MissMermaid

@Scout thank you for reply and I am so sorry you have to deal with this too. It is so unpleasant. My heart symptoms are the most terrifying. Because of my history of normal heart tests, ectopics and the fact that this episode did not make me feel breathless or dizzy, my doctor was very uninterested or concerned by it. I will try and make an appointment with my cardiologist regardless. I did try on Monday but they were full up and asked me to get a referral from my doctor which she didn’t think necessary to give me. I hope you are well x

@Pistol You are right, they are scary! A loop recorder is a good idea, maybe something I should discuss with my cardiologist. I hope your atrial flutter is under control now. My heart always behaves when wearing a holter, of course.

@Sushi Thank you. I know I panicked prematurely haha. I wasn’t thinking logically so you are right, it’s impossible to tell what I experienced just based on how it felt. A Kardia seems like a really helpful tool. Perhaps something I should look into myself.

@MTRJ75 Thank you for your reply. I appreciate it and am so sorry to hear you suffer through the same thing. It causes so much anxiety. I’ve had the echos, holters and stress test and everything looks normal so I try not to worry when I have the pvcs and pacs. Now I’m worried it may have turned into something else. @Pistol Thank you. I need to see my doctor soon and will definitely bring it up. I had no other symptoms with it at all. Just felt weird. I hope it just doesn’t come back.

I just had the most odd arrhythmia just laying in bed doing absolutely nothing. A pvc usually feels to me like a slight jerking or flutter, a pause and then a big beat and then back to normal. I felt the usual jerking in my chest but it wasn’t over in a second so I was able to check my pulse in time and it was quite fast. Maybe 8 fast beats while it felt in my chest like it was fluttering, a pause, the big beat and then back to normal. Was over in about ten seconds. I’ve had this before a few years ago but describing it to my cardiologist didn’t garner much concern at all. Does this sound like nsvt? I’m scared! Concerned I will drop dead at even given moment now. I will be contacting my cardiologist on Monday for sure.

Thank you for sharing ❤️

Thank you so much @ScottS, I appreciate all the info you have provided. i have been eating a boring diet and have not had bloating today, although the sternum pain comes and goes still. Will be happy when it goes for good. I hope it does anyway!

Thank you all so much for your input and suggestions. I am so sorry that you all have to go through this. I’ve been at the end of my patience with it and yesterday I broke. It hurts so freaking bad. My sternum hurts. It burns on and off too so will up my nexium. Hard to relax and not think I’m having a heart attack the pain and bloating is so intense. @Pistol the cucumber water sounds delicious. I’m definitely going to try it 😊 thank you

Does anyone here have gastroparesis? I have read that it is not uncommon among those with dysautonomia. I have complained on here about my stomach before and I hate to do it again but I am MISERABLE. This is taking a toll on my mental health. I am in severe pain every day. I’m bloated, I’m nauseous constantly, I dry heave throughout the day - I would love to vomit but never do. I have chest pain, back pain, I feel like I’ve swallowed a rock. Ive seen a gastroenterologist and she recommended I follow a low fodmap diet for a month and see how I go and then see her again in three months. The diet isn’t helping and I sure as h*** don’t want to live like this another three months. I haven’t been diagnosed with gastroparesis and would never self diagnose but I don’t know whats wrong and am desperate for support and answers. Can anyone here help me with personal gastroparesis stories? What helps you ect? Do my symptoms even sound like gastroparesis? I don’t know. I’m just sick and losing hope. Im so very miserable. I’ve gone to the er three times with this but just get nexium and sent home. Hope you are all well xx

Welcome to the forum! I am also new here and this forum has been an amazing place of support and information. I hope you stick around. I can understand the stress and pressure on you for this test to be a positive. It definitely sounds like pots and am so happy to see you have figured out remedies to make your symptoms less severe and can do more with your life. I am hoping for a positive test for you. Try not to stress too much. Your body will do whatever it is going to do that day. I was in the same boat as you. Diagnosed with pots after fainting during a tilt table. Two years later I had a new cardiologist and since I was doing better he was adamant I did not have pots. There was no way I had it. Even I was *almost* convinced! He wanted to do a repeat tilt table to prove he was right. I was convinced this test would be negative and my diagnosis of pots would be taken away from me. A diagnosis which was also important for me to get help I needed. But I Started the test with a heart rate of 70bpm and ended the test fainting with a heart rate of 140bpm. So I hope you’re like me and your pots kicks in when it needs to. Although it feels weird to want that for you because as you know tachycardia and fainting doesn’t feel very nice at all. Haha. Can you request another test if your results are negative? Let us know how you go and feel free to message me any time. xxx

Yes! I get this. Before I was diagnosed with pots I noticed this and didn’t think much of it. Sometimes when I get up of a morning by the time I get to the bathroom my heart is already beating hard enough to pulse my eyes along with it. Very odd feeling.

