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SeekingTruth

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  1. I’m so happy to have found this group. It calms my fears seeing people discuss symptoms I also have. I have POTS, recently diagnosed, and I have been having low grade fevers for at least the past 6 months. I’ve been to the doctor and tested for illnesses excessively and tests always come back negative. It’s especially terrifying in the age of COVID. I’m certain it’s been occurring for years but I only began regularly checking my temperature because of Covid fears. I frequently have a low grade fever of 99-99.5F (37.5C) and ocassionally a bit higher. Rarely does it pass 100F. This always occurs with flu symptoms, and often a feeling of a sore throat, but not full blown like with a true infection. This includes leg pain and tingling, body aches, joint pain, night sweats and occasionally headache. Looking back I’ve had POTS symptoms most of my life, but they worsened considerably after a concussion (almost disability level) but quieted after a year of strict dieting and rest. Now I am just experiencing the flu like symptoms very frequently, along with chest pains and breathing issues occasionally. This is especially true after being subjected to high heat (only in low humidity temperatures though, likely because of issue of moisture leaving my body). I actually do quite well in humid hot environments. Since the time you’ve posted this, have you found any further reasoning or support for the fevers? I see them anecdotally in many POTS patients yet can’t find much science on it. People used to ridicule me for feeling ill constantly and I was on track in HS, which felt like I would have a heart attack but pushed through. So it’s reassuring to find this resource 💕 I’m not crazy.
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