POTSie78

Yes I have pain in my joints and muscle aches. At times I have trouble walking because of the pain in my sacrum and it goes down my legs to the point I can barely lift them.

I have not seen a dermatologist yet. I am going to the Mayo clinic in a couple weeks so I was going to wait and see what they say.

I was born with spina bifida and have suffered symptoms of dysautonomia for 40+ years. Last year I was diagnosed with dysautonomia and then this year I was told I have POTS. I get flushing and mottled skin and have noticed now I am getting skin lesions that come and go on my scalp and forehead. It seems to be spreading down my face and is itchy. Is there a link between dysautonmia and psoriasis type lesions? I have been tested for lupus and some other basic autoimmune and inflammatory markers which have all been negative.

I have PAC, PVCS, SA AND ST along with mild mitral valve regurgitation and thickening of my heart muscle and one carotid (no plaque). I have had syncope, pre-syncope, sleep syncope and numerous GI issues for 40+ years. I now have an inplanted loop recorder. I was born with spina bifida and was finally diagnosed with dysautonomia last year and this year I was diagnosed with POTS. Hopefully now that my symptoms have a name I can get some relief.

My pulse goes to 160s and then sometimes it will drop to 30-40 bpm and my resting heart rate is usually 90-100. I have bad stabbing chest pain during either extreme. Other times my chest feels very tight. I also get pain between my shoulders and in my armpit.

Thank you for sharing this information. It gives me hope to someday find relief. My EPS specialist suspects I have POTS or Autonomic dysreflexia (AD) based on my symptoms and various tests that have been done. I have spina bifida and herniated disks in my neck and both of my cardiologists seem to think my condition is related to spinal cord involvement. It was explained to me that the center part of my brain tries to communicate to my body but there is a disconnect so I have unstable blood pressure, sinus tachycardia with pacs and pvcs, myocardial ischemia, migraines, temperature regulation issues, digestive issues and possibly too much intercranial pressure. I have a mild form of SB but one that has caused lots of chronic issues throughout my life but I haven't been able to find any information linking POTS to SB. I am being treated for POTS but I am going to Mayo for a confirmed diagnosis and hopefully a treatment plan that will improve my symptoms. The past couple of weeks have been especially difficult and is affecting my ability to work.