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Kimbo

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  1. Well, I was glad to see all the feedback on having surgery with pots. I had my surgery on Thursday and all went really well. I am still in some pain but the pain meds are helping. The doctor said that it was not a hernia but a mass, something that occurred when I had my gastric bypass surgery after it healed. I guess some sort of tumor. The doc took it out and said that it was not cancerous but when she had to cut some lining off it created a hernia and had to put some mesh inside to hold it back. If this all makes any sense to anyone. All that matters to me is that I made it through okay and hopefully down the road the surgery won't affect my blood pressure anymore than it is now. I still have my referral to see a specialist at UCLA in Jan. I can't wait. I need to understand this POTS thing alot more than I do and and maybe there might be some more alternatives to my meds to help with my blood pressure and passing out episodes. I really want to go back to school but if I can't this under control, it may be a reality that I may not be able to. we will see. anyway thanks for the feedback. I thought I would report back on how it went. Kimbo
  2. I have a what the doctors think is a hernia in my abdomen and if not it could be a mass that needs to be removed. I am scheduled for Thurs. to have this done. The doctor was a little concerned about my blood pressure being low. Is this not a good thing to do under general anesthesia and having POTS? Has anyone had surgery with this? I'm a little nervous about it but I need to get rid of this pain I'm having with this. thanks for any advice.... Kimbo
  3. This is my first time posting so this may seem a little long. I had gastric bypass about a year and half ago and lost about 152 pounds. I feel good about that. I started having symptoms of wanting to faint at the gym about 2 months after my surgery and I didn't think anything of it. I just thought that maybe I was still recoverying from my surgery. I did have some complications after my surgery. I had trouble drinking water. My doctor had to put in a central line so that I could do home IV fluids to keep hydrated. I also had to had to have nutrition put in the IV bag to give me some protein and all that. I was having trouble eating very much and this gave the caliories that I needed to have plus the protein that I was lacking. I had all these work ups, upper endoscopy, CT scan of my stomach etc... I was having alot of pain after eating. Still feeling faint. I noticed about Feb. that my blood pressure was dropping real low. I was seen by a cardiologist and he told me just to stand up slowing. I was already doing this. I started passing out around March or April and my blood pressure would be 88/48 then I would do my fluids and it would come back up a bit. I was then seen by neurologist and she put me on a small dose of ProAmatine. It didn't seem to be working all that great. I was passing out about twice a week and falling down was killing me. I would be out for a good 15 mins. I went back to school for medical assisting and within 3 weeks an ambulance had to come get me because of passing out and each time my blood pressure was extremely low. I was getting frustrated my HMO Doctor finally after giving him some info on POTS he finally agreed thats what I had. My blood work comes back fine, I had my adrenal gland checked and it was fine, I've had MRI's and EEG's. I finally out frustration said I need to be sent to a specialist that deals specifically with POTS. I live in California, so I asked to be sent to UCLA Medical center which is one of the best hospitals in Los Angeles. I found her on a phycians list on the internet. I am on the highest dose of ProAmatine 10mg 3x's a day. I have good days and bad days. My blood pressure dropped to 54/36 about a week ago, and scared me to death. I thought that I was having a slight seizure. My roomate hooked me up to my fluids and then the highest it got was 88/46. I walk with a cane and also have a wheelchair. I had to drop from school for now which is a bummer, but I am just very ill. Has anyone had these problems of passing out? I could be in a store and everything would just go white on me and I couldn't see anything until I sit down or lay down. I don't drive anymore. It's like my whole life has changed drastically. I'm depressed and scared at the same time. I want to get back to school to finish what I started, but I don't know now. I don't know if there is any suggestions of medications that anyone might have? I have tried florinef and it didn't work so that is why they put me on the ProAmatine. Sorry this seems so long but I would like to see if anyone might be going through the same kind of thing. thanks for reading.... Kimbo
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