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I haven't seen a neuromuscular neurologist but I am definitely going to make an appointment with one. I was given 5 days worth of IVIG in the hospital and about 2 days after the treatment was done, my symptoms reversed. But for the last two times that the paralysis occurred, I did not go to the hospital and the symptoms reversed after about a week to two weeks so I am not sure if the IVIG would speed up the reversal or not. As for this episode ( which started Saturday) I am having a lot more pain and I have been getting rashes and burning sensations all over my left side so bennadryl has become my best friend.

They thought i might have CRPS because of the pain I have every day and they think it might have been caused by surgical trauma to my legs. But the paralysis seems to confuse everyone so they’ve been throwing out diagnoses for every single symptom but nothing seems to fit for all of them. I’m sorry you have to deal with CRPS

I am 20 years old and I haven’t been able to be as active because of the syncopes but I try to do at least a little exercise every day.

I had a MRIs on my spine and brain several times to rule out MS which all came back normal. I also had a spinal tap and that was ruled normal

No, i was never diagnosed with Guillain Barre, but my symptoms are very similar

I was hospitalized for this last June, where i was tested for Guillian Barre syndrome and treated accordingly, but they were not able to come up with a definitive diagnosis. Just that I may have complex regional pain syndrome.

Hi everyone, I have been dealing with dysautonomia for about a year now and have been diagnosed with Neurocardiogenic Syndrome, Innapropriate Sinus Tachycardia, Orthostasis, and syncope (usually between 5- 10 complete syncopes a day and pretty much always being in presyncope). Along with all of the symptoms I have been dealing with related to those conditions, I have also been dealing with periods of temporary paralysis that lasts for about one week to 10 days and occurs about every 3-4 months. The periods of temporary paralysis start with leg weakness and muscle fasciculations and cramping which progress to loss of reflexes and paralysis on my left side . The paralysis is ascending and can go up to my waist but every time is slightly different . Has anyone else experienced anything similar to this? I am asking this while in the beginning of another episode