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felijhoff

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  1. hello- are you still with the same diagnosis? I just saw this message. I have PoTS and Ehlers Danlos and my doc thinks I have Rumination Syndrome. I've been hospitalized for 2 weeks because of a very big flare up in my regurgitation (can't keep it down anymore). He said that it is probably linked to PoTS as it has to do with your stomach and its autonomic nervous system. Did you doctor change his diagnosis or not? If I have RS, I've had it for 15 years, so it will be probably impossible to reverse the effects.
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