CDNPortGrl

Here’s my crazy situation. While I’ve had up and down health for just over a year, it was always migraine related and muscle fatigue. It looks like it was due to cervical neck damage...fast forward, in Canada I had the AstraZenneca vaccine in late April. 24 hours later I had a severe reaction. I fell to the floor getting out of bed and was ill all day. 48 hours later I felt ‘normal’ again. A few days after that I went on a bike ride and by May 6, I developed full blown POTS that has left me housebound since (I go out for appointments). I don’t know if it’s the world’s worst coincidence, if my body’s immune system attacked itself, like people with COVID experience and in doing so, it damaged how my system regulates the heart, etc. Or if the bike ride further damaged a spinal issue and consequently POTS occurred. Regardless, I’m terrified to get the second shot as well.

I’m not sure if this helps you out or not but I’m a recent POTS ‘victim’. Prior to May 6, my heart performed as it should. Leading up to that dreaded moment in my life, I had vestibular migraines, a runny nose, the beginning of Maniere’s Disease, facial electrical flashing sensations, etc. The doctor prescribed a nasal spray for the sinuses which didn’t do anything since that wasn’t my issue. I actually had to do my own ‘self diagnosis’ as doctors are notorious for being clueless and all the ones I’ve seen are no exception. In my situation, I had a constant mildly sore neck and after a bike ride, my world changed. I came across something called Craniocervical instability. At the time I didn’t know if I had it or not, but just in case, I put on a cervical collar and literally within days, the migraines, nasal stuffiness, ear plugging, etc. all vanished. I’m not implying that this is what you’re dealing with but in the small chance that your nose is dripping due to spinal damage (and misfiring nerve signals), it might be worth looking into...I am sorry you’re contending with so many ignorant doctors though. I was diagnosed in the ER with POTS and the cardiologist I’m presently dealing with stated that it’s highly unlikely as it’s so ‘rare’. Yeah, ok...that’s a medical diagnosis right? Lol Sounds a lot more like a misguided opinion. I dread his song and dance for months or years.