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David Smith

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  • Gender
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  • Location
    Australia
  • Interests
    Tennis, motocross and biblical studies.

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  1. Thanks for putting this series on Ellen, Lauren and others. I'm interested in what others thought of the 1st session with Dr Suleman. Hearing the average POTS patient has 32 symptoms which they have to deal with daily was reassuring, particularly when in light of the comment that if a Dr has a patient talking about more than 3 symptoms they think they may need to see a psychiatrist! All my daily symptoms are not in my head! I also have Thoracic Outlet Syndrome, which I'm currently getting physio for. My symptoms have improved a bit since Sept, when I started physio for my TOS, started walking and doing slow strength training exercises most days, and figuring out what diet seems to work best for me - 95% meat and eggs, some lemon juice, garlic, lots of salt, pepper and a bit of onion. This diet is obviously extreme, but on this video Dr Dawn Leighton, MD said that an animal based diet & strength training dramatically helped her Ehlers-Danlos Syndrome and POTS. Many people have told success stories of how an animal based diet have helped their autoimmune disease. Interestingly, one of my sons has Ulcerative Colitis, which is caused by autoimmune disease. He is always low on energy, has trouble remembering things and has hypermobility. I have double-jointed elbows and hypermobile shoulders. I've noticed that my skin on my arms and legs is loose, and I suffer from severe brain fog and constant headaches. It actually feels like my head is not getting enough blood to it. In 2013 an MRI found I had mild Cerebrovascular Disease found (reduces the flow of blood through the brain).
  2. Hopefully this works 🙏
  3. My Dr used the attached NASA Lean Test to diagnose my POTS. It's like a poor man's Tilt Table Test that any one can do if they can measure you blood pressure and pulse. My Mother In Law found a machine to measure blood pressure and pulse at a second hand store. God bless you. NASA-Lean-Test-Instructions.pdf
  4. Yes, I have constant tinnitus. I normally only notice it when I'm in a quiet environment, like when I'm lieing in bed.
  5. Thank you so much for this article! 🙏 It's good to hear other people's experience of finding out they have dysautonomia and what it's like to start living now that you know you have dysautonomia.
  6. Hi everyone. I've just being diagnosed with POTS after a NASA Lean Test. From the little I've learned about POTS so far it seem like that I am having trouble getting blood to the top half of me when I'm upright. I have read raising the bed head a bit may be helpful. Could someone please explain how this works, as I would have thought you'd want to raise your feet in bed to get blood flow to the brain. Thanks!
  7. Thanks for the suggestion @endless_august I haven't had any testicular pain since Dec, but I'll keep your idea in mind!
  8. Hi. I am wondering if anyone knows if dysautonomia can cause testicular pain? My Dr arranged for me to get some ultrasounds done which showed Nutcracker Syndrome, which he said would be causing my reoccurring testicle pain. However, afterwards I was referred to see a Vascular Surgeon who also did some ultrasounds and it showed no Nutcracker Syndrome/compression of the renal vein. I seem to get testicular pain after sitting for a couple of hours or more, like after travelling in the car for 3 hours to visit my Mum. I've had 2 courses of antibiotics to treat some testicular infection that showed up for Epidymo-Orchitis, but the antibiotics didn't really help much and I'm still getting testicular pain on and off. I'm of to see an Urologist on Feb 10, but I'd like to know if my newly diagnosed Dysautonomia could be the cause of my testicular pain. Thanks if you can help!
  9. Thank you for making this video, as it's helped me feel I am normal for someone with Dysautonomia. It's interesting that even though I've being diagnosed with Dysautonomia but not POTS I still have most of the symptoms of POTS.
  10. Well done on putting this together as it was a lot of work for someone with Dysautonomia! Silent night is such a classic. Even though I sing hymns and modern Christian songs at church regularly, there is something about Christmas carols like Silent Night that deeply move me, often to tears of gratitude. It's very special doing an item with your family too - a memory you can all cherish.
  11. @PistolThank you @pistol for reassuring those of us with Dysautonomia that we don't have a greater risk from COVID-19 👍 Since being sick in 2015 it seems like my immune system is fairly normal in terms of I haven't caught the flu or a cold any more than average. I did catch a virus recently that left my wife (who got it 1st) and I with vertigo, but I recovered quicker than her!
  12. Thanks so much for this article! I've only been recently diagnosed with Dysautonomia and I'm working with my GP to try some treatments to see if they can help me. I'm hoping others with Dysautonomia might be able to help me with the below questions: I seem to have developed food intolerance over the last 5 years. I've eliminated lots of foods thinking they have caused stomach pain, bloating or diarrhoea. Is this normal? However I'm beginning to wonder if my dysautonomia will cause me to have stomach pain and bloating anyway (even if I eat foods that are OK for me), particularly if I've overdone things beforehand and been too active etc. Is this possible?
  13. Thanks so much for this article. I've recently been diagnosed with Dysautonomia but had to stop work in Nov 2019. Some of us from church got together for Christmas Eve and a lady (Bronwyn) that doesn't know me very well asked me how my work was going. I explained how I had to stop work because I wasn't able to do the job any more due to cognative impairment, chronic fatigue etc. Bronwyn responded well and showed empathy and concern, which was nice. Giving a vague answer and changing the discussion to my interests and hobbies etc as discussed in this article may be a good tactic in different circumstances. Thanks!
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