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About flowntheloop

  • Rank
    Advanced Member
  • Birthday March 24

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  • Gender
  • Location
    Southern Appalachian Foothills
  • Interests
    nature conservation/photography, knitting, mixed media art, reading, spending time with my hubby & furchildren, cooking.

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154 profile views
  1. Does anyone else (with a cycle) struggle with tachycardia or flares near specific times? I’ve been keeping a journal of symptoms, and I have my nocturnal tachy episodes and sleep disturbances increase every cycle right around my ovulation. Like most tachy episodes, last night started with intense coat-hanger pain. No amount of massage or ice/heat could quell the tension or discomfort. I felt extremely anxious for no apparent reason, and I couldn’t focus on television or the book I tried to read. (I am autistic, so sensory overload is not rare. However, this was quite overwhelming in comparison
  2. @CallieAndToby22I am so sorry for all that you are going through right now. *gentle internet hugs* I'm sure that this huge pile of stress is not helping your symptoms either! I hope you can find some doctors who are willing to listen and work with you to get you feeling better! I definitely feel worse with any medication changes (heck, even food changes). In the meantime, are you in therapy and/or practicing daily self-care? (TOTALLY NOT SAYING THIS WILL SOLVE YOUR PROBLEMS LOL). I know how hard it can be to find the time or energy to take time for ourselves, but we really need it when we a
  3. @Knellie You would see a gastroenterologist, yes. PPIs typically don't help with this condition (more with the reflux that CAN go along with it). I don't take them as I don't have reflux, and I did not respond at all to them. My helpful tips: 1) I HIGHLY recommend you keep a food diary and log any symptoms that pop up in response to eating certain things. Getting a "SAFE LIST" together will be one of your most useful tools! My "safe list" is quite small (and can shrink even further under times of stress or flareups), but it can take so much of the burden off of eating. 2) Eat small mea
  4. Thank you! That one actually glows in the dark and under a black light I gave it to a dear friend a couple of years ago.
  5. @elfinkoFirst of all, I'm so sorry that your son is going through this. I am autistic, am on the hypermobility spectrum (possible hEDS), and I am seeing a cardiologist on Feb 2 to assess POTS symptoms. From what I'm hearing it is very common for autism, hypermobility (hEDS), and POTS to occur together. Is your son hypermobile by any chance? My tachycardia and low blood pressure episodes definitely DO play a role in autistic meltdowns/shutdowns. As you probably already know, we are very easily overloaded-- so EXTRA sources of sensory discomfort can be disorienting and absolutely exhausting.
  6. I started having a similar issue back in February or March, when my dysautonomia symptoms kicked into gear really hard. I figured out that (for me) it is something called globus sensation. It can lead to dysphagia (swallowing problems) and a weird sensation in the throat. For me, it felt really tight all around my throat-- and at times I felt a crawling sensation. I had trouble swallowing and thought I was surely going to choke. I still get it when I am really stressed, and I got it MOSTLY under control by doing breathing exercises/meditations twice daily. Have you noticed any particular poses
  7. @CallieAndToby22 Are you feeling any better the past few days?
  8. Type the @ symbol in front of someone’s name, and a drop down should appear.
  9. Eye dilation makes me feel awful! Sensory overload, dizziness, head pressure, and nausea. I once had a doctor only dilate ONE of my eyes, and it was such a horrible experience. I could barely hear all straight and got really bad vertigo! I looked like a David Bowie-esque freak to boot! I saved photos of it because it was so wild!
  10. @PistolThanks! I haven't had a lot of energy this year for creating, but I hope I can get back in good health so I can enjoy it again.
  11. Merry Kissmas / Happy holidays! ❤️ I'm new here, but I already feel at home! ❤️
  12. It is honestly so sad that most doctors do not take more of our symptoms seriously. 😢 If I smacked doctors every time they shrugged or told me "It's just part of being on the hypermobility spectrum or fibromyalgia", I don't think I would have an arm left. 😜 I'm really hoping that 2021 brings me a better medical team (with an understanding of what is going on in my body). I've tried valerian, and I'm not a fan (makes my skin feel like it's on fire). I'm not sure about the others you listed. I totally understand. I'm also hesitant to try medications due to side effects, but lorazepam liter
  13. Thanks for pitching in, RFD. I was given Tramadol 15 years ago as well (it was a very desperate situation with my sleep back then), and I don't remember it being particularly helpful for me. I don't remember it causing this sort of reaction though. Ambien, on the other hand, was absolutely terrifying for me. Why do I have to be so dang sensitive to medications?? The only thing that has ever helped me with sleep without causing adverse effects is lorazepam (which I still take when needed; obviously not last night due to taking melatonin). I guess I'm just a little disappointed that this was
  14. @Pistol It is pretty miserable, isn't it? I feel trapped in my own home when it is too hot outside (which is often where I live) or too cold! I've found ways to get outside during winter, but I look like the kid from the Christmas story. In summer, I depend on my AC, but I have to wear warm clothes when I sit near them so I don't get flareups! If I DO have to get outside in summer, I can get VERY ill. Even walking the dogs for a couple of minutes in the sun can make me sick for several hours.
  15. He was handing me his paw and hoping I would give him a treat Or do you mean her looking at him funny?
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