I'm a new member on this forum and I can not tell you all how grateful I am to have found this thread. I'm a mom of a really great 16 year old boy- I love this kid! But, he's gone through a lot in his life that was never understood but began at 10 weeks old. His first year of life, we were in the ER about 1 time a month with "severe croup." I have 3 kids and my others had croup too, but nothing like his. We often dealt with his airway closing and when he was 8 y/o we had 2 calls to 911 as he was turning blue. This happened again with needing to call 911 again in 7th grade (he lost consciousness) and this past Jan. 2020. He most often opens up a bit with Racemic Epinephrine which were have at home (inhaled with nebulizer) and we also have an Epi Pen for backup, if it's not enough. He's had to be transported from one hospital to another because they could not get him to open up enough as well. He's a bit old for "croup." He's nearly 6'3" and 205 lbs., so they began to call it "Laryngeal spasm." He was on reflux meds. his whole life- thinking maybe that was trigger, had scopes multiple times to rule out structural issues and tonsils out. He would also have dizzy spells, faint, nausea, strange coloring on limbs when he'd stand up. Most people though would never know he had any health issues at all- he's athletic, but when problems hit, they hit hard. We flew out to Mayo Clinic in MN this March (before the country shut down for the pandemic) and met with a team of doctors- learned he has POTS (discovered this by chance when talking about the non-airway issues). Now, they are thinking the airway is connected to POTS as well. My biggest fear was that if his throat closed he'd die- but the Dr. said- if he passes out his body should take over as it will naturally relax. For me, the greatest comfort was hearing from the doctor that his body would likely kick in to relax his airway if he passes out. I've never met anyone who had anything similar. My goal is to get to the point where he can go away for college safely- these emergency situations are very scary for him and also for us as his parents! They only have happened in the middle of the night and when he wakes us- it has often escalated to an emergency in about 10 minutes.