Hi everyone,
My name is Sarah and I've had Dysautonomia for over 10 years though it is quite well controlled on a day-to-day basis. However, I just received the first dose of the Pfizer vaccine and had a bad reaction a few hours later that felt like an autonomic surge: shaking, horrible headache, vomiting, so hot, nausea that lasted for days.
I'm nervous (re: terrified) about getting my second dose but having a really hard time finding any doctors who see enough Dysautonomia patients to make a good recommendation. Does 1) Anyone know of a doctor I could consult with on this in the next two weeks (my appt is 3/24)? 2) Anyone know if Dysautonomia International or another entity tracks reactions/has guidance?
Thanks so much in advance for any help you can provide.
