!
  11. I've fainted while laying in bed as well. It's a very weird feeling when you "come to" and wake up.
  12. Sorry to hear of your experiance...sounds real scary and very annoying! I don't think that has ever happened to me....I hope someone can help you find out some answers! *hugs*
  13. Yay!! That's such wonderful news!
  14. *HUGS* I'm sorry that you are going through this! I would say to keep on their butts...call, bug them just like Carmen mentioned. Sometimes being a pain in the a** gets through to people.
  15. I was told the same thing. I was told that it takes weeks like two-four weeks for it to get into your system. And then a good week for it to be out of your system. I take 0.1mg's twice a day and I find that it helps me a lot. Once in a while there will be a day or two where it feels like it doesn't help, but in most cases it works. I hope that it continues to help you feel better no matter how you take it, Karen!
  16. Hi Pat, Check out our physician page, http://www.dinet.org/physicians.htm. Dr. Grubb is in Ohio.
  17. I just wanted to add, that for me the getting up to stand between the x-ray thing every 15 minutes was really hard for me to do. I was blacking out a lot at that time and plus the test was early in the morning. And cardiactec, I think my test might have been more than two hours...I think it may have been three, I don't think it was four, but looking back, I know it was not just two.
  18. I just got the TheraCran pills in the mail today, so I will start taking them tonight. Hopefully they will make a huge difference! Thanks for all of your input everyone!
  19. Congratulations! I wish you the best of luck!
  20. I watched like five minutes of it. I couldn't stand seeing him using his medical condition in that way. To me, it would be like a Dysautonomic standing up in front of an audiance until they passed out, just for the attention. I think that if Gary wants to raise EDS awareness that he could find a better way, rather then being a freak show. My best friend possibly has Hypermobility EDS like me, and when she brought this up to her one doctor, he told her, "No, you don't have Ehlers- Danlos Syndrome. Those kind of people are freaks, they are circus people." I just did not like the show.
  21. Keeping you in my thoughts and prayers Melissa. Hang in there, you can fight this! Thinking of you, Gwen
  22. Having brain fog here, but is the gastric emptying study where you have to eat radioactive oatmeal or scrambled eggs? If so, I had to eat the radioactive oatmeal. You can't taste the radioactive powder, it's tasteless.The test was like 2 hours long, and every 15 minutes you had to go and stand between a special x-ray type maching and it took a quick picture. It was a fairly simple test.....I hope I'm not telling you the wrong test lol. Good Luck!
  23. Glad you're home!!!! I hope you keep on feeling better! *hugs*
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