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Emily Johnson

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  1. Emily Johnson
    My cardiologists say it’s normal for POTS patients - the fluids reset our autonomic and sympathetic systems and the reset is exhausting. The same thing happen when my EDS physical therapist adjusts circulation and muscle blocks in my shoulders, chest, neck and head. I also have ME/CFS so the fatigue completely wiped me out. I take IV fluids once daily via a Groshong catheter and try to plan it during a time I can nap. If I run it up against bedtime, I often can’t wake up to unhook myself after a nap.
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