Claire C
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Posts posted by Claire C
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On 10/6/2020 at 12:36 AM, Muon said:
MCAS can do that as well:
Thanks, Muon - will look into this!
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On 3/19/2019 at 4:59 PM, sjoh197 said:
I have POTS and have had terrible swelling for the past 2ish years and it is really starting to get in the way of my work, my day-to-day, things that involve my hands, or walking. The only time the swelling goes down is when I sleep. My hands also get pink and shiny where they are swelling. They used to have a neuropathic itch when they would swell, but I think my gabapentin made that go away. My feet and legs also really swell, and feel heavy and push against my shoes.
I don't really know what to do. I have an appointment with Vanderbilt in May, but figured I'd see if people here have any advice. I attached a picture of my hand since I can't really convey what's happening.
It's almost like an allergic reaction to moving. Any suggestions?
Hi sjoh197. I am experiencing the same symptoms. My hands, legs, face and general body turn red and swell up throughout the day. I had all the allergy tests done as well as autoimmune but none of them presented any issues. My rheumatologist has concluded that it is blood capillaries swelling and flushing up to the skin. Did you manage to shed any more light on it since your post?
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Hi everyone
I also experience reactions to food - specifically, a swelling across the body (most noticeably in the legs). I think this is blood pooling. It seems to be worsened by certain types of food, such as carbs, dairy etc; however, it happens to a certain degree every time I eat.
Is anyone else experiencing this? Does anyone have a diet that has worked for them?
Thanks very much
Claire
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Hi Emma
Hope you're well.
I have found that I also have reactions to eating, particularly swelling across the body (most noticeably in the legs). Is this something you also experience? Did your POTS specialist shed any light on this?
Thanks
Claire
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On 4/9/2017 at 9:03 AM, kalamazoo said:
Hi yes i have this. Not 24/7 but when im having a flare or am hot. I was diagnosed with erythromlelgia years ago and had the really red hot extremeties also back then. I currently don't get that often, now it's just my veins. Can't take hot showers cause my feet and knees hurt and swell like i can feel the blood pooling. When I'm hot i cant have my hands below my heart or they pool and feel like they're going to explode. I can barely drink/eat hot foods cause i get flares. I dont think its pots personally. I'm going to UW in july so hopefully they can give me answers. I also have insulin resistance
Hi Kalamazoo. Hope you're well. Did you ever receive a diagnosis for this? Thanks.
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Hi everyone
I have recently been diagnosed with dysautonomia (along with hypermobility syndrome). One of my more visible symptoms is swelling around the body, particularly in the legs. This is triggered by stress, changes in temperature etc. I have noticed that this is also triggered by certain types of food (such as certain carbs, dairy etc.).
I was wondering whether anyone else had experienced these symptoms, and whether anyone could describe a diet plan that they had found useful / suggest certain foods which they found should be included or avoided?
Thanks very much.
Claire
Swelling - any advice?
in Dysautonomia Discussion
Posted
Thanks, Ashc - I'll try the tea. No, I haven't tried a hot compress - I would have thought that would exacerbate the swelling, as I find that heat can be a trigger. Have you found this helpful?