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bethany08xu

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Everything posted by bethany08xu

  1. I take proamitine as well I was prescribed 10mg 3x a day but only take 5mg once or twice a day. I had some high blood pressure issues so I don't like to take it. It does help me,I always take my morning dose and take it later in the day if my bp is ok. I am also on a pretty high dose of the florinef .4mg a day. I had the goose bump side affect in the early stages of taking it but not anymore. I have been on both medications for about 7 months.
  2. I keep thinking the year has got to be better than last year with my POTS setting in . That is what keeps me going and trying to get better. The SDS thing is very scary and my first DR who diagnosed me talked to me about it right away and I don't think that was the thing to do. Like you said every symptom and your thinking SDS. My first Dr told me I had Autonomic nervous system dysfuntion that could lead to complete failure,with out doing the tilt table. My PCP ordered a tilt table with an EPS and I was dx with POTS. These Docs really need to think before scaring someone half to death. POTS has been no cup of tea but I really believe that I'll be back to work very soon and with the help of medication be half normal again. I quit researching all of this for awhile because it was starting to consume me. Hang in there. Bethany
  3. Dan, I have been having throat or neck cramps,I haven't known how to explain them but cramp is the perfect word. I worried about Shy Drager at first but after reading this post I do feel better. I am hoping that this is a passing thing,but it helps to know there is something out there to help,some times after I yawn my neck cramps for awhile. Does that ever happen to you? Bethany
  4. Happy Holidays! Take some quiet time for your selfs. I hope for a peaceful year for everyone and the world. Bethany
  5. I feel the same way about being a hypochondriac. I started having some neck spasms when I yawned and right away I was thinking Shy Drager. My mom laughs at me but I totally understand where your coming from. I never thought 1 yr ago that my life would be so changed from this time last year. Ask your Dr I think they should know everything. I hope the tremors go away soon. Betahny
  6. Ling, Thank you for the response. I would love to see a dietician but have no idea where to start. Does insurance cover the cost? Do I need a referal? I would try anything. My neurologist never went beyond asking me if I could relate any specific foods. I watch the chocolates, the cheeses,the obvious migraine foods. I see my cardiologist next week and I'm sure he's not going to want to put me on the Effexor due to my high blood pressure. Maybe he could suggest a dietician. Bethany
  7. Hi, I have had Migraines as long as I remember but they have gooten much worse since I have had POTS. I saw a neurologist last week and he's not sure if it's the spikes in blood pressure or the stress of me not working or the Florinef,he wants to start me on Effexor. Has anyone been on this or know anything about it? My migraines have been so bad I can't do anything. I have been getting three a week at least,so I am ready to try anything,I did do the diary and can't relate any food. Bethany
  8. Hi, Are they saying she passed because she didn't pass out? Bethany
  9. Hi, Do pots pt's tend to have allergies/bad sinuses? Bethany
  10. Hi, I too have a problem with carb's,it took me a few bad experience's before I realized it was the carb's. A food diary is a a great idea. Good luck. Bethany
  11. Hi, Thanks for your response.I feel lucky after hearing your story,I was diagnosed early,tjanks to a dr who wouldn't give up. He didnt even know me that well I just believe he's a great dr. My parents have also been my complete support system, my husband helps alot too,but so much has been placed on his shoulders. I haven't been able to work and the money situation,well I'm sure you all know. Keep up with the hopeful attitude I know it's hard. Bethany
  12. Hi, I'm new and I can't believe what I'm reading everything I've been feeling is normal for POTS pt's,I'm not going crazy!!! I was diagnosed in August two month's after all most passing out.My doctor was wonderful and would not give up until he figured it out.The brushing the teeth story really hit home that has been going on for years.I'm a nurse and I thought my problems were probably vascular.Quess I was wrong. This syndrome is horrible,I can hardly take of my two small children and I know my family gets so tired of me being sick all the time.This forum along with the ndrf forum have helped so much just knowing it's all real.Did any of you question yourself in the beginning? Bethany
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