Ive been battling illness for 15 years. Im 29 now. I started having my PoTS symptoms at about 13. I just learned about the actual diagnosis about a year ago when my symptoms got so bad i had to quit my job. I get presynscope when i stand in one place too long. The symptoms i thought were pretty bad, until i experienced really bad symptoms and now the previous symptoms dont seem so bad! I use to have dizziness, nausea, lightheadedness and extreme muscle fatigue plus a doubling in my heart rate when standing.
Now the past 2 weeks I can hardly stand for longer than 1-2 minutes and I go into presynscope. my oxygen and bp drop and my bpm will shoot up for a minute or so and then drastically drop down to 45-50. I havent fainted in 12 years because i learned to recognize the symptoms and sit before I do but they have intensified and I hardly even have time to sit myself down now. I dont know why the symptoms have worsened but it scares me. I think the bitter cold has something to do with it. I have remained painfully cold and the reynaulds in my hands and feet has pretty much been acting up all day nonstop even indoors.
My main question is how long can you stand before fainting? Im still okay if im walking say through the grocery store at a fast pace but if im walking around my house or standing to talk to someone, clean, or practice hygeine im out after only a minute or two. I use to go about 5-10 minutes long on bad days and 10-12 on good days. Also is this the new norm or have you had fluctuations in the severity of your symptoms?