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cnm1

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Everything posted by cnm1

  1. Dr Bell is amazing. My daughter Rachel saw him initially when she became ill with CFS which was eventually dx as POTS. He believes most CFS pts have a post viral dysautonomia. He also writes amazing follow up letters. He referred us to Dr Grubb for follow up tx. Here is link to his website and newsletter http://www.davidsbell.com/index.htm Louise
  2. HI Patti I am new this board - my Daughter Rachel has POTS/CFS. We also saw Dr Grubb. We are working with Dr Doroskar at UH in cleveland now. She knows Dr Grubb and is willing to try anything he recommends. She is an electrophysiologist. Perhaps we can turn her into a POTS specialist!!!! Louise
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