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Everything posted by Shepard1

  1. @Derek1987 It is a dinky little thing that fan. A good idea to have one that is compact too. I have a hand held fan that can be tiring on the hands and arms.
  2. Welcome to the forum, there are a couple of Specialists mentioned in posting from 2016 by Macca which I hope will help https://www.dinet.org/forums/topic/27846-specialists-in-australia/
  3. @Sarasw If you have primary aldosteronism then your thirst symptoms may reflect that you are hypokalemic ( low potassium levels) - from what I understand - which means you would need to seek medical assistance and review urgently. Hypokalemia can cause cardiac arrhythmia and serious threat to life. Other Symptoms .... Weakness Cardiac arrhythmia's Muscle cramps Excess thirst or urination Hope you are okay.
  4. I am now on a statin (day two). I have taken them at night and for the last two mornings I have been a box of birds. Significant change to my normal morning routine. Can't seen anywhere in the study about statins. May have missed that part though. Will keep you all in touch of my progress
  5. Is a person who studies genetics. https://ghr.nlm.nih.gov/condition/ehlers-danlos-syndrome https://ghr.nlm.nih.gov/primer
  6. This is the first I have heard that some medical teams are seeing a pattern emerging. I am also pro-vaccination, however stopped having the flu vac back in about 2007 after becoming very ill about 3 months post vaccination. On my third year of flu vaccination I noticed a correlation with time frames of illness post flu vac. I don't seem to have a problems with other vaccinations, as a couple of years ago had the whooping cough vaccination with no adverse effects. So decided to stop yearly flu vax, I felt that my immune system got stressed, leaving me vulnerable to picking up a in
  7. Some amazing accomplishes! It is times like these that having a like button would be really handy! At work while talking to a client, I got really severe abdominal pain out of the blue. I managed to stay focused, even when feeling pain and light headed - with the client non the wiser. The pain went as quickly as it arrived.
  8. For us POTTies, bleeding heart flower .....
  9. I gave up on monitoring my BP closely a long time ago manly because I just want to have some normality. I too got very tired of it all. My way of thinking that is okay every so often. 😀
  10. Jim I also really like peonies, I really wanted to grow a couple of plants but my climate zone is too hot unfortunately.
  11. Bluets are very pretty and delicate. Orchids can be quite interesting flower, like the Ballerina Orchid or the Monkey Orchid
  12. I really like this flower field of Russell Lupins. Fiordland National Park in New Zealand.
  13. True, but I have no idea how old the OP is. Best to ere on the side of precaution. Worst case scenario with peripheral arterial disease and wearing compression therapy is compressing arteries causing ischemia and digit or limb death. I have worn compression waist high, but had to stop as my bladder was being irritated.
  14. Symptoms that one would experience at high altitude include, nausea, headache and fatigue - some suffer from this at a worse extent than others. Can occur as low as 8,000 feet. There are other more serious symptoms that can be felt when at higher altitudes. If you have go visiting then ascend slowly, normal recommendation is over a couple of days. If you find that you were breathing faster and more deeply indicates that you went to high altitude too quickly. Adrenaline levels do increase in the early phases of exposure to high altitude, Low hemoglobin blood levels will impact on symptoms.
  15. I am too a tummy sleeper and tried raising the head of the bed, but was able to feel the slight slope to discontinued. Wouldn't say it worked. I also wake up with either sweating or nausea. I have a fan next to my bed that I turn on when I wake up sweating. It helps a lot. I also set my alarm earlier than I used to for work, then put the alarm on for the right time. I do this so some symptoms like nausea and sweating from rousing can settle a little before getting up for real. In the early days, I used to have deal with raised HR, severe sweating with nausea and vomiting. Pleased t
  16. It could be that normally you get up and start moving and with your leg muscles moving means you are moving blood around. Standing still, allows for blood to pool in the legs causing dizzyness. There are so many variables with dysautonomia that sometimes it can be difficult to discern the cause. I don't always get dizzy on standing either. Yet some days I just do.
  17. I used to get head pain on movement when I had headaches. Mentioned them to a neurologist who felt it was a migraine not headaches. I get slurred speech when I am tired but is not related to a painful head. Not sure what to make of peripheral vision movements. May need to discuss your symptoms with your doctor.
  18. Thanks @KiminOrlando , I will get the panels retested when I next see my doctor. I am not sure that they will be happy for ongoing testing when negative. Age could be a factor @Pistol, but Mum does not feel I should be stiff when I am so active. She feels that I should be fit and mobile at my age especially with the amount of activity I do. This stiffness came on about 8 months after diagnosis.
  19. I did have a full rheumatology panel many years ago that was NAD. Something was high but another test it was back normal.
  20. Since mid last year I have developed stiffness in my muscles/tendons after I have rested or after waking up in the morning. I lead a very active lifestyle that also include stretching when exercising. I walk 4-5 km 6 days a week with plenty of hill walking. So by rights I should be quite fit and with stretches quite supple. On standing it takes me a while to stand upright and moving forward I remain stooped for a step or two. It is just not my lower back, my hips, knees ankles and Achilles tendons are stiff too. Although it has been bothersome once moving the stiffness improves.
  21. I am pleased to hear you are feeling better at the moment. I would suggest using a digital thermometer, so you can diary your temperature and report back to the GP perhaps include heart rate too. With objective information, may help your doctor in discerning causes of the fevers. I had to do this with my temperature, BP and pulse as concerned that I would not be heard by medical staff.
  22. What is your actual temperature when feel off colour. GP practice waiting rooms can be a nightmare if you are prone in picking up bugs easily. Many years I dreaded my son getting sick after hours because when I took him to the after hour doctors I would end up very ill the next day with not my son's bug but something I picked up the the waiting room. In my late teen's I got a severe bout of glandular fever (40.3 C/104.5F) and early twenties I used to have high spikes in temps with sometimes feeling off 39C/102F but not always. It was felt that the wide range of temperatures where due
  23. The smiling goat is hilarious! Wonderful pictures. How are they doing now?
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