dizzygirl

so very glad that your home in your own fishy bowl again.. and also very very glad they where able to get a new port in and that your blood is coming back clean!!!!!!! HOORAY!!!!!!!!!! still thinking and praying for you.. lots of love and many hugs linda

swwetie this a a very likely result of the poly cystic ovarian problem.. I have the same issue.. and some of the same thoughts that you mentioned.. Uhm have you had your levels checked lately? like you testerone levels? in pcos.. its "normal" to have high levels of testerone on.. why im not real sure!... i take a medication called ACTOS for pcos.. and while my "hair" has not gone away.. i havent recently developed and new furr patches... there is another medication i believe it is called aldactone???? after either 6wks or 6 months its suppose to help lesson the hair growth.....but im note sure that is used to treat.. also you might try glucophage.. its used to help control the sugar resistance and level out hormone levels... uhm if you want tips on a good hair remover .. try sally hanson hair cream remover.. they have it for face and boy...it works good.. im not sure if its sold in the UK.. but maybe there is something similar.. i know that they hair remover really helps with self confindence issue i have with excessive hair growth.... i honestly do not think that florinef causes hair growth.. but i sure know that pcos most certainly does!!!!!!!!!! good luck!

thank you both~~!!

meg.. ive expereinced sweeling while wearing hose.. i wear knee high they work the best for me.. uhm but i got measured everytime i get new ones... you can get this done at medical supply stores.. there are staf members trained in fitting you for compression garments... you may find that pain goes away once you get the right fit for you with the right compression level as well...

Maxine--girl Ive done plenty of weird ((((((((BEEP))))))))))))))))) things in my sleep!!!!! Could you possibly have been sleep walking? I know that you have some sleep issues.. uhm some times when the body is under "alot" or extreme stress.. it can do crazy things... ive had instances where ive waken to discover (more then once) that i got the munchies or something in the middle of the night with no recollection of waking up to get anything... I was partiuclarly surprised one morning when i got up to discover that i had opened a band new jar of pickles and eaten half the jar!! Now i have the darnest time get them boogers open!! Or ill hold full conversation with ppl who call me either at night or during a nap and not remember it.. that happens alot... there are more instances... but yes its weird to find your collar esp. considering that you couldnt find it.. and then wake with it on.. this stuff can kind freak you out and make you question your sanity... does your hubby remember you getting up at all? You could very well have been sleep walking maybe???????? or atleast in some sort of sleep state doing stuff you dont remember.. uhm.. thats my thoughts girly!!!!!! hopefully its a one time thing for you hugs your fellow weird sleepy friend ..lol

oh yes im giong to take material on periodic paralysis.. this stuff *****!!!!!! My body is in full swing.. ive had 4 paralysis (possibily more b/c i was going in and out of it for a good 3 hours) epi's today and they where quite.. bad i had neuro symptoms that really scared the crud out of me ...once i could move i conteplated calling 9-1-1.. but thought they arent going to be able to help me... and tell me to folow up with dr grubb.. that is what they all say.....love dr. grubb he is great but he is not a neurologist ya know... i called my pcp here not long ago and im giong to get labs done first thing in the morning.. then see his after the results are in... morgan.. boy can i relate to the sleep thing... I just slept 7 solids hours (it was my afternoon nap.. ) and ive been awake like 1 1/2 and im ready to go back to bed for the night.. these things really knock you down...ive had to keep a sleep journal for a while now.. and i sleep on the average of 16 hours a day... and that is a good day.. bad days i sleep alot more.. my lord pamyla i want to be thuroughly eval'd for lyme by someone who is up on it.. but im having a dilly of a time finding alyme literate dr.... i would try about anything to relieve this stuff going on for sure...

melissa glad that things went well for you.. my prayers are with you always sweetie love and hugs linda

