In 2017 I got weight loss surgery and months later I started a horrible fatigue, started fainting, muscle weakness, brain fog, feet/arm tingling. The chronic fatigue is everyday and lasts all day, I can barely function, work, or drive and do daily tasks.
It took me over a year to figure out I had dysautonomia due to the rapid weight loss (orthostatic hypotension). No treatment is working.
The problem is I have a lot of malabsorption. I think that’s why nothing is working.
I have tried midodrine, mestinon, fludrocortisone, desmopressin, nortriptyline, Ritalin, droxidopa.
The only thing that I’ve ever gotten with those meds are the side effects such as chronic diarrhea, too high blood pressure (droxidopa), insomnia and rapid heart beat (Ritalin). I have gotten zero benefits from any of these medications. The only thing that has worked is high dosage vit C IV therapy, and ozone therapy, but it only lasts a day.
My cardiologist currently has me on desmopressin and fludrocortisone (retain fluids, and expand blood volume), but this doesn’t seem to be working.
Is there any other medicine that has worked for you without severe side effects? I currently see Nicholas Depache and he is a great cardiologist. I just don’t want to have to reverse my weight loss surgery just so I can get to a point I can absorb my medications in order to get my some relief. Isn’t that crazy? I have no idea what to do to fix this problem. I need help. I cannot function like this anymore.
I see in the Dysautonomia book that i read that there are other meds to try such as ADHD drugs, such as Atomoxetine, and possibly others. What has helped you with fatigue? I wanted to try Procrit but my hematologist warned me since my hemoglobins are 11, this would not work for me and would be severe side effects like blood clotting. If it was an 8, she would of done so.
Thank you for reading my story and sharing your experience.