Hi,
I wanted to introduce myself. I have many symptoms and don't know what to do. (I'm not from English-speaking country, I hope my style or grammar won't annoy you too much!).
So I'm a woman after 30 and I'm almost house-bound. I don't have POTS according to my doc, but many other dysautonomic features and symptoms, yet it's difficult to get official diagnosis here, where I live.
Few years ago I've started to have symptoms (very ocasional presyncopes), which one year ago unfortunatelly increased. After minor surgery I've begun to have GI tract symptoms (reflux and IBS), and in the same time I've developed motion sickness , some very strange anxiety attacks (like sudden fight or flight response few times a day). Since then, Ive had different feeling of my body all the time. Like I was out of chemical balance or something, everything - weather changes, temperature, even short travel, bowel movements, exercises, sounds and smells - can make feel like something is going on with my whole body and I'm going to faint, I feel very weak at these moments and I have nuseas and dyspnea.
What's more, I have very strict, poor diet, because I have so many food intolerances. I always was sensitive to drugs, but now is much worse, Ive stopped even medications I've had for my illness. Because I was diagnosed with MCAD - urticaria pigmentosa - this year (earlier with PVC, IBS, CFS, psychosomatic illness). Yet these drugs only have helped for some symptoms and only a little.
I know there's a connection between MCAD and dysautonomia, but also it's linked with EDS, which I don't have (I have only few hypermobile joints on hands fingers), but it's present in my close family.
I don't want to think this illness has ruined my life and is still doing so. I'd rather think "it has turned it upside down".
If somebody has mild to moderate chronic symptoms all the time, and sometimes is more symptomatic, but always feel her body different, do you think it's possible to ever function normal again? Because I can not work outside home, I can't travel, I'm so sick of this sickness! I loved to paint, to dance, I totally loved hiking and trekking in mountains and woods, I loved to drink and eat with my friends on the city, I loved so much going outside. I'm more a country- and outdoor person. Yet I stuck in the apartment with loud neighbors, when sound is one of my biggest stress trigger.
Do you think it's possible to feel better and have life again?