Hey guys! So I’m new to these forums and just wanted to get connected to some people who are going through similar issues while living with POTS. I have dealt with pots symptoms for about 8 years now, but just recently received an actual diagnosis by my neurologist.
In the past 2 years or so I have really struggled with visual issues that I assume is from pots, with or without my glasses/contacts. The best way I can describe it is this: I can be looking at a sign or a few words whether that be up close or 10 feet away, but my eye has a hard time staying focused/on point on the one portion that I’m staring at. It’s almost shaky/unstable looking. It’s not severe but it’s very uncomfortable, and makes me feel simultaneously uneasy/dizzy in my head as well. It’s very vague and hard to describe. The best example I can find is oscillopsia, where the vision is shaky but the person does not have physically shaky eyes (nystagmus.) Accompanied with that dizzy/uneasy feeling is a sense of feeling very overwhelmed by fast moving lights/objects, sometimes even simply scrolling through a page on my phone for an extended period of time. I have never had a seizure that I know of, but it sort of feels like a “mini seizure” in the way that I feel overwhelmed by repetitive visuals. Overall, these symptoms are worse with less sleep and are worse in the morning time.
2 years ago I had a test to see if I had any major rapid eye movement, but they said it was minimal and not causing this issue. I just had an EEG done but have not received the results yet, although the strobe light portion made me feel pretty uncomfortable.
Has anyone experienced anything similar to this? Any info is helpful, as I’m sort of at a loss for what to do about this or what this even means for my pots. Thanks!