OH she is darling!!! so cute.. her hair really is beautiful!!!.. congrats to you grammie! love and hugs dizz

that is fabulous! im so happy for you! I really hope that this helps you.. i really do.... gr. G wanted to try me on procrit.. but my insurance wont pay for it.. how'd you get it approved? BIG KUDOS girl! please do let us know how you are doing on it if it helps you

i often have issues with low potassium...echoing morgan potassium pills can help get your potasium levels to wear they need to be.. your potassium being off even alittle can knock you body out of whack...you can also try eating veggies high in potassium.... hope ya feel better soon

your a sweetheart rachel thank you!! (((((hugs))))))))

wow ernie that is awesome i wish you the best of luck with this new researcher! i look forward to hearing if you get some good results! much love and many hugs linda

hi folks.....for some time now ive been battling with debilitating fatigue...actually many months..i actually lost count....i recently got diagnosed with hypersomnia/narcolepsy.. and that explains my "excessive drowsiness" BUT my sleepy dr said that my hypersomnia/narcoplesy are completely seperate issues from my other "disorders" and that my fatigue has nothing to do with my "sleep disorders" I have the fatigue so bad.. and i know that ive posted this before.. but just chewing my food.. something soft like a bannana.. exhausts me...i mean i can feel it deep with in my muscles..in my face as well.... fatigue has always always been an issue for me.. but man its gotten to a peak that even surprises me... my dysautonomia/chiari i dont know which at this point is the worse of 2 evils...are having a hay day on my body... for whatever reason my body doesnt like any medication ive tried to treat pots... my beta blockers have been upped to high doses.. and would you know that my HR is still climbing up to as high as about 150 resting.. im baffled by this b/c im on som seriously high doses of bb's... i guess im frustrated ...and all i want to do is cry... im overwhelmed with the never ending pain that is running amuck thru my body.. and pretty much everything...and that i still havent after many yrs of trying meds found a combo or a med that realy works to relieve my pots symptoms at least... it certainly isnt for a lack of trying.. but gee willkers! how irritating! i guess im wondering do any of you who've experiences long term debilitating fatgiue.. and fatigue.. and oure exhaustion arent even close to what i feel.. but do you ever find a reason for it? i mean or do ya just gotta deal with it?? oh yea. forgot to mention.. im going to see a neuromuscular dr in a few wks.. for the eval of periodic paralysis.. so maybe that will help with thing? if im not paraylzing all over the place.. maybe my muscle would be flipping out on me! Im also going to see a new neurosurgeon about my chiari and all those issues.. all i know is i really need some relief from something!

dear Melissa.. your in my thoughts and prayers.. always sweetie! you have been such an inspiration... courageous and very brave... love and hugs with you always linda

i faint in my dreams.. same kinda scenario's that i woudl faint in awake time life... and once ive waken up.. ifeel like i feel as if i acutally fainted.. it is so weird! wonder why so many of us do this?

WOW!!!!!! that is very cool!!!! thank you!!

ohhhhh he is so cute!! i always love when you post your animals on here!

omg!! they are so very cute!

maxine big hugs and prayers for you.. call me if you need to talk k HUGS dizz

BUMP

yeah im going to get a copy of the records and prolly fax them to dr grubb...interesting enough the way i felt.. ive have felt many many times. before.. and the event has not been captured depsite many stints on heart monitors... I dont think its my beta blockers actually causing the drops... b/c it normally runs fast..even on beta blockers....(for me) im thinking its maybe the same mechanisms that is causing my HR to spike really really high over 200bpm..(those are of course well documented!)... but what i wanted to say..... the feeling ive been telling my locsl cardio about for over a yr now.. i get this attacks where i seriously feel like i going to die... the numb disconnected feeling.. my hr does what it did in the er.. when it was dropping..the crazy head feeling lightheadness that is insane..visual stuff.. i could go on and on acutally......and i felt like that .. and its not that i'm glad that it happened but im glad i had in there ER.. b/c at least now i have documentation and a correlation.... But im wondering if a longer term heart monitor would be helpfull... the ones that are download-able...hmmmmmmmmmmm... the ER staff was actually decent in there treatment.. with kinda surprised me...(lil synical there yup) .. they did keep me about 4-5 hours and monitored my HR.. and it stayed up... i do wonder if mynasty headach contributed... normally when my HR is over 200.. i have the bad headaches.... they gav me drugs for the headach.. and it dulled it for about 8-9 hours.. and now its picking back up full speed.. never really went away.. and that bites!

