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carissalovesbooks's Achievements


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  1. Which bb are you on? Any contraindications with that and the klonopin?
  2. I'm no stranger to klonopin. Been on and off for over a decade for severe anxiety and panic attacks. I recently started back up on 1mg to see if it does anything for my pots. I've heard it is hit or miss. Here's the thing, normally my bp is low, heart rate high, and lots of orthostatic hypotension like symptoms and feeling like passing out. Oddly enough it helps with everything but the HR. My heart rate stays high. I've heard it is supposed to lower HR and BP. What gives? Can anybody explain it? Has anybody had a similar experience? Any info would be appreciated. Thanks!
  3. My pots came on after a childbirth too! Did you have any complications with delivery?
  4. Thanks! That's good to hear you did well on one despite the asthma. Hopefully I have the same experience.
  5. I'm surprised sitting wasn't helping me. Maybe I was thinking about it too much and it was subconsciously making me anxious.
  6. Nope. Just a cardiologist. How did you go about seeing an electrophysiologist? Where did you get the device?
  7. Well I know that. I have asked previously if you had any success with them. Just curious about your experience with them.
  8. I've heard a lot about certain beta blockers being a no no for pots patients and a lot about certain ones being off limits for asthmatics. I know it's all trial and error, but any info/experience would be appreciated. I'm also a bit nervous about trying one (I have severe asthma that is not well controlled). Anybody who was also nervous about trying them sharing their experience would be helpful to me as well. Thank you!
  9. I've thought about trying a similar diet. I have loads of gastro issues. What about the beta blockers?
  10. That's amazing! I've never heard of anything like that. I'd like to ask my docs about it, but they don't even seem to like doing the bare minimum. 🤷‍♀️
  11. I totally agree about it being scary! It is so unsettling! It also doesn't help that doctors can't explain it or keep it under control. I would love a loop recorder. An ER doc heard an arrhythmia with the stethoscope, but they haven't been able to catch it with the short term holders they do.
  12. No beta blockers yet. Have you found success with beta blockers? Have you tried the whole low carb thing?
  13. Anybody get tachy even though you are sitting? Also I noticed with the oximeter that my hr is all over the place 80 then BAM 115 then 135. Down then up then down then up. Just sitting still. Anybody else? I could use some reassure. The last thing I need is for my anxiety to make it worse. On the bright side I'm currently wearing a holter monitor so we'll see if anything of significance shows up when I turn it in. Thank you for your time.
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