DSM3KIDZ

Here's a question, does POTS ever completely go away? Do you know of anyone who was diagnosed and than later is free from POTS? I was wondering because I my cousin said she experienced all the symptoms I have and she said eventually her body healed. She hasn't had any problems for 3 years now. Is this possible?

Hi Cordelina I am also new to this site and have found it very helpful. Everyone here is so sweet. There's also alot of good information. Dayna

Morgan thanks for the reply and the laugh. dayna

I was wondering if anyone knows if Delayed Gastric Emptying (gastroparesis) could be caused by POTS. I think I aquired them at the same exact time since I didn't have either before Aug 23, 04. I looked at the symptoms site and found slow gastric emptying as a symptom of POTS. So I was wondering if anyone knows if I get POTS undercontrol (meds, fluids, exercise) could that also help with GP? Well I'm definitely going to try and hold on to that as my HOPE. I'd also like to say thank you for all your responses. I wish I could give you guys good advise but I'm new to all this so I don't have any yet but you are all in my daily prayers. Dayna

I had the autonomic testing done 2 weeks ago and I know for sure I failed the sweat test (and tilt table). Your suppose to turn purple and I was completely dry. I don't see my neurologist for awhile and was wondering if anyone else had this and what does it mean if you don't sweat. Is that really bad??

I'm sorry for your loss. I can't even imagine what your going through. I will pray for you. Dayna

What do you guys take for headaches/migraines?

All of this is hard for my husband too. My husband bottles up his emotions and don't get a chance to vent (I try to let him). I've been sick for 7months and I used to run the house and was the decision maker etc. So for the past 7months he has taken over my role with keeping up with our 3 kids (6,3,&1)and the household. I think that keeps him so busy he doesn't have much time to think about what is going on. He's there to comfort me and catch me when I break down. He thinks this is just going to pass. He's just an optimistic thinker. I hope it does for all of us and our families but for now I just try to help around the house as much as I can. He said he will support me 100% as long as I show I'm making an effort (even if it's small) and not giving up. I felt like giving up a month ago but than God sent me 1 really good day where I felt 100% normal NO NAUSEA! and it made me realize I need to hang in there. That maybe someday I will feel like that wonderful mother, wonderful person, wonderful wife again not just a sick blob Hang in there Dayna

I don't think gastritis can be gastroparesis. Gastritis is an inflammation of the lining of your stomach. Gastroparesis is slow digestion. My first GI told me I had gastritis and left it at that but after months of nausea I found another GI who immediately did gastric empty study which showed I had gastroparesis. I take aciphex x2 a day because I believe that when the food sits there, so does the acid (I could be wrong.) If I get off the acid meds my nausea gets really bad (dry heaves, yuck!.

steph- thanks so much for your reply. I hope you find some relief soon. I actually elevated my bed two weeks ago so I'll try sleeping a few nights without that. My G.I. doctor won't prescribe zofran. I've tried it in the past and it helped (felt a little dizzy) so maybe I'll have to fight him for it. Did you have the gastric empty study for your nausea and vomiting?

Nina -is miralax a prescription?

I'm picking your brains with all my questions. I just started getting headaches for the past 3 weeks. They have been constant and my doctor prescribed tramadol. what do you do for headaches?? Does pots cause headaches? It feels like there's not enough blood flowing to my head. I know that sounds weird but most of my symptoms do.

Well I have another question. Does anyone here have GP and POTS ? Mine are both caused by autonomic neuropathy. I was dx in Jan 2005 with GP and POTS in Feb 2005. I find GP extremely hard to live with the constant nausea. I might have 2-3 days a month with no nausea and I think there might be a miracle happening but than I get disappointed every time. How do you cope with this? Dayna

Nina - may I ask what dose your on? I never thought it could help with the stomach. I'm alittle excited now. How long have to had gastroparesis and how do you manage it??? I am always looking for pointers on that since that's my BIGGEST problem.

Has anyone benefited from Lexapro. I have depression (since gastroparesis) and generalized anxiety disorder. This one helps with both. I have an appointment with my doctor tommorrow to ask about it but she's not familiar with GP, POTS so has anyone had any negative effects from this or stomach problems?

I am on Microgestin Fe 1/20 and since nausea and headaches seemed to have minimized I'll give it a try for a few months. My doctor told me to take it as a seasonale so I'll only get my period 4x a year. so that should help with the symptoms. Thanks I'm finding alot of support and good info on this site.

I was wondering if anyone experiences extreme fatigue from low estrogen birth control pills? I just switched from seasonale (normal estrogen) to low estrogen due to nausea and bad headaches. My neurologist thought the estogren level might be to high for me. The nausea is more tolerable and now only small headaches but now I'm so fatigued I can barely get out of bed (even though I do. For the POTS experts, would you think this is the POTS (new dx) or an adjustment to the pill? I don't want to keep calling the doctors, they are going to think I'm nuts. Dayna

Thanks for all your support. POTS and gastroparesis can be overwhelming for me at times but thanks to a good support group I can find perspective. Thank You dayna

Well I know I have POTS from the tilt table test and I know I failed the sweat test because I didn't sweat except for head when placed in the sauna. I'm going to call on Monday to see if we can get results sooner. I'm really scared and don't know if I want to know anything sooner because I don't know what is causing autonomic neuropathy and being a mother of 3 (6,3&1) I'm scared of the worst. I need to live long and healthy for them. Dayna

Thanks for your replys my email address is dsm3kidz@yahoo.com I have the tilt table test today along with breathing and sweat tests. It takes amonth to get the results so I'll let you know what happens. Dayna

I've recently been diagnosed with POTS and my symptoms are managable. I didn't know I had a problem till the doctor took my bp/pulse while standing. At least I know why I've been feeling zoney lately. I also have gastroparesis which both problems occurred at the same time Aug 2004. I was reading some boards and I was wondering if things get worse over time? I'm scared to think I might not be able to stand or something. I have three small kids 6,3 &1 so I need to stand. I'm having a hard time managing my GP and am scared for the future. I get autonomic neurapathy testing done tommorrow. One more question is autonomic neuropathy the same as dysautonomia????? Any feedback would help Thank You Dayna

For the Gastric Empty Test she would eat radioactive eggs and lie on a table while they watch them digest. My test was for 3 hours. So it's not invasive. Good Luck

Has she had a Delayed Gastric Emptying Study? My doctors couldn't find anything wrong with me until I switched doctors and requested this test be done. I had constant nausea for 6months. Alot of people on my support board at gastroparesis@yahoo.com have stomach pain. It's something I would look into. Plus one of the symptoms for some people is dalayed gastric emptying. My POTS and GP are from autonomic neuropathy. But I'm still in the testing process so it might involve more. I think it was caused by a stressor or viral since they both came overnight. Good Luck

Hi! I am learning so much throught this site. I have been currently diagnosed with POTS and Gastroparesis has something to do with Autonomic Neuropathy I don't know if that's the same word for dysautonomia. Anyways I'm sorry to hear your having such a hard time. I was reading on the boards and it sounds like others might be suffering from GP but just don't have mot been diagnosed. I have to eat small meals but experience nausea most of the time. I have a hard time taking the nausea meds because they make me extremely exhaused and I have 3 little ones to chase after.I find alot of support through (www.gastroparesis@yahoogroups.com) Dayna