Hey folks.. my dad was started on lyme anti biotics..on thursday... they are making him feel quite sick...if i understand correctly this can be normal am i right? espcially if they anti-biotics are killing off the tick crap in your body? Uhm his dr is treating him for lyme disease.. my dad has been really sick for over a yr now.. and knows roughly when he got tick bit... about 14-15 months ago... uhm his dr is treating him but has no real knowledge of lyme.. and wouldnt treat him or do anything until my mom really got on the dr to DO SOMETHING! so he put my dad on 8 wks of anti-biotics.. but ive been doing alot of reading on it.. and trying to find my dad a tick literate dr...and im not having a great deal of luck... im concerned that after 8 weeks on anti biotics that that is all his pcp may do b/c he is not familar much with lyme.. and my dad is very sick.. his blood work came back showing that his blood test for lymew was neg.... but those things are conclusive anyways.. and that he has very very low tyroid functioning...(he was started on synthroid.. and the dose was uped and he kept getting sicker.. so now on to lyme treatmen) his labs also showed high good/bad cholesterol...and that his inflammation rate in his (im guessing muscle inflamation) is extremely high.. his pcp told him that it is the highest inflamamtion rate he has ever seen... its my understanding that lyme can mimick thyroid disease? so could that be why the thyroid medication has not touched/help increase his thyroid functioning... i guess it all comes down to im really scared for him.. he has been unable to work cause he's been sick there for he has no insurance.. my parent filed some emergency help.. but sincemy mom works.. im afraid they will get denied for him and just miss the cut off guidelines... my dad has gone from being a very very active and energetic.. relatively healthy man.(the enrgizer bunny to be exact.. he could keep going and going and going!). to being very sick.. and having to lay down in the middle of the day.. i think he now has some autonomic dysfunction.. he has symptoms of dysuatonomia.. but can not get test right now ..again.. no insurance...you can tell he isnt well by looking at him i guess im looking for information and helpful tips from those of you who suffer with lyme disease.. are there any non medical things that you do that help ease your misery?? some of the bizarre symptoms he's having.. -his gums are receeading -severe debilitating fatigue -extreme muscle pain/spasms -palsm and souls or his hands and feet sweat -major heat intolerance -chest pain -visual disturbacnes -he feels like he's dying -irrigeular hr beats -really dry skin -dizziness/feeling like about to faint -lumps appearing along his muscles -swollen glands/lymph nodes -unable to swallow -choking uhm there are more but these are the ones that stand out to me right now.. any tips of dealing relieveing these would be helpful.. my goodness my heart goes out to all of you with lyme and dysautonomia..my goodness i dont know you all do it... what other tests have you had doe.. to test and see what kind of damage the lyme has done to your body??? again any help and insight would be wonderful... im really scared for my dad... thanks

happy birthday!

happy birthday melissa! BIG HUGS FOR YOU!

had an er visit recently for a bum kicking headach ive been having.. i was hooked up to a mintor.. and my HR was doing some fancy like flip and flops-thuds.. and feeling like its being tunred inside out..OUCH... making me feel yucky.. well as soon as they hooked me up to the heart monitor.. my Hr kept dipping to the lowest it got was 29.. then it would spike back up to 70's-90's then dip back down to the low 30's... ive had suspision for some time now that my HR drops.. cause i can feel it.. but heaven forbid you tell that to a dr.. and be believed! But after about 10-15 minutes of my hr doing this dropping crud.. it stopped and my hr actaully went to about 100-110.. and stayed thereno more dropping.. my blood pressure at the time was kind irratic as well.. but that is normal... Uhm im cincerned about the low dropping hr... mentioned it to the er dr and he said well you have pots.. and your on a hefty dose of beta blockers... Ive mentioned it my normal cardio guy.. and he said you DO NOT have a low hr.. your is extremely fast running.. we've never captured bradycardia... Im going to call my potsy dr i think.. and see waht they think.. on my beta blockers.. my hr stay roughly anywhere between 90-130 these days.. so im not convinced that my betat blockers are causing the dips... at least i dont think they are.. b/c ive had these crazy feelings for a long time now even before beta blockers.. SO i guess im just venting... and im surprised i wasnt taken more seriously.... oh yea and the stinkin iv meds didint even take the headach away...