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Eddie_PA

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  1. Hi Kim, Do you take any medication for the tingling and burning? They currently have me on Cymbalta 60mg, I guess its a standard med for “nerve pain”.
  2. Hi, Thank you for the response. I have had the vitamin testing done, results are within normal ranges for all the relevant vitamins such as b12, magnesium, etc. Based on what what im gathering they suspect pots is not the cause of symptoms but potentially the other way around. They suspect an underlying issue which has yet to be identified. Very frustrating considering there really isn’t any additional testing that can really be done I don’t think.
  3. Hello, I have just been diagnosed with dysautonomia - POTS by a well respected hospital. This was done through tilt table testing, I am very confused because my symptoms seem to be much different than those that I was reading about POTS. Below is a quick summary of how everything started. March 2020 - started having heart palpitations July 2020 - shock like electric current through my body and into right leg, toes would go numb for a while and I would wiggle them to restore function. This kept happening maybe once a week. October 2020 - Started waking up with left arm and left hand numb and with “needle” like feelings in it. November 2020 -Right arm and hand started doing the same thing. December 2020 -Left leg now started having electric current into toes and numbness. -Loss of sensation in hands and feet. I can still feel things but they just feel different ( hard to explain this one to doctors) - Tingling started in middle of forehead and top right side of face. This area is sensitive to temperature it seems. January 2021 - Hands started burning - Insomnia due to burning pain - Muscles are constantly twitching, especially in the feet. Ive attached a video for reference, the twitches never stop, and get really bad after any workout. - Worsening vision - Fatigue - Very easily get sore. - Tachycardia - Parasthesias - Stomach constantly making sounds I have had pretty extensive workup with multiple neuros after the first was unable to make a diagnosis. - Clean MRI of head and spine - CT scan of chest and abdomen. Normal. - Final fluid was checked, no issues. - 2 normals emg and nerve conduction studies. - Normal skin biopsy, no small fiber nerve damage apparently. - Tested for all the standard things, lyme, stds, all bloodwork is normal except mildly elevated billirubin. - Tested positive for ANA , and then tested negative a month later, which they told me was irrelevant. This all eventually led to a tilt table test because of the tachycardia, and I was informed that it showed POTS. Im concerned because i do not seem to have the typical symptoms described here. While my conditioning has certainly worsened, I am still able to do many physical activities like riding a bike, walking, but I do get fatigued quickly. My main symptoms of concern are the electric shocks that I now get through my body, the random burning hands, and the nonstop muscle twitches. Does anyone have any similar experiences with this and what has helped them. Any help is appreciated. FullSizeRender.mov
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