I get these pvc like thumps in a row often too. Maybe a trip to the cardiologist soon for me too. They are not rapid though and do not make me feel breathless and dizzy. I have assumed they are just palpitations. I might get a few when I roll over in bed, stand up ect. Ugh. I dislike my potsy heart. Good luck @Scout and let us know how you get on. I hope it isn’t vtach. I agree A loop recorder would be worth asking for xx

@jklass44 thank you so much for your support and encouragement. I will be seeking a new cardiologist! I have to advocate for my own health because no one else is going to do it for me.

@Pistol I know what you mean. Anxiety and depression is the worst. I too get anxious about my symptoms. About fainting and being dizzy in public. Fainting at work is always a source of anxiety and embarrassment. And over thinking things. I know I don’t look sick so I don’t give myself a break in fear of just looking lazy. I don’t have a specialist. I do have a cardiologist but we do not get a long. I could request another I suppose but don’t want to be labeled a difficult patient. I think I need to be more proactive with my health. I will look into my options. Thank you for sharing, I definitely appreciate it

@Pistol yes, anxiety and pvcs seem to go hand in hand for many many people. Sometimes they are a source of anxiety for me, others not so much. Depends on my current mental state. I think lately I’ve been a bit more stressed and unhappy due to never feeling good physically anymore. Feel like I’ve been in a flare up for six months. I’m sure I’m not the only one who’s chronic illness effects them mentally as well.

@FileTrekker I’m sorry for your constant ectopics. They are annoying and hard to live with. Mine have been a lot more active than usual the last few days and I hate the anxiety they bring.

I find they have no rhyme or reason to them. I can get a ton every day for weeks on end and then none but a few here and there for other weeks. They just come and go as they please. I try to keep up with my daily magnesium and electrolyte drinks as I need them for my pots. I don’t feel like I’ll ever be pvc free but am learning to live with them. I have no other choice but to really!

@Sushi thank you so much for your reply. Will definitely look into this. Coconut water added to my diet would be a simple change so I might get onto that! 😊

@bombsh3ll I do not take any medication to my knowledge that messes with my electrolytes although I have read that nexium and an anti depressant i take does deplete magnesium levels. My electrolyte blood tests have always been within normal range. I take magnesium daily. I believe it helps the frequency of them. I was in hospital not that long ago and I was given electrolytes and water intravenously and I did not have an ectopic for a whole week! Bliss. I am a stress head sadly and I know stress and anxiety does not help them. Have always been curious if this is common among dysautonomia sufferers. Take care 😊

Ectopic beats are awful and would not wish them on anyone but it’s always nice to feel like you aren’t alone

Wow, that’s a lot of ectopics. @Alex D. I am so glad you have found something to help you. Mine are not that frequent so no treatment is the best treatment my cardiologist says. But very uncomfortable and somewhat anxiety inducing. Thank you for your reply 😊

I have ectopic beats. Premature heart beats that can be quite uncomfortable. I have had many heart tests and have told that these are benign and even normal and common, most people just don’t feel them. when I asked my cardiologist do I have these heart beats because I have pots he simply said ‘probably’ Have always been very curious if others with pots or autonomic dysfunction have these too. Please let me know if you have any heart rhythm symptoms! Hope you all are doing well xx

Thank you @Scout for your tips. Am sorry to hear this is a common symptom for you too. @DizzyPopcorn I usually have one or two ginger teas a day. I still have symptoms but I’d like to think the tea is beneficial 😊 @Wufflebear I have read that Gastroparesis can be common alongside dysautonomia. It sounds very uncomfortable to have. I hope you all are doing well and as always I appreciate the responses

Thank you for your reply @Random-Symptom Man Im sorry you have had to deal with similar issues. It still baffles me that dysautonomia can cause such varied symptoms throughout the entire body. I am glad I have joined a forum such as this to connect with others. It’s been really hard to deal with the almost constant nausea and pain. I hope you are well and thank you for the article on the Zantac. Something I take occasionally myself.

Thank you so much for your replies. I am glad you have found a few things that work for you. I have been taking nexium for my stomach upsets but that doesn’t stop them or help with nausea. Will be seeing a gastro doc soon. I try to eat as boring as possible. I feel like I want to vomit more than I don’t these days. I was diagnosed with POTS two years ago. I have tried midodrine and ivabradine but both were poorly tolerated so it’s a mix of fluids, salt and hope for me right now. And magnesium to try and calm my pvcs which drive me mad at times. I hope you are both doing well!