Jodi Parker

Thank you for your kind reply, and I hope that you too will find something that helps relieve your symptoms I pray that everyone who has this most unpredictable syndrome will find something that helps them.

Hi, I definitely do exist. I wrote the book POTS, Together We Stand. I got remarried three years ago and now my last name is Parker. I also wrote a chapter about my experience at the POTS Treatment Center in my book, becuase my daughter, as well as many other patients I sent there, had a great experinece as well as fantastic results. I never said that Dr. K. promised to cure POTS: as we all know, there is no such thing to date. (unfortunately) I was merely answering a question that was on the forum becuase the question was asked by one of your members. She asked if anyone had personal experience at the Treatment Center and what their opinion was of it was. I thought I was being helpful. Biofeedback is recommended by many POTS specialists as well as hospitals that treat POTS. Dr. Blaire Grubb, one of the most well known of POTS doctors recommends it for certain types of POTS and biofeedback is part of the POTS protocoal at both Mayo Clinic and Cleveland Clinic, so there must be something to it. Additionally, I am not trying to advertise, as I never even mentioned the book that I authored, because I did not want to slant anyone's opinion. I have done a lot to raise awareness for this syndrome and for this community, and would never go out of my way to mislead anyone. Of course, not all treatment options will help all patients with POTS, as each case is unique, with its own challenges. I simply was saying that the program at the POTS Treatment Center helped my daughter, as well as many others that I sent there, to be more functional and less symptomatic, not cured.

Hi, I took my daughter, who was 16 at the time to the POTS Treatment Center in Dallas, Texas, and it was a game changer for my daughter. I believe it saved her life. My daughter, Nikki, who also has EDS as well a spinal disorder ( Scheuermann's disease) was diagnosed with POTS, 11 years ago. She was very ill and suffered from daily migraines, dizziness, fatigue, joint aches, stomach issues, visual disturbances and more. I tried everything from chiropractic to acupuncture, to water therapy, herbalists, and all made her no better. She was hospitalized countless times for migraines and could not wake up for school, because her blood pressure was so low and she just could not seem to function. I was desperate to get her better, when I heard about Dr. Kyprianou and the POTS Treatment Center. To be honest, at first I thought it was too good to be true and was very reluctant to spend more money, get all of our hopes up yet again, waste time, and all for no results. I called Dr. K. on the phone to get some more information and to try to figure out if this would be worth it, or if it would be in vain. Dr. K. asked me what was stopping me from coming, and I mentioned all of the above. She told me that sometimes you have to take a leap of faith. I decided to take that leap, and other than having children, it was probably the best decision I ever made. Besides biofeedback (by the way the Heartmath biofeedback system is not used there. The biofeedback that Dr. K. offers, I believe, is the only one of its kind. I just wanted to clear that up from an earlier comment.) the POTS Treatment Center uses a very comprehensive, multifaceted approach to POTS. They incorporate nutrition, suggest certain vitamins, provide coping skills management, (that everyone with a chronic illness could benefit from )offer sleep recommendations, counseling for those that would like it, as well as provide an exercise protocol. After returning from the Treatment Center, my daughter was able to return to full time high school, went on to be a cheerleader, went off and finished college (never missed a day from being symptomatic) and is now working full time. Of course, to date, there is no known cure for POTS and my daughter, who continues to be about 95% better, still has an occasional flare up. Though not cured from POTS Syndrome, since returning from Dallas, Nikki is fully functioning. I credit Dr. K. and the POTS Treatment Center for helping give my daughter the wings to not only fly again but to soar. I am forever grateful. If you want to ask me more specific questions about my two weeks in Dallas, please feel free to reach out to me. Praying that everyone finds relief from their symptom, Jodi