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Shanti

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  1. Yes! Ugh.. i asked my GP to monitor it twice but he dismissed my request.. ended up in ER again bc of chest zings, overwhelming exhaustion, vomiting, severe arm and leg pain and dizziness 24/7..could barely do anything for a week.. then heart changes.. you guessed it - low potassium! ugh i dont like dealing w crisis when clearly it could be monitored esp w people that take florinef - potassium and electrolytes need to be checked often.. had hypokalemia at onset of pots too- and wasnt on meds... its really so overwhelming that as we are falling or in the worst of it we need to constantly advocate for appropriate checking ..so exhausted but to stay alive we need to keep forcing strength.
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