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mehganb81

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Posts posted by mehganb81

  1. I do not use medicine between flares.  I always have symptoms and have never returned to pre-pots but managagable. I have three kids (all born after POTS) and was very careful not to get deconditioned while pregnant.  I have had POTS for 15 years and I think have made lots of changes and adaptions to try to maintain as well as I can with a chronic illness.

  2. I would be interested to hear about it if you decide to do it.  My right ear has lost 50% of its vestibular nerve function.  When I get sick I never know what to think, pots or ear.  I have never regained my balance fully, my husband is currently installing new front walk because he worries about my balance so much.  What are they hoping to determine by doing the test?

  3. I used to plauged by frequent chest pain, but it has since ceased since switching my beta blocker to toprol extended release which delivers the medication over 24 hours. My doctor explained that my heart maynot be getting the oxygen it needs temporarily during a PVC or tachy episode, hence the pain. It generally passed very quickly. While there is no danger to the heart it is very scary and I am glad to have gotten rid of that symptom. I hope you find something that works for you.

  4. I too take a low dose of Effexor, which has helped my symptoms. Effexor affects both serotonin and norepinephrine. I was skeptical at first but am glad that I decided to follow their advice. My one suggestion is to have a psychcologist manage the dosing. They have much more experience with this class of drugs and have an extended knowledge of possible side effects. My psych doctor checks in with me every 3-4 weeks to check on me, it is very nice. I also see a Liscensed clinical social worker every month for an hour to talk about my illness, its effects on my relationships, and sacrifices I have had to make. I think this has also been very helpful to have someone to talk to. She has experience with dealing with clients who have chronic illnesses and has had many helpful suggestions for learning to live with a chronic illness and coming to terms with the changes I have had to make.

  5. Hi,

    I was diagnosed with shingles in december of '04 after sucessfully controlling my Autonomic dysfunction symptoms for about 2 years without any major problems. My body is extremely tired from dealing with shingles and my autonomic symptoms are back in full force. I had to take a leave from graduate school to take care of myself due to overwhelming fatigue, palpitations, and numerous fainting episodes. Eight months later I am just starting to feel like I am getting back to myself. My doctors explained that indivuals with dysautonomias often have extended periods post-viral symptoms.

    I caught my shingles very early and was able to get into the doctor for a anti-viral called acyclovir. I was lucky to only be in terrible nerve pain for about two weeks and have minimal lingering pain.

    I wish your friend the best and hope she recovers more rapidly than I.

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