Anne
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My 19yr old has hEDS, POTS and MCAS. She also has gastrointenstinal stuff going on and had an autonomic seizure a few nights ago (first one) lasting an hour. She has an excellent GP and specialist physio, but really needs some specialized intervention. Can anyone in or outside Australia recommend how we find specialists who have knowledge of these conditons? It's like finding a needle in a haystack. Thanks.