mehganb81
Members-
Posts
25 -
Joined
-
Last visited
Content Type
Profiles
Forums
Events
Resources
Physicians
Member Stories
Information Resources
Links
Everything posted by mehganb81
-
Glucose intolerance in lean POTS patients
mehganb81 replied to toomanyproblems's topic in Dysautonomia Discussion
I have glucose intolerance as well as hypoglycemic episodes in 30s. I am lean, have to work hard to keep weight on.. It feels like food is part of disease management, no longer enjoyable. -
Benefits from florinef (fludrocortisone) - do they last?
mehganb81 replied to bombsh3ll's topic in Dysautonomia Discussion
Do you have an article link for types of hyperpots? -
I love your doctors name, keeps me sharp
-
A month of insomnia - desperate pls help!!
mehganb81 replied to darcyjohnson's topic in Dysautonomia Discussion
Are you able to sleep at other times? There have been times where I get 8 hours just perhaps starting at 1 am and then seem to regulate back to normal later. I think the quiet of night is nice when I’m overstimulated. -
Resting in afternoon causing extreme nausea and head pain
mehganb81 replied to DizzyGirls's topic in Dysautonomia Discussion
I don’t do well with iron vitamins myself, I have better luck with beef liver capsules. The heme iron seems more easily absorbed and no nausea. -
Delayed Gastric Emptying questions.
mehganb81 replied to GardenGal's topic in Dysautonomia Discussion
What do you do to manage constipation? -
I would try my best to hydrate, nourish yourself, rest.
-
I drink 3/4 liter quickly in am of hydrating drink, broth, sometimes some veggie juice than try to spread the rest out through the day.
-
I do not do well in heat and humidity. I enjoy cold as I can find ways to warm up. I cannot say dry heat is any better for me but I think it really is dependent on tolerance. I have done best in coastal PNW and San Francisco Bay.
-
Wow that’s great!
-
I haven’t tried licorice. But eye problems really bother me, hard to ignore
-
What is your favorite electrolyte product?
mehganb81 replied to green's topic in Dysautonomia Discussion
I also prefer homemade drinks. I can change the flavors. In winter I enjoy warm water, sole, lemon, and a touch of honey. I have ave some normalyte pure for convenience, don’t feel it works better than anything I make. -
Any body hear about this theory from this doc?
mehganb81 replied to Terri's topic in Dysautonomia Discussion
I have read it before, it is very interesting. -
Have you tried sole? (Pronounced so-lay). Sole with some lime and some watermelon is a quick drink to make to go. My favorite summer drink
-
Squeeze of lemon and lime, and some coconut water. Berries. Parsley and cucumber/celery I often have these type of drinks with a few salty olives or some organic veggie juice (like V8)
-
Transcutaneous vagal nerve stimulation
mehganb81 replied to RecipeForDisaster's topic in Dysautonomia Discussion
Interesting. i do not have any experience but am looking forward to hearing about it -
Sorry it was horrible. Been reading about the test, hopefully some good info to help get you good treatment
-
I do not use medicine between flares. I always have symptoms and have never returned to pre-pots but managagable. I have three kids (all born after POTS) and was very careful not to get deconditioned while pregnant. I have had POTS for 15 years and I think have made lots of changes and adaptions to try to maintain as well as I can with a chronic illness.
-
I would be interested to hear about it if you decide to do it. My right ear has lost 50% of its vestibular nerve function. When I get sick I never know what to think, pots or ear. I have never regained my balance fully, my husband is currently installing new front walk because he worries about my balance so much. What are they hoping to determine by doing the test?
-
I actually prefer less follow up and less testing. I have had POTS for 15 years. I see quite a few specialists at the U and generally have been happy.
-
I am a pt at the U too. Heat is miserbale right now
-
I used to plauged by frequent chest pain, but it has since ceased since switching my beta blocker to toprol extended release which delivers the medication over 24 hours. My doctor explained that my heart maynot be getting the oxygen it needs temporarily during a PVC or tachy episode, hence the pain. It generally passed very quickly. While there is no danger to the heart it is very scary and I am glad to have gotten rid of that symptom. I hope you find something that works for you.
-
I too take a low dose of Effexor, which has helped my symptoms. Effexor affects both serotonin and norepinephrine. I was skeptical at first but am glad that I decided to follow their advice. My one suggestion is to have a psychcologist manage the dosing. They have much more experience with this class of drugs and have an extended knowledge of possible side effects. My psych doctor checks in with me every 3-4 weeks to check on me, it is very nice. I also see a Liscensed clinical social worker every month for an hour to talk about my illness, its effects on my relationships, and sacrifices I have had to make. I think this has also been very helpful to have someone to talk to. She has experience with dealing with clients who have chronic illnesses and has had many helpful suggestions for learning to live with a chronic illness and coming to terms with the changes I have had to make.
-
Hi, I was diagnosed with shingles in december of '04 after sucessfully controlling my Autonomic dysfunction symptoms for about 2 years without any major problems. My body is extremely tired from dealing with shingles and my autonomic symptoms are back in full force. I had to take a leave from graduate school to take care of myself due to overwhelming fatigue, palpitations, and numerous fainting episodes. Eight months later I am just starting to feel like I am getting back to myself. My doctors explained that indivuals with dysautonomias often have extended periods post-viral symptoms. I caught my shingles very early and was able to get into the doctor for a anti-viral called acyclovir. I was lucky to only be in terrible nerve pain for about two weeks and have minimal lingering pain. I wish your friend the best and hope she recovers more rapidly than I.