mom2000

My 21 yr old daughter just returned from Mayo in Rochester, she was in their eplilepsy monitoring unit for 10 days waiting to have a seizure so they could record it. She has been having the non epileptic seizures since she was 14 whenever she experienced syncope due to her POTS. She now has been diagnosed with both epilepsy and having non epileptic seizures. She had a couple of non epileptic that have lasted 2-3 hours, her airway fails and emt's or hospital has to bag her. she also has weakness in her left side after one of the prolonged seizures and blurred vision in her left eye. we have been told to use a nasal valium if she seizes more than 5 minutes. If that doesn't stop the seizing we will know that they are non epileptic and we can monitor her airway. Her eyes have always been closed for both types and the jerking and stiffness seems the same to me for both so its very hard to determine in my opinion by just these observations. with that being said I would encourage anyone struggling with pots and seizures to seek treatment at the Mayo Clinic in Rochester, MN. They are absolutely the best at treating both. After three years of symptoms they are the ones to figure out that she had pots. you do not need a referral, you just call to set up an appointment.