So glad I found this forum !
it’s shocking to see so many people suffering for years with auto immune diseases without diagnosis.
Which is where I’m at unfortunately, it’s only been several months however feels like years !
I was diagnosed with leukemia last June when I lost smell and taste figured it was covid only to be devastated with the big C word.
Now this !(btw my symptoms are not leukemia related as my blood levels are very good and I am assured what I have is unrelated....
My symtoms in case any can relate , daily fever between 99.5.-100.5,weak, tired,nausea,loss of appetite,bowel movements,blurry vision,smell and taste come and go,headaches,skin very sensitive ,trouble sleeping,etc...
I have had blood tests ,X-rays,cat scans,mri,echocardiogram,ultrasound,and an endoscopy .
No answers
I’m guessing my next move should involve finding a good rheumatologist?Unfortunately Everywhere is backed up until September...
Any suggestions would be appreciated I am sick of suffering daily,pumping acetaminophen non stop and recently looked into medical marijuana. Idk what else to do .
Appreciate any advice as I’m literally going out of my mind idk how y’all have done this for so long but I don’t know how much more I can’t take ...