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Kitsakatsa

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Posts posted by Kitsakatsa

  1. I have Pots and my primary symptom is never ending, severe nausea. Does anyone else have this? What helps it? I'm taking injectible Zofran, Compazine, Tigan and Marinol and it breaks through. I've had it a year and a half and I think I'm going insane now. I'm just really desperate for answers. The docs at Mayo Clinic Scottsdale don't know why I'm this sick. Does anyone else have an experience with nausea like this? Is this a Pots symptom?

  2. I am new to this board, this is my first post. I have had pots for a year and a half. I was diagnosed with florid pots last March. Working is hard. I feel so supported to read your posts. I fight back tears every day and I force myself into work. Every minute I have to coach myself to stay there. I have really bad nausea. Every day I wonder if I made the right decision about working and not going on disability. I am fortunate to have a very understanding boss and I work in a hospital where people really care about each other. She let me work 4 hours a day initially, and now I am working the full 8. I have a desk job and the office is contained so the movement and visual stuff is as much a problem. I have a door and sometimes I close it and lay down for a few minutes with my feet up. My doctor is down the hall and he will see me the second I call. We have an IV center and I can get fluids there. I was 6 months into my master's degree when the symptoms started and I finished it a few months ago. Fortunately it was an online program, so it was very hard but not impossible to finish. I have an incredible family and support system.

    I just know that I have the best possible set up for a patient with pots who wants to keep working. Without every single one of these factors I could not do it. You have to find what works for you, what you want and fight for it every single day. I think it is worth it. I don't know why I have been blessed with such a good setup and the symptoms have tapered down enough to allow me to work. If anyone finds things that help them feel better at work- please post it!

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