I have a flare with every change of the seasons that usually last 3-4 months. I belong to Facebook and can go back in my memories for the year on this day.. and it blows my mind.. every year almost to the day I will get at least a week long migraine, sweats , chills, exasperated GI, more aches. But, during this four or so flare it can happen multiple times. Usually during this time I will have increased swelling in my lower legs, fatigue, extra sensitivity, inability to deal with ambient temperature, sleeplessness, my pain receptors will likely be more exaggerated. It usually happens october/November thru jan/Feb. depending on how fast & cold the winter comes in. Then I always get it around April-June/July, again depending on when the summer heat comes in. I live in massachusets so our weather varies.
I have lived with dysautonomia my whole life and have not been able to eat since age 15, so I have other complicated medical problems. I don’t currently have a neurologist or anyone who follows my dysautonomia so I just deal with it. I get all my nutrition and IV fluid by IV form for the last 30 years so when my blood pressure is having issues I can bolus in fluid.
The last week has been really rough.. the older I get the harder time I am having dealing with the symptoms. My body just doesn’t fight it as well.
Do you ever get mood swings highly emotional with the dysautonomia flares? This is new and also blurred vision especially outside with the sun- I just put two and two together and figured it is related to the dysautonomia.
The itchiness that you get, is it short lived? I have been having severe itchiness mostly at night for the last two weeks in my legs- cannot figure out why. I never thought it could be the dysautonomia.
thanks- Becca