Lynn65

I am being treated for low blood pressure, but I don’t have the symptoms of fainting. I have a number of issues - migraine, hypermobility, fatigue, obstructive sleep apnea, fibromyalgia and have had viral meningitis three times and shingles once (in my 30’s). I believe these are pretty much all related issues. I did faint several times in my mid to late teens, but haven’t since then (I’m in my mid 50s). I can really relate to migraines and tension headaches. I believe that my migraines and tension headaches which arise out of my neck are related to my autonomic dysfunction. I have tried an inordinate amount of things to help with my neck with limited success. As soon as I started taking Florinef, my super sensitive neck improved markedly, but I started waking up with tension headaches — apparently in some people Florinef can cause supine hypertension in the morning. My specialist added propranolol and that pretty much fixed the morning tension headaches. I have also been taking Endep for nearly 10 years. I have tried getting off it five times through very gradual reduction of doses, but each time my migraines have come back. The combo of florinef in the morning and propranolol and Endep at night have helped my energy, sleep and headaches/migraines. I should note that I take relatively low doses of these drugs - 10mg of propranolol and anywhere between 1.25 and 7.5mg of Endep. My go to for migraines prior to Florinef working for me was chewable aspirin, then Maxalt and then Valium. Since using that combination, I have avoided emergency room treatment for migraines. On the rare occasion that things flare up, I still use that. My specialist has now advised that I stop florinef due to potential long term side effects, so I am trying to transition to dexamphetamine instead. So far I haven’t totally descended into neck spasms, although my headaches are definitely closer to the surface as I reduce dosage. This is my second try of getting off florinef. I hope that you can find some relief. Lynn